Good DXA results - no more Alendronic Acid! - PMRGCAuk

PMRGCAuk

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Good DXA results - no more Alendronic Acid!

scrambledegg profile image
8 Replies

After 6 years with PMA and still on 10mg prednisolone, I was pleased to get a normal bone density report and very surprised to read on it the advice to stop taking Alendronic Acid as “had adequate period of treatment. Bisphosphonates remain effective for several years after withdrawal”.

I raised a concern here sometime ago that the patient information leaflet with AA used to say stop after 5 years, but doesn’t now. I raised this with my GP a year ago and he said I could only stop once I’d got down to 5mg prednisolone, and there was no point having a dexa scan until then. A year later at my annual review at the same practice but with a different GP, I asked again for a dexa scan and this time she agreed I should have one and I’m so please I did.

I had been tailing off the AA to about once every 3 weeks anyway because of the concerns about long term use (no side effects for me though). Now I can ditch it altogether with no niggling worries😊

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scrambledegg
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8 Replies
jinasc profile image
jinasc

If, and I mean if, you have to take another bio - then read up on the Royal National Osteoporosis website.

scrambledegg profile image
scrambledegg in reply tojinasc

Thanks, I will.

123-go profile image
123-go

That's good news scrambledegg! 😀

scrambledegg profile image
scrambledegg in reply to123-go

Thanks😊

pal-o-mine profile image
pal-o-mine

That's wonderful news. Surprised that you've been on it for so long. I've been advised to stay on it for 2 years and was worried that may be too long, but you've given me reassurance that my two years is a drop in the ocean by comparison.

PMRpro profile image
PMRproAmbassador

I do wish they would all sing from the same hymnsheet ...

Heron82 profile image
Heron82

This is very encouraging, I hope I get to the same place in time. Curretn;y my Dx is -1.7. Thank you for posting.

scrambledegg profile image
scrambledegg in reply toHeron82

Good luck to you🙂

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