Hot and sweating

[SanG55]

Hi all, just checking whether Pred has an effect on body temperature. I am known as the person 'who doesn't feel the cold' (even before PMR) but lately I have times where I become totally uncomfortable with the heat in my body including profuse sweating. Others in a well ventilated room are putting on jumpers and coats, so it does stand out as unusual that I am in a sleeveless top. I am on 9mg now, having tapered from 40mg at first diagnosis in April 2020. Many thanks for the amazing knowledge shared on this site.

[SheffieldJane]

Yes, my thermostat has gone. I can’t wear my lovely jumpers on the coldest days, I just burst into flames.

[SanG55 in reply to SheffieldJane]

Thanks for the reply SheffieldJane, good to know I'm not having a second menopause! 🙂

[Viv54 in reply to SheffieldJane]

Snap, i just stare at mine now !

[PMRpro Ambassador]

PMR/GCA can do it too - so the question is when yours started. Is it something that is returning/appearing now as you reduce? Or was it even worse at higher doses? Pred doesn't do it to me but it is a failsafe sign I am teetering on the edge of a flare.

[SanG55 in reply to PMRpro]

Thanks for reply PMRpro. It's been more obvious to me since the beginning of September, when I returned to work. I don't remember having this at higher doses. I have noticed feeling a bit more achy at times, particularly on waking, but I can alleviate that with paracetamol. So many surprises with PMR - keeps me on my toes(not literally!) 🙂

[PMRpro Ambassador in reply to SanG55]

Many people who work find they need more pred - you could be close to flaring in the way I mention.

[SanG55 in reply to PMRpro]

Thanks PMRpro, maybe I’ll stop tapering for a while and see how it goes? Or do you think I should up my dose? I’m working 2.5 days at mo and going to increase to f/t over the next couple of weeks 🤔🙄😊

[PMRpro Ambassador in reply to SanG55]

I'd stick for the moment and see how it goes - especially when you increase your hours. You are aware that disability legislation applies re reasonable adjustments?

[SanG55 in reply to PMRpro]

Thanks PMRpro, I will look into disability regulation. I am going to be starting a new job and OH did make some suggestions. 🙂

[PMRpro Ambassador in reply to SanG55]

If you put up a post there are a few experts in the field on the forum who may be able to point you in the right direction.

[SanG55 in reply to PMRpro]

Thank you, as always

[Bfp1]

Hi - me too. Some days of awful heat ups straight through til I sweat out of my head and scalp. Other days ok. Some weeks full of them. Try to wear layers. Hairdryer prompts it and sometimes anxiety. I know when one starts. Like the menopause again. Vbw B with huge sympathy- the swear pours off. Long live winter!! xxx

[Iamfedup in reply to Bfp1]

Ditto! I wear my glasses on top of my head and when I need to put them in they are covered in condensation!

[SanG55 in reply to Bfp1]

Thanks for reply Bfp1, trouble is I spend my unsweaty times in one layer!😅

[Fishponds50]

Hello SanG55 like you I can be sitting watching tv or talking to someone and out of no where I start sweating profusely and my body feels like a furnace. It does pass but it is so uncomfortable and influences what I can wear.

[SanG55 in reply to Fishponds50]

Thanks Fishponds50, I'll just keep my fingers crossed that it doesn't last too long!🤔

[Viv54]

Hi , im sorry i thought i had replied to you yesterday ! Yes as you can see from the replies your not alone ! My sweating started almost from the out set of taking Pred.It was so bad some days that my shoes would slip of my feet due to sweat! Sorry to be so graphic ! I went to my Dr and she told me that it was not a side affect of Pred ! I had taken the pred leaflet from the box with me to show her. She was totally unaware of this, she is a kind Dr but it shows you how little some of them know about the condition ! I feel like a have a boiler strapped to my back, im never cold anymore and like Jane i can only look at my jumpers ! Because you never know when a sweat will start. The only thing i can say that i think they get less frequent the lower you go.Hope this helps you are not alone . Best wishes Viv🌷

[SanG55 in reply to Viv54]

Thanks Viv54, I think because mine has come on recently, I had been lulled into a false sense of security.🙂

[Viv54 in reply to SanG55]

Yes it's a shock.!

[Jane424]

Yes, particularly at night, but don't sweat.

[SanG55 in reply to Jane424]

Thanks Bodmor, I'm pleased to say that it doesn't occur at night😊

[Sharitone in reply to SanG55]

I'd be interested to know when you take your pred, if you don't get hot flushes at night. I take mine with breakfast and the HFs always come in the evening and then the end of the night

[SanG55 in reply to Sharitone]

I take my pred in the morning as well. I have invested in cool sheets and chillows which I have used for years, even before pred 😊

[Sharitone in reply to SanG55]

👍

[Bridge31]

Hot sweats at whatever level of Pred I’ve been on. Currently 5mg

[SanG55]

Thanks Bridge31, one day normality (whatever that is!) will return🙂