Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for April 2021

Prednisone again?

I have PMR and have tapered down from 10 to 0, reducing 1 mg a month. I received my second covid shot in February and have been off prednisone for about a...

I have PMR and have tapered down from 10 to 0, reducing 1 mg a month. I received...

SandyBoots

•3 years ago

4 Replies

EYES REPORT

Thanks to everyone who replied to my post on EYES last week. I have been to the opticians today- Specsavers and no sign of GCA thank goodness but I now...

Thanks to everyone who replied to my post on EYES last week. I have been to t...

Cosmos22Marigold

•3 years ago

10 Replies

Very sore white pain full inflamed mouth & tougue, fever, exhaustion & swollen leg & knee!

When ever I try to reduce from 8 to 7 steroids a day all the above return with vengeance! I am 59 & was diagnosed last August 2020 & the about symptoms related...

When ever I try to reduce from 8 to 7 steroids a day all the above return with v...

Lowercwmtwrch

•3 years ago

8 Replies

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Quirky study

Israeli scientists studying the effects of kefir on cytokine storms. https://m.jpost.com/health-science/could-a-cup-of-yogurt-cure-your-case-of-covid-19-664976

Israeli scientists studying the effects of kefir on cytokine storms. https://m.j...

fmkkm

•3 years ago

18 Replies

Thanks for all the responses and info~!!

You all armed me with so much information in the form of facts and shared experiences. Yesterday I went to the rheumatologist armed with all of that and was...

You all armed me with so much information in the form of facts and shared experi...

Grammy80

•3 years ago

4 Replies

Day after Pfizer Covid shot and PMR

Just had first shot of Pfizer Covid vaccine and boy oh boy I was lightheaded and exhausted as many on this site seem to say as well. Had a nap for 3 hours...

Just had first shot of Pfizer Covid vaccine and boy oh boy I was lightheaded and...

Musiclady18

•3 years ago

3 Replies

I have PMR and due to Steroid induced pulminary embolism, I'm on Warfarin. Antibiotics affect INR levels. Can Covid vaccinations affect INR?

I am pro vaccine, had first Pfizer 24 Feb; 3 days later first ever unprovoked nose bleed for half an hour. Second Pfizer 24 March, then 12 days later 5th...

I am pro vaccine, had first Pfizer 24 Feb; 3 days later first ever unprovoked no...

Pollynolongerinagony

•3 years ago

10 Replies

Vaccine effectiveness article

https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/immunosuppressant-medication-response-to-covid-19-vaccine-study/

https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/imm...

kimsaunsc

•3 years ago

6 Replies

New discovery in bone formation process that impacts on the taking of Denosumab

https://www.sciencedirect.com/science/article/pii/S0092867421001525 This was reported in Vivian Goldschmidt's (and explained to the laywoman!) useful site:...

https://www.sciencedirect.com/science/article/pii/S0092867421001525 This was rep...

Alchemy8

•3 years ago

19 Replies

PMR and facial flush/rash

Hello all....all the posts and comments are always appreciated. I was diagnosed in Jan of 2021 with pmr and started on 25 mg of prednisone. Imflammatory...

Hello all....all the posts and comments are always appreciated. I was diagnosed ...

paskymom

•3 years ago

15 Replies

Updated post

Morning all, Have amended my Information post - no significant changes, just a bit of tidying up really. If you have it in your saved posts, the link still...

Morning all, Have amended my Information post - no significant changes, just a ...

DorsetLady

PMRGCAuk volunteer•3 years ago

8 Replies

Steroids and cataracts

I had an eye test last week and was told I have developed steroid related cataracts (as opposed to age related). Something to get checked out for those with...

I had an eye test last week and was told I have developed steroid related catara...

Waves2

•3 years ago

7 Replies

Shaky hands? And reaction to shock ?

Pleased to say that following good advice on here from PRMpro and others re shifting my Pred to 2am has relieved the morning stiffness and ache in L shoulder,...

Pleased to say that following good advice on here from PRMpro and others re shif...

Hopingsail

•3 years ago

10 Replies

General anaesthetic recovery period

I have a problem in that I have to have a hysteroscopy under general anaesthetic the day after tomorrow and it had been arranged that my daughter would stay...

I have a problem in that I have to have a hysteroscopy under general anaestheti...

maria40

•3 years ago

8 Replies

Could reducing pred cause symptoms 2 weeks later

Hi, I'm new to the site. Would like to say thank you for the huge wealth of knowledge and advice given. Every time I go to ask a question or make a comment-...

Hi, I'm new to the site. Would like to say thank you for the huge wealth of know...

Pocketdog

•3 years ago

11 Replies

I HAVE NEARLY FORGOTTON HOW BAD IT WAS.

But not really. I havent posted for a long time and thought I would check in and fill you all in. It was so great to have your support. We came back from the...

But not really. I havent posted for a long time and thought I would check in and...

Cheshy72

•3 years ago

16 Replies

PMR IN LOWER BACK

I have GCA lost sight 10 years ago. I never had PMR until a few weeks ago when I developed severe pains in my hips and lower back. I was on 9 mg of Pred for my...

I have GCA lost sight 10 years ago. I never had PMR until a few weeks ago when I...

Heather270240

•3 years ago

11 Replies

Support stockings

Hi all, had my weekly appointment with gp today and she suggested I wear compression/support stockings to prevent leg swelling and varicose veins while taking...

Hi all, had my weekly appointment with gp today and she suggested I wear compre...

Hidden

•3 years ago

67 Replies

Member

I just became a member. Very impressive site thank you all

Uglow

•3 years ago

2 Replies

Cataract ops,PMR and vertigo

I haven’t posted for more than a year but on opening the app was delighted and amazed to see PMRPro and Dorset Lady still giving up their time helping us all....

I haven’t posted for more than a year but on opening the app was delighted and a...

Pym1

•3 years ago

10 Replies

Steroids and high eye pressure

Hi everyone. I’ve not been on here for a while and am now currently weaning down from 5mg Pred to 4. All good so far. Today I finally had my long awaited...

Hi everyone. I’ve not been on here for a while and am now currently weaning down...

Doraflora

•3 years ago

12 Replies

Tocilizumab extension

Hi just to let you know I’ve received a txt today regards tocilizumab delivery for the end of the month so that will take me to July. Has anyone else had their...

Hi just to let you know I’ve received a txt today regards tocilizumab delivery f...

Devoid

•3 years ago

11 Replies

Is it possible when you've come off the steroids for PMR that there are pockets of inflammation that remain and cause pain?

Post-PMR pain.

Hidden

•3 years ago

23 Replies

Need some Help Please.

On Pred 3mg and been coming down without any problems for quite some time very slowly. Having had covid twice I asked my Dr if I should increase if I have a...

On Pred 3mg and been coming down without any problems for quite some time very s...

Fredddie

•3 years ago

5 Replies

Stabilising symptoms of GCA - any thoughts

As usual with me a bit of a long one, sorry, I have written and got very good advice from you guys twice before, which my Gp respected. So before I have...

As usual with me a bit of a long one, sorry, I have written and got very good ad...

Indigo27

•3 years ago

19 Replies

Covid Vaccine and PMR Flare??

It may be only a coincidence, but while tapering from 2.5 to 2 mg Prednisone, I also had my two Pfizer Covid vaccines and experienced a flare of my PMR. I...

It may be only a coincidence, but while tapering from 2.5 to 2 mg Prednisone, I ...

fishingnut

•3 years ago

4 Replies

Thank you so much for all the replies received

I am so very grateful for all the replies & advice I have received & feel so much more confident about speaking to my GP today. I will let you know how it goes...

I am so very grateful for all the replies & advice I have received & feel so muc...

JEMOK

•3 years ago

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Raynaud's Disease

Does anyone know if there is a coneection between PMR and Raynaud's Disease? I did not use to suffer with Reynaud's but this winter it has been occurring...

Does anyone know if there is a coneection between PMR and Raynaud's Disease? I d...

Bignorhill

•3 years ago

7 Replies

Blood counts

Hi everyone, Im back again with a question. Hubby been back on 7.5 gm steroids for well over a month now and per tel call to GP this morning, GP said blood...

Hi everyone, Im back again with a question. Hubby been back on 7.5 gm steroids ...

piggylovesgolf

•3 years ago

6 Replies

Down to 4mg Pred for GCA and now serious tendon & joint pain, leg (vein) pain. Is it normal?

Hi folks, please can I ask my long haul Pred friends if any experienced my symptoms when reducing and getting low on pred. I've done the tapering V SLOW (2.5...

Hi folks, please can I ask my long haul Pred friends if any experienced my symp...

Fieldofdreams

•3 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

Prednisone again?

EYES REPORT

Very sore white pain full inflamed mouth & tougue, fever, exhaustion & swollen leg & knee!

Quirky study

Thanks for all the responses and info~!!

Day after Pfizer Covid shot and PMR

I have PMR and due to Steroid induced pulminary embolism, I'm on Warfarin. Antibiotics affect INR levels. Can Covid vaccinations affect INR?

Vaccine effectiveness article

New discovery in bone formation process that impacts on the taking of Denosumab

PMR and facial flush/rash

Updated post

Steroids and cataracts

Shaky hands? And reaction to shock ?

General anaesthetic recovery period

Could reducing pred cause symptoms 2 weeks later

I HAVE NEARLY FORGOTTON HOW BAD IT WAS.

PMR IN LOWER BACK

Support stockings

Member

Cataract ops,PMR and vertigo

Steroids and high eye pressure

Tocilizumab extension

Is it possible when you've come off the steroids for PMR that there are pockets of inflammation that remain and cause pain?

Need some Help Please.

Stabilising symptoms of GCA - any thoughts

Covid Vaccine and PMR Flare??

Thank you so much for all the replies received

Raynaud's Disease

Blood counts

Down to 4mg Pred for GCA and now serious tendon & joint pain, leg (vein) pain. Is it normal?

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