Prednisone again?: I have PMR and have tapered down... - PMRGCAuk

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Prednisone again?

SandyBoots profile image
4 Replies

I have PMR and have tapered down from 10 to 0, reducing 1 mg a month. I received my second covid shot in February and have been off prednisone for about a month. I now have achey neck, hips, knees and thighs, although not as bad as when first diagnosed. I recall when tapering that when I was at 2 mg I felt minimal to no pain. Should Igo back to 2 mg and see if the pain goes away again? Hoping you don’t have to go back to a higher mg and taper again?

Thanks for your insight

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SandyBoots
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4 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

HiYou won’t need to go back to initial dose- but if that was only 10mg which it seems reading above and previous posts - then overall you have got off very lightly compared to some.

Would say your PMR never went away, so if you try 2 or 3mg it may be enough to get things back under control...you’ll just have to see.

If your aches and pains aren’t fully under control after 10 days then you may need a quick burst at 5mg.

If you’re ok at lower suggestion, then stay a month, and then reduce 0.5mg a month rather than 1mg as previously.

If you need to go to 5mg - 2 weeks at that dose, then down to 3mg in one step, and commence reductions as suggested above.

At such low doses the side effects are minimal, but the benefits are huge, and even 0.5mg can make a massive difference.

PMRpro profile image
PMRproAmbassador

It might work and is possibly worth trying - at least, if that discomfort is worsening which it would seem it has since 2mg. You started at an unusually low dose and have been very lucky but it is very unusual for PMR to go away so quickly so you need NO pred, a very low dose is not so unusual though.

SheffieldJane profile image
SheffieldJane

My instinct would be to return to 5 mgs and rest there until it settles, then return to the taper of 1 mg a month. You have nothing to lose and maybe a great deal to gain. As others have observed you started on a pretty low dose and managed to taper to zero much more quickly than the average. Good luck!

SandyBoots profile image
SandyBoots

Thank you for all of your helpful replies!

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