Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2021

FATIGUE NUMBER 1 OFFENDER

Hi all, Just resending my story: 070421: 1482 Draft 07 301220 Wednesday 2pm Hi there all ye fellow wonderful brave Polymyalgiars. Thanks a million for...

Hi all, Just resending my story: 070421: 1482 Draft 07 301220 Wednesday 2pm Hi ...

STRAPCOL

•3 years ago

25 Replies

Rheumatology appt

Thought I would update you lovely people . . . I had an urgent referral to rheumatology today after being put on 40 mgs of Pred ... going through my notes,...

Thought I would update you lovely people . . . I had an urgent referral to rheu...

Fiddlersmum

•3 years ago

33 Replies

What is the value of PET-CT scan?

What is the value of PET-CT scan in PMR or other systemic autoimmune diseases? I just had one today, and I honestly do not know what they are looking for? Is...

What is the value of PET-CT scan in PMR or other systemic autoimmune diseases? I...

krillemy

•3 years ago

21 Replies

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Multivitamin to alleviate prednisone side effects

I’ve recently started taking prednisone after being diagnosed with PMR. I’ve been feeling very fatigued. Does anybody have any recommendations for a good...

I’ve recently started taking prednisone after being diagnosed with PMR. I’ve bee...

Red57

•3 years ago

7 Replies

Another chance to add to Covid vaccine and rheumatic disease knowledge: Take the Global Rheumatology Alliance COVID-19 Vax Survey

https://rheum-covid.org/vaccine-survey/ Open to anyone, anywhere!

PMRpro

Ambassador•3 years ago

69 Replies

Vit.D absorption.

I've just had my latest blood test results back and everything is within normal parameters again. However, despite taking Calci-D (1000mg calcium &...

I've just had my latest blood test results back and everything is within normal ...

Kendrew

•3 years ago

27 Replies

PMR - COVID Vaccine

I found this info re the vaccine which might be of interest....

Liby57

•3 years ago

1 Reply

Leflunomide and plan for reducing prednisolone

My PMR journey began in February 2018 on15mg Pred and was smooth apart from one or two bumps in the road. I was diagnosed with asymptomatic large vessel...

My PMR journey began in February 2018 on15mg Pred and was smooth apart from one ...

123-go

•3 years ago

12 Replies

Prednisone

Do you all adjust your prednisone dose or is a doctor doing it please as my back is killing me can o just up prednisone😩thanks

Do you all adjust your prednisone dose or is a doctor doing it please as my back...

Uglow

•3 years ago

5 Replies

Just checking in again ...

Hi Everyone, I do hope you are all doing OK. Things Downunder remain relatively good with regard to COVID, however our vaccination roll-out has been a total...

Hi Everyone, I do hope you are all doing OK. Things Downunder remain relatively...

LemonZest11

•3 years ago

22 Replies

Could this be GCA?

Someone has written in a Thyroid forum and I am wondering if I should suggest she considers GCA although I hesitate to worry her unnecessarily - what do you...

Someone has written in a Thyroid forum and I am wondering if I should suggest sh...

Pippah45

•3 years ago

8 Replies

Trying to get out of a flare

I was down to 5mg, got a flare went up to 10mg with no resolve then went to 15mg and pain stopped. Tried to reduce down to 12.5mg for 30 days but pain just...

I was down to 5mg, got a flare went up to 10mg with no resolve then went to 15m...

Sadie1024

•3 years ago

4 Replies

Have had PMR since August 2011. Had many flares. I have taken 20 mgs for last 4 days. Minimal relief of Frankenstein legs and shoulder pain.

Where to from here ?

Bridge1990

•3 years ago

17 Replies

Fatigue

I was diagnosed in August last year after suffering for months during the first lockdown . As I am only 51 going for mri scan and had a raft of blood tests to...

I was diagnosed in August last year after suffering for months during the first ...

Pippz20

•3 years ago

57 Replies

No problems with covid jab.... And Hello!

Hi folks. I'm new to this forum but just wanted to add my two penn'orth to the comments about the covid vaccine. I had the AZ a few weeks ago and had no side...

Hi folks. I'm new to this forum but just wanted to add my two penn'orth to the c...

Selfbuilder

•3 years ago

13 Replies

Covid 19 Vaccination

I had my vaccination (AZ) 9 days ago. Within the last few days I’ve been feeling really achy & fatigued. I reduced to 4mg a few weeks ago so I don’t it can be...

I had my vaccination (AZ) 9 days ago. Within the last few days I’ve been feeling...

AMDRunning

•3 years ago

5 Replies

Headaches and nerve

M having headaches on the left side sore to touch or comb brush and neck shoulder pain nerves pulling Any one with suggestions Called the gp they keeps...

M having headaches on the left side sore to touch or comb brush and neck shoulde...

Mystik

•3 years ago

11 Replies

I'm sort of back...

Jinasc...you didn't think I looked 80? If you could see me now~~! I do! I miss you all, and read your posts but it has been a long road and I'm still not...

Jinasc...you didn't think I looked 80? If you could see me now~~! I do! I mis...

Grammy80

•3 years ago

31 Replies

Tapering prednisone

2 years ago I was diagnosed with PMR. When my doctor gave me prednisone it was like an instant cure. We started with 40mg and have tapered to 8mg. I have felt...

2 years ago I was diagnosed with PMR. When my doctor gave me prednisone it was l...

Boyd0222

•3 years ago

3 Replies

How valuable this forum is...

I mentioned this forum to my physio recently and he made a note of it as he was unaware of its existence. Since then he mentioned it a patient recently...

I mentioned this forum to my physio recently and he made a note of it as he was ...

Mikeysaab

•3 years ago

9 Replies

15 mg

Hi all, I am in a negative cycle and haven't got the physical or emotional energy to make changes. My muscles ache in my arms and legs, I am permanently...

Hi all, I am in a negative cycle and haven't got the physical or emotional ener...

Bibberty

•3 years ago

6 Replies

I am on 7 mg of prednisone now , tapered down from 15, through the course of 8 months . My question is does anyone get bruises . On low dose

Any feed back would be much appreciated.

Athena2020

•3 years ago

37 Replies

Symptoms related to PMR?

I am now down to 6mg of prednisolone having started on 15mg July 2020 when diagnosed with PMR. (1 set back a few months ago and on 10mgs for 3 days) The last...

I am now down to 6mg of prednisolone having started on 15mg July 2020 when diag...

Buzybe

•3 years ago

19 Replies

Brain fog

Does PMA cause brain fog or is it the steroids?

sweathead

•3 years ago

5 Replies

My silly query for the day!

I religiously eat 6/8 prunes daily and my OH has just asked me why and what are they supposed to do for me , was it this site I read it on that they are good...

I religiously eat 6/8 prunes daily and my OH has just asked me why and what are ...

Rosbud

•3 years ago

55 Replies

light at the end of the tunnel

pmr sufferers, just saying i am now pain free. after 7 years on pred. i have been off pred for 14 month , and i can say it did take that amount of...

pmr sufferers, just saying i am now pain free. after 7 years on pred. i have...

pollyg263

•3 years ago

16 Replies

Happy Easter...a year later

Today, our circle of friend/family gathered for the first time since the start of Covid pandemic. All of us are in our 70's, all have had all our immunization...

Today, our circle of friend/family gathered for the first time since the start o...

Purplecrow

•3 years ago

4 Replies

Advice

Hi all happy eater to all that celebrate. On and off for 2 days now I've been getting shooting pains behind ears that goes up my head well I think it starts...

Hi all happy eater to all that celebrate. On and off for 2 days now I've been ge...

Hidden

•3 years ago

2 Replies

GCA patient unsuccessfully tapering down from 7mg of prednisone. Diagnosed February 2018

Here's the situation: I've tapered dsns to 6.5 twice, and each time feel absolutely lousy physically, mentally, and quite emotionally unstable. (Sleep alot,...

Here's the situation: I've tapered dsns to 6.5 twice, and each time feel absolu...

Blurry62

•3 years ago

50 Replies

Leflunomide side effect?

I've been taking 10 mg of leflunomide daily for two months. The bottoms of my feet feel swollen and sore. Is this the beginning of peripheral neuropathy? My...

I've been taking 10 mg of leflunomide daily for two months. The bottoms of my f...

AdoptMeow

•3 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

FATIGUE NUMBER 1 OFFENDER

Rheumatology appt

What is the value of PET-CT scan?

Multivitamin to alleviate prednisone side effects

Another chance to add to Covid vaccine and rheumatic disease knowledge: Take the Global Rheumatology Alliance COVID-19 Vax Survey

Vit.D absorption.

PMR - COVID Vaccine

Leflunomide and plan for reducing prednisolone

Prednisone

Just checking in again ...

Could this be GCA?

Trying to get out of a flare

Have had PMR since August 2011. Had many flares. I have taken 20 mgs for last 4 days. Minimal relief of Frankenstein legs and shoulder pain.

Fatigue

No problems with covid jab.... And Hello!

Covid 19 Vaccination

Headaches and nerve

I'm sort of back...

Tapering prednisone

How valuable this forum is...

15 mg

I am on 7 mg of prednisone now , tapered down from 15, through the course of 8 months . My question is does anyone get bruises . On low dose

Symptoms related to PMR?

Brain fog

My silly query for the day!

light at the end of the tunnel

Happy Easter...a year later

Advice

GCA patient unsuccessfully tapering down from 7mg of prednisone. Diagnosed February 2018

Leflunomide side effect?

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