You all armed me with so much information in the form of facts and shared experiences. Yesterday I went to the rheumatologist armed with all of that and was able to have a focused discussion that I'll bring to the internist tomorrow. My rheumy agreed with all of you!! How about that? Today I started on 12 mg per day, which he wants me to do for two weeks and then drop to 11 for two weeks and then go to 10 mg. He wanted to schedule me two months out, and I wanted to see him sooner if I had any issues.
I want to lower the prednisone, too but not jump off a cliff at the GCA's expense and having it affect my right eye. For the last month or so, I've been experiencing nystagmus...with my eyeball moving from side to side at times. Now isn't that a pretty scary picture? #1 is breathing properly with a healthy heart and good oxygen level. Then I'll tackle the small stuff.
The gift I get from all of you is knowing I will feel better than I do. You are the best.
Of course, my son getting across the Canadian border to visit me in Indiana for 4 days sure hasn't hurt my frame of mind!! 💖💖
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Grammy80
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I am glad that you are reunited with your son, I long for the day I will see my girls again...........My telephone consultation with a Rheumatology Physiotherapist went well. Amongst other things she is recommending some breathing exercises. Coincidentally my son recommended a book called Breath by an author named Nester. He puts forward the proposition that we humans have forgotten how to breathe properly and it is adversely effecting our health in many ways. We should always breathe in through the nose and out through the mouth and much more deeply than we do - right down into the diaphragm , it should be conscious, mindful breathing and has masses of health benefits. So when the universe pokes you twice, I think I need to listen. Breathlessness is my most distressing symptom now. It is in the side effects of 3 of my drugs.
Yes, there certainly are some really lovely people that are posting here, and they definitely give a huge boost to ones morale.
It must have been so energising for you , to have your son pop over the border to see you. Now that should fill your batteries up for quite a while.
It’s strange that just a little visit from our children or grandchildren, can give us the push to find that hidden energy and forget about our aches and pains of PMR.
I’m really happy for you. As the lady said, it’s the best medicine.
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