You all armed me with so much information in the form of facts and shared experiences. Yesterday I went to the rheumatologist armed with all of that and was able to have a focused discussion that I'll bring to the internist tomorrow. My rheumy agreed with all of you!! How about that? Today I started on 12 mg per day, which he wants me to do for two weeks and then drop to 11 for two weeks and then go to 10 mg. He wanted to schedule me two months out, and I wanted to see him sooner if I had any issues.
I want to lower the prednisone, too but not jump off a cliff at the GCA's expense and having it affect my right eye. For the last month or so, I've been experiencing nystagmus...with my eyeball moving from side to side at times. Now isn't that a pretty scary picture? #1 is breathing properly with a healthy heart and good oxygen level. Then I'll tackle the small stuff.
The gift I get from all of you is knowing I will feel better than I do. You are the best.
Of course, my son getting across the Canadian border to visit me in Indiana for 4 days sure hasn't hurt my frame of mind!! 💖💖