Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for April 2021

Irresistible...forgive me if I'm breaking a rule, please.🥺🥺

This was so fitting.....at least for me!

Grammy80

•3 years ago

28 Replies

Could GCA be the cause? shortness of breath/fatigue~

I'm developing a real aversion to the medical profession; pardon me, Dr. Dasgupta, not you. When these breathing and fatigue issues started, I asked the...

I'm developing a real aversion to the medical profession; pardon me, Dr. Dasgupt...

Grammy80

•3 years ago

22 Replies

Atrial fibrillation and PMR

Had a pretty scary evening yesterday when I had 2 hours of intermittent rapid heartbeat top rate was 151. In between my rate never went below 80 at rest and...

Had a pretty scary evening yesterday when I had 2 hours of intermittent rapid he...

Mary63

•3 years ago

18 Replies

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Latest update?

Have been feeling too low to post but determined to update tonight. Unable to sleep for a few weeks and had to stop zopiclone because I developed angioedema,...

Have been feeling too low to post but determined to update tonight. Unable to s...

merril

•3 years ago

12 Replies

Elaine's GCA Journey - all the way to Club Zero! And some advice on working with GCA...

The story below is in Elaine's own words. She wrote it response to my request several years ago and, when she sent it to me her final words were: Also please...

The story below is in Elaine's own words. She wrote it response to my request se...

PMRpro

Ambassador•3 years ago

16 Replies

What is it like to live with PMR?

On one of the forums someone begged for a "paper" they could show their family to explain that, no, actually I'm not 100% better after taking my pred, whatever...

On one of the forums someone begged for a "paper" they could show their family t...

PMRpro

Ambassador•3 years ago

46 Replies

AN EXPLANATION OF PMR AND GCA - A why and how of steroids

A question was asked about whether steroids were just hiding the disease and this is the reply I wrote to try to explain the background in easy to understand...

A question was asked about whether steroids were just hiding the disease and thi...

PMRpro

Ambassador•3 years ago

35 Replies

PMR and the various stages of recovery

This post was written in response to a post from someone who was struggling with working (self-employed) after her diagnosis of PMR and being faced with both...

This post was written in response to a post from someone who was struggling with...

PMRpro

Ambassador•3 years ago

4 Replies

Have I told you lately...I hate PMR!

So hears the deal...I 'm 8+ years on this journey...and thought I was nearing the end! Then bam!! A giant dragon jumped on my back, and once again, I am in the...

So hears the deal...I 'm 8+ years on this journey...and thought I was nearing th...

Purplecrow

•3 years ago

10 Replies

tapering and vulnerability GCA

Hi again I have now reduced after 2 weeks on 60 to 40 for the next 4 weeks. My question is we booked a holiday with my partners family and their children in...

Hi again I have now reduced after 2 weeks on 60 to 40 for the next 4 weeks. My q...

carmadillo

•3 years ago

24 Replies

Grieving my old life and learning to dance: Adjusting to the bereavement associated with PMR/GCA

This is a post from this forum, posted by Zacsmimi. It expresses wonderfully the struggle we are faced with after diagnosis and as we work through the first...

This is a post from this forum, posted by Zacsmimi. It expresses wonderfully the...

PMRpro

Ambassador•3 years ago

31 Replies

I can't remember a thing! Memory and cognitive function when on pred.

This question was posted some years ago together with the responses which I thought were well worth passing on. Again, part is from a clinical healthcare...

This question was posted some years ago together with the responses which I thou...

PMRpro

Ambassador•3 years ago

21 Replies

What pred and the HPA axis do - have I changed as a person?

The original post these responses were written for some years ago was complaining about lack of enthusiasm and the posts then went on to bring to light...

The original post these responses were written for some years ago was complainin...

PMRpro

Ambassador•3 years ago

16 Replies

Feel worse after taking pred

Take 4mg each morning (down from 15mgs 4 years ago) and notice it makes me feel worse! Wake up with very little stiffness, take pred and about 4 hours later...

Take 4mg each morning (down from 15mgs 4 years ago) and notice it makes me feel ...

Poshdog

•3 years ago

11 Replies

Dont feel guilty

Whilst some of us are lucky enough to have a GP who is clued up on our condition and gives us some leeway in managing things ourself there are others who...

Whilst some of us are lucky enough to have a GP who is clued up on our condition...

jaycee444

•3 years ago

5 Replies

Problems associated with the diagnosis of GCA

In response to a mini-rant I had one day on a forum, I went off for a surfing session and found an article on the Johns Hopkins site with case studies on GCA....

In response to a mini-rant I had one day on a forum, I went off for a surfing se...

PMRpro

Ambassador•3 years ago

14 Replies

Covid vaccine side effects on people with Polymyalgia

Since having my second Astra Zeneca Covid vaccine two weeks ago. I keep getting an ache in both arms it starts off slowly builds up then eventually fades away,...

Since having my second Astra Zeneca Covid vaccine two weeks ago. I keep getting ...

bru12

•3 years ago

7 Replies

What are PMR and GCA? Simple explanations of the basics for family and friends

I am a member of another forum where we had an easy to find section with this sort of information. Some one asked for a non-academic explanation of PMR the...

I am a member of another forum where we had an easy to find section with this so...

PMRpro

Ambassador•3 years ago

47 Replies

Milk

Hi advice would be welcomed please. I dont want to go down the medication route, so am trying to work out how much skimmed milk to take which will top up the...

Hi advice would be welcomed please. I dont want to go down the medication route...

Hidden

•3 years ago

3 Replies

Upped pred

I upped prednisone to 20mg this morning, omg what a tough night! Iv only been diagnosed 6 weeks and was on 15mg. I also wonder does anyone wake with a mild...

I upped prednisone to 20mg this morning, omg what a tough night! Iv only been di...

Uglow

•3 years ago

7 Replies

Temporal Biopsy Update

Just to give an update on the progress made since initial diagnosis of Temporal Arteritis by GP three weeks ago. I had the biopsy yesterday and will have to...

Just to give an update on the progress made since initial diagnosis of Temporal ...

anniekins1

•3 years ago

4 Replies

PMRGCA idiots guide (by which I mean simple to read and understand !)

I am looking for a short/succinct ( non academic information leaflet / source that I can signpost friends and relatives to that summarises GCA and PMR, rather...

I am looking for a short/succinct ( non academic information leaflet / source t...

Phoenix51

•3 years ago

23 Replies

Inflammatory markers

What numbers are considered high with inflammatory markers please

Uglow

•3 years ago

8 Replies

Antihistamine

Can I take antihistamine whilst on pred pkease anyone.

Uglow

•3 years ago

12 Replies

IBS

Has anyone else got IBS and polymyalgia as iv noticed it playing up significantly more. Is pred is it stress! Thank you all

Has anyone else got IBS and polymyalgia as iv noticed it playing up significantl...

Uglow

•3 years ago

11 Replies

Diet and a question.😉

Does any other PMRer have a diet like mine? I don't like salads or fruit (except bananas and pears), I love vegetables, fish, home made soups and 'cornedbeef...

Does any other PMRer have a diet like mine? I don't like salads or fruit (except...

Constance13

•3 years ago

10 Replies

Hello, glad to have found you

Eager to know how to manage GCA. Diagnosed 3 months ago, then broke ankle. Surgery to ankle triggered a flare up - which I didn’t at first recognise. Much...

Eager to know how to manage GCA. Diagnosed 3 months ago, then broke ankle. Surge...

Japsquar

•3 years ago

13 Replies

Low histamine fir GCA

Does anyone know if Low Histamine diet help GCA if so should we get tested for it Anything to get off these steroids thanks

Does anyone know if Low Histamine diet help GCA if so should we get tested for i...

GoldieGarnet

•3 years ago

4 Replies

At 3.5 mg pred for GCA , what is THE best time to take that dose ?

I had asked a multilevel query in the previous post . And Thankyou fir the kind replies to that . I am still confused about the best time to take the 3.5 mg...

I had asked a multilevel query in the previous post . And Thankyou fir the kind ...

Iwillwin123

•3 years ago

17 Replies

Battle with GP

Hi all!!As I mentioned before , My second visit to the private specialist was rushed and felt Dr Ashok due to running late, was hurrying me along , so asked...

Hi all!!As I mentioned before , My second visit to the private specialist was r...

Toobusyforthis

•3 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

Irresistible...forgive me if I'm breaking a rule, please.🥺🥺

Could GCA be the cause? shortness of breath/fatigue~

Atrial fibrillation and PMR

Latest update?

Elaine's GCA Journey - all the way to Club Zero! And some advice on working with GCA...

What is it like to live with PMR?

AN EXPLANATION OF PMR AND GCA - A why and how of steroids

PMR and the various stages of recovery

Have I told you lately...I hate PMR!

tapering and vulnerability GCA

Grieving my old life and learning to dance: Adjusting to the bereavement associated with PMR/GCA

I can't remember a thing! Memory and cognitive function when on pred.

What pred and the HPA axis do - have I changed as a person?

Feel worse after taking pred

Dont feel guilty

Problems associated with the diagnosis of GCA

Covid vaccine side effects on people with Polymyalgia

What are PMR and GCA? Simple explanations of the basics for family and friends

Milk

Upped pred

Temporal Biopsy Update

PMRGCA idiots guide (by which I mean simple to read and understand !)

Inflammatory markers

Antihistamine

IBS

Diet and a question.😉

Hello, glad to have found you

Low histamine fir GCA

At 3.5 mg pred for GCA , what is THE best time to take that dose ?

Battle with GP

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