Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for September 2020

Pmr & flu jab

hi can anyone please give me advice , due to have flu jab tomorrow but scared . if this is safe to have. So glad to have you all to ask for help. Thank...

hi can anyone please give me advice , due to have flu jab tomorrow but scare...

Woodsey1

•4 years ago

53 Replies

Should I increase pred?

I am having a procedure tomorrow, a deep injection into replacement shoulder. I don't have name of procedure as I was notified by telephone so have no...

I am having a procedure tomorrow, a deep injection into replacement shoulder. I ...

Marilyn1959

•4 years ago

5 Replies

Psychological taper!

Am still at high dose 30 mg. Rheumatologist wants me to go to 25 if I taper by 1 mg ever 4-5 days is that easier on the system then five right away ? Same...

Am still at high dose 30 mg. Rheumatologist wants me to go to 25 if I taper by 1...

aladymo

•4 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Day 8 of 50mg PRED, pressure nose, eyes, back of head

GCA 2 weeks at 70, 60 mg each Been getting some strange intermittent pressure symptoms in head over the last couple of days. Much worse this morning, feels...

GCA 2 weeks at 70, 60 mg each Been getting some strange intermittent pressure s...

RoadTrip

•4 years ago

14 Replies

What Question(s) do You Wish You Had Asked Your Rheumatologist at the First Appointment?

I have my first Rheumatologist appointment on Wednesday re my preliminary diagnosis of GCA - (That will be day 15 of starting Pred). An artery biopsy has been...

I have my first Rheumatologist appointment on Wednesday re my preliminary diagno...

SomersetWife

•4 years ago

55 Replies

Prednisone initial dosage and tapering off

So happy to have found this PMR community and support group! I’ve been reading about PMR quite a bit the past few weeks and most articles say you should stay...

So happy to have found this PMR community and support group! I’ve been reading ...

Cpires2323

•4 years ago

29 Replies

Possible PMR, but without shoulder?

Hi. Stumbled onto both PMR and this forum when researching autoimmune issues. Note: not diagnosed (yet) with PMR, but do have OA to the point of needing hip...

Hi. Stumbled onto both PMR and this forum when researching autoimmune issues. No...

Boo0102

•4 years ago

2 Replies

Hair on arms

Approaching one year anniversary of PMR and have successfully tapered to 4.5 mg from starting dose of 15. In the last 6 months I have noticed increased hair...

Approaching one year anniversary of PMR and have successfully tapered to 4.5 mg ...

IslandRN

•4 years ago

24 Replies

Antibiotics for tooth abscess whilst on Pred update

Thank you so much to everyone who gave me wonderful advice. I don't know what I would do without this forum. So, I had a wisdom tooth out week on Tues and it...

Thank you so much to everyone who gave me wonderful advice. I don't know what I...

Fieldofdreams

•4 years ago

14 Replies

Dexa Scan results interpreted please

Dexa scan results interpreted please

Plonkerme

•4 years ago

3 Replies

Sleeping Position

Hi Does anyone have any hints and tips on sleeping position when both shoulders are agony? (I have a back problem as well so actually sleeping on my back is...

Hi Does anyone have any hints and tips on sleeping position when both shoulders ...

GreyBike

•4 years ago

27 Replies

Swollen Glands?

Hi I've just taken my 4th dose of a 18 day trail of predisolone. Is it normal to have swollen glands in the neck? Thanks

Hi I've just taken my 4th dose of a 18 day trail of predisolone. Is it normal to...

GreyBike

•4 years ago

8 Replies

"You need to get off steroids"

"You need to get off steroids" I am so sick of hearing that statement. Do doctors think we enjoy all the side effects we suffer. Steroids have given me...

"You need to get off steroids" I am so sick of hearing that statement. Do docto...

shazstep

•4 years ago

5 Replies

Just started Prednisolone today!

Following a long consultation with the GP and taken notes in with me do as I didn’t leave anything out (have never done that before!) have been prescribed...

Following a long consultation with the GP and taken notes in with me do as I did...

Hidden

•4 years ago

19 Replies

Reducing prednisone

Thanks everyone for the replies. I'm still learning about this site and if I should just reply to one person or make it general like this.? So I accidentally...

Thanks everyone for the replies. I'm still learning about this site and if I sho...

Renesch

•4 years ago

4 Replies

PMR and Menopause

I’m not sure if previous discussions might already have covered this, but I wanted to share my experiences with PMR over the last 16 months in case it offers a...

I’m not sure if previous discussions might already have covered this, but I want...

PMR_Triathlete

•4 years ago

14 Replies

hi.just want to know about flares.

does a flare cause headaches,acheing too.i a m on 9mg.do you have to ask drs.to go back up to a higher does.i am so worried about this.i get good days and bad...

does a flare cause headaches,acheing too.i a m on 9mg.do you have to ask drs.to ...

Flosy

•4 years ago

9 Replies

Flu vaccine

Hi, I experienced a PMR flare about a month after getting my flu vaccine in 2018. I mentioned it to my Rheumatologist and he did not think it was connected....

Hi, I experienced a PMR flare about a month after getting my flu vaccine in 2018...

Gary1310

•4 years ago

11 Replies

Help please from anyone who’s had or has GCA. Pain in jaw.

I was diagnosed 19 months ago with PMG and it’s been a rocky road with yo-yoing and now back up to 22 and a half mg of pred a day. This morning I woke up with...

I was diagnosed 19 months ago with PMG and it’s been a rocky road with yo-yoing ...

Loyd

•4 years ago

32 Replies

GP 9 Rheumatologist 0

Following my rant ‘So angry’ about my ex-rheumy (sacked him on Friday) I had a good telephone appointment with my GP today. He doesn’t get a ‘10’ because he...

Following my rant ‘So angry’ about my ex-rheumy (sacked him on Friday) I had a g...

ChinaWuntoo

•4 years ago

48 Replies

Is an Omega 3 Supplement a good idea?

I've been reading about the anti-inflammatory properties of Omega fish oils (3-6-9) - I would be interested in any experience with taking this type of...

I've been reading about the anti-inflammatory properties of Omega fish oils (3-6...

SomersetWife

•4 years ago

24 Replies

Tapering advice please!

PMR was diagnosed last Oct and I began on 15 mg pred a day. Began to taper in December and in June began to follow DL 5 week taper from 7 mg to 6 mg, and then...

PMR was diagnosed last Oct and I began on 15 mg pred a day. Began to taper in D...

kalimche

•4 years ago

9 Replies

Could I have developed fibromyalgia as well as PMR?

Greetings, everyone . I have a question for you experienced folk out there- could the new pains I am experiencing be fibromyalgia? I was diagnosed with PMR 2...

Greetings, everyone . I have a question for you experienced folk out there- coul...

katiemills

•4 years ago

19 Replies

Correct Dose for a Prednisolone Trial and How soon See Improvement if it works

I have (eventually!) been started on a 2 week trial of prednisolone by my GP (to try and determine whether I have Polymyalgia or Rhumatoid Arthritis or...

I have (eventually!) been started on a 2 week trial of prednisolone by my GP (t...

GreyBike

•4 years ago

7 Replies

weight loss

ive been on 15mg pred almost 4 weeks and seem to be losing weight is this normal with PMR while taking pred

ive been on 15mg pred almost 4 weeks and seem to be losing weight is this norma...

rustyrussell

•4 years ago

29 Replies

feeling out of my depth

Hi can anyone tell me the symptoms of GCA and how to get tested for it please? I was started on 20mg prednisolone a day in July although my symptoms began end...

Hi can anyone tell me the symptoms of GCA and how to get tested for it please? I...

cisy

•4 years ago

18 Replies

Chronic Kidney Issues and PMR/GCA

Has anyone had issues with kidney problems, my GFR number is down and Creatinine level is up?

Has anyone had issues with kidney problems, my GFR number is down and Creatinine...

tamimcrews

•4 years ago

8 Replies

Everything has changed!

Up to this weekend I felt alone, frightened, depressed and more having not long been told I had P.M.R. Then I found this forum and it changed my world! My G.P....

Up to this weekend I felt alone, frightened, depressed and more having not long ...

Crossstitchfanatic

•4 years ago

22 Replies

Sleepysusie

Hi everybody, thanks for all your lovely replies, I'm glad I found this forum it's great to be able to talk to people in the same position as me. I am only on...

Hi everybody, thanks for all your lovely replies, I'm glad I found this forum it...

Sleepysusie

•4 years ago

2 Replies

Prednisone

Has anyone had bruising while taking prednisone , and urine frequency regardless if blood test shows no elevated blood sugar.

Has anyone had bruising while taking prednisone , and urine frequency regardless...

Athena2020

•4 years ago

42 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Pmr & flu jab

Should I increase pred?

Psychological taper!

Day 8 of 50mg PRED, pressure nose, eyes, back of head

What Question(s) do You Wish You Had Asked Your Rheumatologist at the First Appointment?

Prednisone initial dosage and tapering off

Possible PMR, but without shoulder?

Hair on arms

Antibiotics for tooth abscess whilst on Pred update

Dexa Scan results interpreted please

Sleeping Position

Swollen Glands?

"You need to get off steroids"

Just started Prednisolone today!

Reducing prednisone

PMR and Menopause

hi.just want to know about flares.

Flu vaccine

Help please from anyone who’s had or has GCA. Pain in jaw.

GP 9 Rheumatologist 0

Is an Omega 3 Supplement a good idea?

Tapering advice please!

Could I have developed fibromyalgia as well as PMR?

Correct Dose for a Prednisolone Trial and How soon See Improvement if it works

weight loss

feeling out of my depth

Chronic Kidney Issues and PMR/GCA

Everything has changed!

Sleepysusie

Prednisone

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