Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for September 2020

Family get together

I was shielding till August due to being on a high dose of steroids. I am very anxious about going out and meeting people. still only meet friends and family...

I was shielding till August due to being on a high dose of steroids. I am very a...

Creamtea

•4 years ago

14 Replies

Pre-op Flare?

I'm having a laminectomy tomorrow (spinal surgery.) I've been OK on 12mg Pred, but feel I'm having a flare. (Pain, feeling unwell.) I get little advice from...

I'm having a laminectomy tomorrow (spinal surgery.) I've been OK on 12mg Pred, b...

HelenDaisy

•4 years ago

11 Replies

Antibiotics whilst on Pred????

Hi all, please can I ask for some advice. Been struggling with a large back molar fire 6mths with an abscess. Finally it had to come out 7 days ago. The...

Hi all, please can I ask for some advice. Been struggling with a large back m...

Fieldofdreams

•4 years ago

26 Replies

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Increase in steroids?

I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to...

I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of ...

5lupins

•4 years ago

21 Replies

Tapering again!

I’m currently on 6mg having tapered 1mg per month My query / is the goal to achieve a maintenance dosage of eg 5mg per month to keep symptoms at bay or is the...

I’m currently on 6mg having tapered 1mg per month My query / is the goal to achi...

AnniesRyder5

•4 years ago

2 Replies

Newly diagnosed

Hi everyone, I was diagnosed with polymyalgia rheumatica 3 weeks ago and am still finding my way. I had never heard of this before and it took me a few weeks...

Hi everyone, I was diagnosed with polymyalgia rheumatica 3 weeks ago and am stil...

Sleepysusie

•4 years ago

12 Replies

Just had my latest Rheumatologist appointment: confused and a little scared.

I just got back from my Rheumatologist...I am emotionally drained and have probably grown several grey hairs on the 15 minute drive home. My ESR is back up to...

I just got back from my Rheumatologist...I am emotionally drained and have proba...

AussieMel

•4 years ago

16 Replies

Frustrated

Its me again.Moved in May got a relapse so upped my prednisone from 7 to 10.Stayed on that for 8 weeks.Trying to taper slowly but got to 8 and i ache all over...

Its me again.Moved in May got a relapse so upped my prednisone from 7 to 10.Stay...

Hunter134

•4 years ago

19 Replies

Overdone it ...

So, I have been doing really well. I started sea swimming (well, a little swimming and a lot of nattering) a few weeks ago and it’s been great, made me feel...

So, I have been doing really well. I started sea swimming (well, a little swimmi...

Enfin

•4 years ago

9 Replies

Posted last week for advice. Rheumy nurse's opinion on GCA symptoms - go on - you know you need a laugh.

I posted last week for some advice as I was worried my GCA was flaring. I went for a blood test to establish what my inflammation markers were, and then...

I posted last week for some advice as I was worried my GCA was flaring. I went f...

Dontwannabesick

•4 years ago

45 Replies

Vertigo is it pmr

Hi all 👋 I have had pmr for three years, I am down to 1 mg prednisone, I still have manageable symptoms,but recently I have vertigo, the doctor believes it’s...

Hi all 👋 I have had pmr for three years, I am down to 1 mg prednisone, I still ...

greenvegan

•4 years ago

6 Replies

Another ANGRY Person

I have just had a landline call from a Rhuemie. I am hard of hearing and lip read. First mistake on their part . I asked him to relay the conversation to...

I have just had a landline call from a Rhuemie. I am hard of hearing and lip re...

Suffererc

•4 years ago

17 Replies

To holiday, or not to holiday ?

Hi everyone, hope we are all doing ok. I am now down to 5mg pred. 🥳 We were due to go to Rhodes in May and obviously couldn't go. My Husband is keen to go in...

Hi everyone, hope we are all doing ok. I am now down to 5mg pred. 🥳 We were du...

jules1955

•4 years ago

67 Replies

What resources do GPs have for PMR?

Issues with my ex-rheumy just keep on growing as I look back. I am waiting for a call from my GP, hoping he will accept me back for care, that he will not need...

Issues with my ex-rheumy just keep on growing as I look back. I am waiting for a...

ChinaWuntoo

•4 years ago

36 Replies

At 3.5 mg Pred, tapering from 60 mg for GCA - I now have iritis in right eye.Please narrate how you went up on pred - dosage and tapers.

I am shocked that I have iritis. I have only a mild blurring in right eye . But the doctor now says -go back up to 40 and drop 10 mg every week . Any...

I am shocked that I have iritis. I have only a mild blurring in right eye . But ...

Iwillwin123

•4 years ago

6 Replies

OMEPRAZOLE 20mg

Hi there... I was diagnosed with IBS and a Hiatus Hernia (apologies about the spelling! ) at 18 years old after collapsing at work on a regular basis in...

Hi there... I was diagnosed with IBS and a Hiatus Hernia (apologies about the sp...

Susiewoosie33

•4 years ago

5 Replies

GCA & Shingrix vaccine

Does anyone have experience having Shingrix vaccine (shingles vaccine)? I am on 10 mg prednisone, boniva for osteoporosis, Actemra & Dexilant. Rheumatologist...

Does anyone have experience having Shingrix vaccine (shingles vaccine)? I am on ...

Spanky2019

•4 years ago

21 Replies

Amount of own body's normal production of cortisone

I have been on steroids for two and a half years. initially for PMR now for GCA. How much cortisol does the adrenal glands normally produce. At what dose of...

I have been on steroids for two and a half years. initially for PMR now for GCA...

Creamtea

•4 years ago

2 Replies

My experience of PMR . As a retired nurse, I knew what was happening to me.

I also checked out NHS website My GP started me on 10mgms of prednisolone plus the calcium&vit d. 1-2hrs after taking the first dose it was as though I had...

I also checked out NHS website My GP started me on 10mgms of prednisolone plus...

greekdog

•4 years ago

16 Replies

New Member

I started having knee, hip, buttock and shoulder pain about 8 weeks ago. The pain was making me vomit on occasion. I also had no appetite, lost 4 kilos and was...

I started having knee, hip, buttock and shoulder pain about 8 weeks ago. The pai...

Ainenicaodha

•4 years ago

19 Replies

Newbie

Hello, I am waiting for a diagnosis possible PMR. In a nutshell, I was diagnosed bursitis, OA in L shoulder, L wrist and hand around 12 months ago, and had...

Hello, I am waiting for a diagnosis possible PMR. In a nutshell, I was diagnose...

Hidden

•4 years ago

41 Replies

WHAT IS YOUR PMR PAIN LIKE?

Hi all. Please can you describe your PMR pain/aching? Is it different to other pain you've experienced? I've never experienced anything like this - it feels as...

Hi all. Please can you describe your PMR pain/aching? Is it different to other p...

FerrySlipper

•4 years ago

15 Replies

Trying to reduce Medrol

Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild...

Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently a...

kimsaunsc

•4 years ago

2 Replies

Every Cloud and all that

Suffering with the diseases we have can be quite challenging as I am learning, with much of my previous life having had to be placed on temporary hold. As I...

Suffering with the diseases we have can be quite challenging as I am learning, w...

Hidden

•4 years ago

3 Replies

Great PMR/GCA members day yesterday

I really enjoyed the AGM yesterday. As a GCA patient I found Vanessa Quick’s presentation particularly helpful. Well done everyone who put this event...

I really enjoyed the AGM yesterday. As a GCA patient I found Vanessa Quick’s pr...

Agavegirl

•4 years ago

3 Replies

Can Prednisolone Cause Extreme Fatigue?

I am awaiting a biopsy for confirmation of a diagnosis of GCA and started 60mg Prednisolone daily 5 days ago. I take them straight after breakfast but am...

I am awaiting a biopsy for confirmation of a diagnosis of GCA and started 60mg P...

SomersetWife

•4 years ago

24 Replies

Great AGM

Zoom made it possible for me to attend my first AGM and the speakers were reassuring and inspirational. Dr Vanessa Quick gave a clear informative presentation...

Zoom made it possible for me to attend my first AGM and the speakers were reassu...

Thelmarina

•4 years ago

9 Replies

Atemra injections

Hi, is anyone on the Actemra injection for PMR? I went from prednisone, to Embrel and now Atemra . I now can walk 2 to 3 miles with some pain and stiffness...

Hi, is anyone on the Actemra injection for PMR? I went from prednisone, to Em...

mpl615

•4 years ago

2 Replies

One side hip pain , urinary issues, problems in right eye - One side symptoms - may be rare - but GCA flare at 3.5 mg ???

I have GCA and tapering from 60 mg now down to 3.5 through 1.5 years . At 3.5 mg I had Right hip pain Frequent urination, foul smelling urine Sudden pain...

I have GCA and tapering from 60 mg now down to 3.5 through 1.5 years . At 3.5 ...

Iwillwin123

•4 years ago

7 Replies

Prednisone reduction and blurred vision

I have PMR started on 20mg of pred and am now on 2nd reduction so down to 15mg 4 days ago. Within 36 hours of reducing I get terrible fatigue not much pain...

I have PMR started on 20mg of pred and am now on 2nd reduction so down to 15mg ...

Renesch

•4 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Family get together

Pre-op Flare?

Antibiotics whilst on Pred????

Increase in steroids?

Tapering again!

Newly diagnosed

Just had my latest Rheumatologist appointment: confused and a little scared.

Frustrated

Overdone it ...

Posted last week for advice. Rheumy nurse's opinion on GCA symptoms - go on - you know you need a laugh.

Vertigo is it pmr

Another ANGRY Person

To holiday, or not to holiday ?

What resources do GPs have for PMR?

At 3.5 mg Pred, tapering from 60 mg for GCA - I now have iritis in right eye.Please narrate how you went up on pred - dosage and tapers.

OMEPRAZOLE 20mg

GCA & Shingrix vaccine

Amount of own body's normal production of cortisone

My experience of PMR . As a retired nurse, I knew what was happening to me.

New Member

Newbie

WHAT IS YOUR PMR PAIN LIKE?

Trying to reduce Medrol

Every Cloud and all that

Great PMR/GCA members day yesterday

Can Prednisolone Cause Extreme Fatigue?

Great AGM

Atemra injections

One side hip pain , urinary issues, problems in right eye - One side symptoms - may be rare - but GCA flare at 3.5 mg ???

Prednisone reduction and blurred vision

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