Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for September 2020

Osteo in my lower back

Hi, went for a DEXA on Thursday alst and I have Osteoporosis in my lower back. I had a Dexa when I was first diagnosed Feb 2017. They only did my left hip...

Hi, went for a DEXA on Thursday alst and I have Osteoporosis in my lower back. ...

Slosh

•4 years ago

12 Replies

Finally a visit to a Rheumy

So Friday I had my first appt. with my new Rheumatologist. As suggested, I pretty much listened or answered questions. He seems to know his stuff. Was upset...

So Friday I had my first appt. with my new Rheumatologist. As suggested, I prett...

Dydee

•4 years ago

4 Replies

Actemra inj 200 mg instead of 162 mg - Is it OK for GCA ?

I have GCA since end 2018 . Am on prednisone and Actemra since 2019. We now have Actemra 200 mg inj alone available where I live . So then is it ok to take...

I have GCA since end 2018 . Am on prednisone and Actemra since 2019. We now hav...

Iwillwin123

•4 years ago

5 Replies

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Numb toes

Sorry if I have asked this previously . 2 years is a long time! My toes are constantly numb . Only started with the PMR . Is this a common condition ? Not...

Sorry if I have asked this previously . 2 years is a long time! My toes are cons...

Stifffingers

•4 years ago

11 Replies

Advice needed re timing of split doses please

I’ve been reading various posts over the last weeks and have found excellent advice on how to manage the tapering process and split doses which has transformed...

I’ve been reading various posts over the last weeks and have found excellent adv...

Jackie_boy

•4 years ago

6 Replies

Undiagnosed: Would dexamethasone shots help if it were PMR?

Y’all already helped with one question, so I’ll try another. Due to at first misdiagnosed hip bursitis, I received steroid shot in hip bursa last year. Got...

Y’all already helped with one question, so I’ll try another. Due to at first mis...

Boo0102

•4 years ago

12 Replies

Reoccurrence of symptoms

Does anyone know how long after a reduction in Pred dose you may experience a return of GCA symptoms ? I reduced from 15mg to 12.5mg and 10 days after doing so...

Does anyone know how long after a reduction in Pred dose you may experience a re...

Phoenix51

•4 years ago

5 Replies

Newly diagnosed with GCA

Hi - I was diagnosed by an out of hours doctor at my local hospital 2 weeks ago. This was followed up by a telephone consultation with my GP a couple of days...

Hi - I was diagnosed by an out of hours doctor at my local hospital 2 weeks ago....

Hidden

•4 years ago

20 Replies

Tapering

I was down to 3mg which l had been for a month, tried to come down to 2 mg and had a flare, was not sure if this was pmr fibro or arthritis. I have bad...

I was down to 3mg which l had been for a month, tried to come down to 2 mg and h...

Fifelassieo

•4 years ago

9 Replies

Pharmacist Review

I was diagnosed with PMR 4 1/2 years ago and had reduced pred to 3.5mg earlier this year. I was receiving monthly blood tests for ESR levels. These were 32...

I was diagnosed with PMR 4 1/2 years ago and had reduced pred to 3.5mg earlier t...

dolphin39

•4 years ago

9 Replies

Pneumonia and pleurisy. Backpain

Just a heads up. I have had an excruciating pain under my ribs on one side, on my back. After a week GP prescribed Codeine Phosphate A week later I went back...

Just a heads up. I have had an excruciating pain under my ribs on one side, on m...

Wraysbury

•4 years ago

7 Replies

PET CT Scans and what feels like 'interminable' GCA

Hi All I have had GCA for about three and a half years now and it is getting incredibly 'boring' in terms of even wanting to write about it. But for those who...

Hi All I have had GCA for about three and a half years now and it is getting inc...

Rimmy

•4 years ago

26 Replies

Polymyalgia - diagnosed about 18 months ago, taking pednisone for one year.

After being off the pednisone for a month the pain and stiffness has returned. I wondering if this is polymyalgia or something else since I don't have all of...

After being off the pednisone for a month the pain and stiffness has returned. I...

kevinmcpuck

•4 years ago

10 Replies

Timing my pred at 2 am

It has been a week taking my 6/7 mg of predisone at 2am...SO FAR, I have been pleased with the results. I am less stiff in am and lots more energy....only...

It has been a week taking my 6/7 mg of predisone at 2am...SO FAR, I have been pl...

georgedog

•4 years ago

9 Replies

First GP Call 7 Days into Trial

I'm on day 7 of an 18 day trial of prednisolone. I have a call with my GP in the morning. Am wondering what I should try to push for in my allocated 10...

I'm on day 7 of an 18 day trial of prednisolone. I have a call with my GP in the...

GreyBike

•4 years ago

3 Replies

Feeling of tightness / banding across stomach

Has anyone who has GCA and are in prednisolone experienced this? It’s uncomfortable rather than painful. Feels like deep abdominal muscles are...

Has anyone who has GCA and are in prednisolone experienced this? It’s uncomfort...

Pritch60

•4 years ago

7 Replies

Last day of 5 day Pred trial.

I have just taken my last dose of the 5 day trial with 15mg Pred and would like to share my observations and hopefully obtain advice moving forwards; Benefits;...

I have just taken my last dose of the 5 day trial with 15mg Pred and would like ...

Hidden

•4 years ago

9 Replies

At risk covid

If we are told to stay at home again because of at risk .does PMR count as at risk? I ask because i work with the public and need to tell work and as we all...

If we are told to stay at home again because of at risk .does PMR count as at ri...

rustyrussell

•4 years ago

9 Replies

Diet for GCA and PMR

Please could you point me in the right direction of helpful information or books to buy that will provide dietary advice? I understand that dietary changes are...

Please could you point me in the right direction of helpful information or books...

SomersetWife

•4 years ago

25 Replies

Confused and exhausted.

I was 'diagnosed' after symptoms and blood test results with GCA/PMR and 40 mg steroids, reduced by 5mg over a few weeks. Got to 25 and symptoms recurred. Last...

I was 'diagnosed' after symptoms and blood test results with GCA/PMR and 40 mg s...

Bibberty

•4 years ago

40 Replies

Do I take 5 extra for 5 days as advised?

I am down to 6mg per day from 25mg in March. My GP advised me to take 5mg extra per day for 5 days if I get a flare up. Im currently mulling over whether I...

I am down to 6mg per day from 25mg in March. My GP advised me to take 5mg extr...

AnniesRyder5

•4 years ago

37 Replies

Mixing Prednisolone Tablets

I was diagnosed with GCA in May this year and started on 60mg (12 x 5mg) pink dispersable tablets that I call my 'pink gin'. I have been reducing as advised...

I was diagnosed with GCA in May this year and started on 60mg (12 x 5mg) pink di...

HappyDiamonds

•4 years ago

8 Replies

Tapering

Hi,now 66 been diagnosed pmr 2 1/2 years now,started on 30 mg,felt better after 36 hours,slowly got down to 5mg with no real problems,now on 3.75 and 2.5...

Hi,now 66 been diagnosed pmr 2 1/2 years now,started on 30 mg,felt better after...

reds15

•4 years ago

1 Reply

Weaning from pred after 5 years from first GCA diagnosis and then PMR

I was put on 80mg of pred on diagnosis with biopsy of GCA. After 2 weeks started weaning 5mg a week, then 5mg a month to 20mg. Then weaning 1mg a month to...

I was put on 80mg of pred on diagnosis with biopsy of GCA. After 2 weeks starte...

Ssratha

•4 years ago

12 Replies

Heart pounding during the night

I am 70 years old and have sleep apnea and PMR. I started on 15 mg of prednisone on Nov 22,2019 and am now on 6mg per day. Most nights I wake up between 3 and...

I am 70 years old and have sleep apnea and PMR. I started on 15 mg of prednisone...

TINYdes

•4 years ago

21 Replies

gabapentin for nerve pain

Hello everyone, hope you are all keeping reasonably well. Sorry don't get on here much at moment. Has anyone had any experiences with Gabapentin for nerve...

Hello everyone, hope you are all keeping reasonably well. Sorry don't get on her...

dillydally1

•4 years ago

20 Replies

Which GCA meds if any could increase urination?

I'm sure I don't have an infection, I am drinking more water than before I started the GCA meds but I have to pee often (and sometimes urgently). I had same...

I'm sure I don't have an infection, I am drinking more water than before I start...

SomersetWife

•4 years ago

16 Replies

''Excipients'' - the non-therapeutic ingredients in our medicines

We've had discussion on here before about how the various brands of pred differ in their conposition and how some are too crumbly or can upset digestion etc....

We've had discussion on here before about how the various brands of pred differ ...

Marijo1951

•4 years ago

3 Replies

Advice Please

Diagnosed in June 2020, started on 20mg Prednisolone, I have been coming down every 4 weeks by 2.5mg. I started having a few odd twinges of aches and pains on...

Diagnosed in June 2020, started on 20mg Prednisolone, I have been coming down ev...

jaybee58

•4 years ago

5 Replies

Another update to “Dental Question “

Well, today was the appointment for me to have the two teeth out. I decided to ask the dentist again about his instruction to stop Pred for two days - which I...

Well, today was the appointment for me to have the two teeth out. I decided to a...

Janann25

•4 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2020

Osteo in my lower back

Finally a visit to a Rheumy

Actemra inj 200 mg instead of 162 mg - Is it OK for GCA ?

Numb toes

Advice needed re timing of split doses please

Undiagnosed: Would dexamethasone shots help if it were PMR?

Reoccurrence of symptoms

Newly diagnosed with GCA

Tapering

Pharmacist Review

Pneumonia and pleurisy. Backpain

PET CT Scans and what feels like 'interminable' GCA

Polymyalgia - diagnosed about 18 months ago, taking pednisone for one year.

Timing my pred at 2 am

First GP Call 7 Days into Trial

Feeling of tightness / banding across stomach

Last day of 5 day Pred trial.

At risk covid

Diet for GCA and PMR

Confused and exhausted.

Do I take 5 extra for 5 days as advised?

Mixing Prednisolone Tablets

Tapering

Weaning from pred after 5 years from first GCA diagnosis and then PMR

Heart pounding during the night

gabapentin for nerve pain

Which GCA meds if any could increase urination?

''Excipients'' - the non-therapeutic ingredients in our medicines

Advice Please

Another update to “Dental Question “

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