So happy to have found this PMR community and support group!
I’ve been reading about PMR quite a bit the past few weeks and most articles say you should stay on it for at least a couple of years, so I am now familiarizing myself with my own situation....
After feeling miserable for about 2+ years with extreme fatigue/lethargy and only getting worse (and unfortunately no real diagnosis from my primary care physician)... in the last couple of months the pain in my shoulders, hips, thighs, and neck have gotten so bad that I could barely move. Only then I came across what are the PMR symptoms through my own online research and realized it was very close to how I felt.
Scheduled an appointment with a Rheumatologist and bingo! It may very well be it! I understand there will be a long recovery road but just knowing I’m not crazy and I’m not making this feeling of malaise up in my head (and that I am not just being lazy), makes me feel more optimistic about the future.
He requested an extensive list of tests/blood work to confirm. But decided to get me started with 15mg of prednisone right away for 1 week, 10mg the following week and 1 more week at 5mg.
QUESTION: Is this the norm for some people?
He scheduled a follow up appointment in two weeks to review the blood results. So hopefully, by then the prednisone will have kicked in already (started yesterday) and together we’ll be able to figure out the long term course of treatment.
Can’t wait to start working out again and not feel miserable (so exhausted and in constant pain) anymore! By the way I’m only 50 and used to be very athletic until 2 to 3 years ago when the fatigue and lethargy (which My primary care physician assumed -and so did I- was related to stress and overwork) slowly creeped in...
QUESTION: anyone in similar situation?
So grateful to be able to talk to people that can understand me. 😅
Hope to continue exchanging our journeys through this channel. 💕🙏🏻
Thank you! Namaste.