Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2020

Can PMR cause B12 deficiency?

Evening all. My latest bloodtest showed that I have raised Mcv (whatever that is). I've just had further tests for B12 deficiency. Is this something that's...

Evening all. My latest bloodtest showed that I have raised Mcv (whatever that i...

•4 years ago

Anniversary

We are celebrating in Norfolk where we were married years ago in tiny church with Norman Tower, which only holds 50! Beautiful weather and no wind. 🎉🍾

We are celebrating in Norfolk where we were married years ago in tiny church wit...

•4 years ago

Fatigue

Dear Everyone, I have not posted on the forum for some time. Diagnosed April 2017 with PMR/suspected GCA and started on 40mg Prednisolone. I have been...

Dear Everyone, I have not posted on the forum for some time. Diagnosed April 20...

•4 years ago

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Pain on one side

Hi. I was tapering and down to 5 mg of prednisone. After a busy and stressful weekend, where I didn’t take my Pred until 10am, instead of my usual 7am, I have...

Hi. I was tapering and down to 5 mg of prednisone. After a busy and stressful we...

•4 years ago

Neck pain?

I am a PMR sufferer who weaned off Prednisone 3 weeks ago, after a slow march down from 40 mg. Two weeks ago I awoke with left-sided facial paralysis,...

I am a PMR sufferer who weaned off Prednisone 3 weeks ago, after a slow march do...

•4 years ago

Interesting piece in The Independent regarding Covid and steroids

“WHO recommends use of corticosteroids as standard treatment for patients with ‘severe and critical’ Covid-19” Just read an online piece by The Independent...

“WHO recommends use of corticosteroids as standard treatment for patients with ‘...

•4 years ago

Update to “Dental Question”

I haven’t been able to speak to the dentist - apparently he’s away - so decided to call the Rheumatology Department at our hospital and ask their advice. I had...

I haven’t been able to speak to the dentist - apparently he’s away - so decided ...

•4 years ago

Taking meds at 4 am

I am somewhat reluctant but hope it is helpful to someone...I have recently (one week) started to set me alarm and take my 7 mg of predisone at 3 or 4 am each...

I am somewhat reluctant but hope it is helpful to someone...I have recently (one...

•4 years ago

Just saying hello

Hi. I’ve just joined, hoping for a bit of support whilst I struggle to come off the steroids and methotrexate. I’ve been diagnosed 16 months and down to 6mg...

Hi. I’ve just joined, hoping for a bit of support whilst I struggle to come off ...

•4 years ago

Vitamin

hi can any one advice is it OK too take multivitamins and vit c. On 4mg of pred at moment used too take them all the time before P.M.R. grateful for any info

hi can any one advice is it OK too take multivitamins and vit c. On 4mg of pred ...

•4 years ago

Possibility of coming off sulfasalazine?

I have had PMR for just over 2 years, and yesterday was my first pred free day as I have reduced slowly down to zero. In December last year I was down to about...

I have had PMR for just over 2 years, and yesterday was my first pred free day a...

•4 years ago

Legs hurt

Hi all bit of a long one sorry Can anyone tell where to find the side effects from reducing steroids under 5mg please. I am down to 5mg again and now my...

Hi all bit of a long one sorry Can anyone tell where to find the side effects f...

•4 years ago

How to fix our prednisone infected hair.

This is how my hair used to look. Check the link below for my tip to healthier looking hair....

This is how my hair used to look. Check the link below for my tip to healthier...

•4 years ago

Actemera may not be for me

I told my Dr. yesterday that every bone in my body hurts, including my feet and my hands plus I have an ongoing headache that I am getting weary of. I was told...

I told my Dr. yesterday that every bone in my body hurts, including my feet and ...

•4 years ago

Hope for all....It lasted 14 months

I have read much here from afar. I am male, 69 and long walks were a big part of my life. But 14 months ago, literally overnight, I could not turn over in bed,...

I have read much here from afar. I am male, 69 and long walks were a big part of...

•4 years ago

Costochondritis

Anyone know of a connection between PMR and Costochondritis? This is inflammation in the chest wall, where ribs connect, usually in the front center area. This...

Anyone know of a connection between PMR and Costochondritis? This is inflammatio...

Readingaddict48306

•4 years ago

A flare again and how to add the 5 mg extra prednisone ? Split or together ?

I have GCA and tapering the steroid using DSNS method, from 60 mg onwards and now at 3.5 mg. I now have severe right hip pain, excess urination and foul...

I have GCA and tapering the steroid using DSNS method, from 60 mg onwards and no...

•4 years ago

A little help with steel wool hair. It works!

I was warned long time ago about the effects on our hair from prednisone, My hair went from shiny, straight beautiful hair to squirrel hair (at least that's...

I was warned long time ago about the effects on our hair from prednisone, My h...

•4 years ago

Assessing the Impact of COVID-19 on Rheumatology Care - Online Survey

This has just been posted on the LupusUK forum by Paul Howard from the LupusUK charity. I checked and it is a general rheumatology survey although only for the...

This has just been posted on the LupusUK forum by Paul Howard from the LupusUK c...

Ambassador•4 years ago

Problems with prednisone

I was prescribed 60mg/day of prednisone when it was suspected I had GCA, over two months ago. When the biopsy proved negative, I was told to reduce the dosage...

I was prescribed 60mg/day of prednisone when it was suspected I had GCA, over tw...

•4 years ago

Prednisone and spinal surgery

In a week I am having a laminectomy to relieve pressure on my spinal cord and nerves. Diagnosed with PMR in April 2019. Currently on 12.5mg prednisone, and on...

In a week I am having a laminectomy to relieve pressure on my spinal cord and ne...

•4 years ago

Pred for PMR and GCA

I’m responding to the post by Linny3 and have not seen all 11 replies. Since I went onto a much higher dose of Pred 5 weeks ago, having been diagnosed with...

I’m responding to the post by Linny3 and have not seen all 11 replies. Since I w...

•4 years ago

Tocilizimab (TCZ) side effects?

Does it cause swelling in the limbs (ankles/fingers)

Does it cause swelling in the limbs (ankles/fingers)

•4 years ago

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