Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for November 2018

Some small advice on pmg

Hi my name is mo I'm 74 I was first diagnosed with Gca,and put on 60mg pred right away,after a few days it helped the Bad headaches,my gp was great got me to...

Hi my name is mo I'm 74 I was first diagnosed with Gca,and put on 60mg pred rig...

Sailormo

•6 years ago

2 Replies

Weather related flares

Does anyone find that they are more likely to flare during colder weather? For the past 2 years I have experienced flares as soon as the weather changes in...

Does anyone find that they are more likely to flare during colder weather? For ...

podo

•6 years ago

10 Replies

tapering using dead slow method

well,over 2 yrs ago, diagnosed pmr, started at 40 mg, had gotten down to 8 mg, in july, saw rheumy in august, because of all the stress I had been under, son,s...

well,over 2 yrs ago, diagnosed pmr, started at 40 mg, had gotten down to 8 mg, i...

arvine

•6 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Useful book

I'm reading this book 'The Autoimmune wellness handbook' at the moment and finding it really interesting. Tips on diet, sleep, de-stressing, keeping moving...

I'm reading this book 'The Autoimmune wellness handbook' at the moment and findi...

tangocharlie

•6 years ago

3 Replies

Is 2.5 Pred worth taking?

To cut a long story short, I've been off Pred for over a year, but every now and then, like when I need to walk a lot, go on holiday etc, I take a short dose...

To cut a long story short, I've been off Pred for over a year, but every now and...

tangocharlie

•6 years ago

44 Replies

How much calcium?

Evening All. I've been taking pred for 20 months now and I've just found out I should be taking calcium supplements. My consultant just asked if I ate dairy...

Evening All. I've been taking pred for 20 months now and I've just found out I ...

Jontie

•6 years ago

8 Replies

Pacemaker fitted in the middle of PMR ,what is what may I ask?

pacemaker fitted 5th may (82 yr male) Flare I think so increased 12 to 14 mg.weeks now started OK swimming every week ,no longer. early morn all over pain,...

pacemaker fitted 5th may (82 yr male) Flare I think so increased 12 to 14 mg.wee...

Hidden

•6 years ago

10 Replies

Why Can Posts Not Be Saved On This Site!!

Sure we have all had this one! It's gone! No Saver! No connection! Blah Blah! Cummon!

Sure we have all had this one! It's gone! No Saver! No connection! Blah Blah! C...

Hidden

•6 years ago

22 Replies

Muscle pain while at 7

I am having muscle pain in the back of my legs and buttocks. It's not steroid withdrawal which usually I can improve by stretching. I'm thinking it must be...

I am having muscle pain in the back of my legs and buttocks. It's not steroid wi...

bunnymom

•6 years ago

29 Replies

New Rheumatologist

As we moved 8 months ago I decided to get a local rheumatologist. I rang the new one to make an appointment and the rheumy answered himself (his secretary...

As we moved 8 months ago I decided to get a local rheumatologist. I rang the new...

Constance13

•6 years ago

8 Replies

UTIs

I wrote a post a few months on here re Water infections having had them for months and the attendant antibiotics. Eventually I listened the nurse practioner at...

I wrote a post a few months on here re Water infections having had them for mont...

kingharold11

•6 years ago

5 Replies

Shingles and GCA

Nearly 3 weeks on and still have shingles and its now 5 weeks since I had a Tocilizumab injection - I am not allowed them until the shingles clears up. Feeling...

Nearly 3 weeks on and still have shingles and its now 5 weeks since I had a Toci...

christine2715

•6 years ago

6 Replies

Never get too cocky

Just when my PMR problems have abated (fingers & toes remain crossed!), up pops a dose of cellulitis and a reminder that although muscles are returning to...

Just when my PMR problems have abated (fingers & toes remain crossed!), up pops ...

violetsnowdrop

•6 years ago

5 Replies

What should a GCA relapse feel like and can it happen on a high dose of pred?

I was diagnosed about 3 months ago with GCA and am now on 20mg prednisolone, down from 60mg at the beginning. For the past few days I've had a lingering...

I was diagnosed about 3 months ago with GCA and am now on 20mg prednisolone, dow...

pinks33

•6 years ago

10 Replies

Temporal biopsy listening to Bruce Springsteen

Hello friends, I have gone to ground a little of late as I didnt want to 'moan' about this bloomin condition. Last time I posted I was on 35 mg of Pred and...

Hello friends, I have gone to ground a little of late as I didnt want to 'moan' ...

Fieldofdreams

•6 years ago

15 Replies

Shingles

Has anyone ever developed shingles while on predneselone

Oldnets

•6 years ago

7 Replies

Pelvic girdle pain...never had it before

My PMR presented three years ago , and the pain I had at that time was bilateral neck, shoulders. upper arms and lower back. I have been trying to reduce from...

My PMR presented three years ago , and the pain I had at that time was bilateral...

Mary63

•6 years ago

26 Replies

Even a top consultant has problems

In June this year I went to see the top endocrine consultant in our local hospital. He had diagnosed an adenoma on my left adrenal gland, and after having had...

In June this year I went to see the top endocrine consultant in our local hospit...

Suet3942

•6 years ago

17 Replies

Tonight Matthew I am going to be......

A monkey!!!! No you did read this right. I woke up with a start this morning after a dream/nightmare about having turned into a monkey whilst having a bath!!...

A monkey!!!! No you did read this right. I woke up with a start this morning a...

Yellowbluebell

•6 years ago

36 Replies

By how much should I increase...

Been doing pretty well reducing and now down to 5 but the last few days have seen increasing tiredness and muscular stress. Have also been increasing exercise...

Been doing pretty well reducing and now down to 5 but the last few days have see...

Marotic

•6 years ago

9 Replies

Harlow Meet Up Group

The next meeting of the Harlow Group is Monday 12th November, 12.30 to 1.30 at the Redeemer Lutheran Church in Harlow. Full details are on:...

The next meeting of the Harlow Group is Monday 12th November, 12.30 to 1.30 at t...

Roy46

•6 years ago

Be the first to reply

Is this a coincidence ?

I have PMR and have been doing the dead slow stop reduction of prednisolone, now on 3mg and starting to reduce to 2.5mg. All going well until I had a flare of...

I have PMR and have been doing the dead slow stop reduction of prednisolone, now...

Jud666

•6 years ago

8 Replies

Taper

Hi all advised needing please I’ve got I’ve had PMR for 2 and a half years started on 25mg had ups and downs along the way I’ve had kidney cancer kidney...

Hi all advised needing please I’ve got I’ve had PMR for 2 and a half years start...

Skipman12

•6 years ago

5 Replies

Seeking advice

After the pain and stiffness of PMR flareup settles how long does the weakness and feeling unwell last?

After the pain and stiffness of PMR flareup settles how long does the weakness a...

Oldnets

•6 years ago

8 Replies

Advice needed- is this normal- should I ride it out longer?

You may know I was diagnosed September 17 with PMR/GMA by my GP who put me on 20 mg prednisone which I stayed on for 5 days. SED rate 95 and CRP 341. After 5...

You may know I was diagnosed September 17 with PMR/GMA by my GP who put me on 20...

Mks9558

•6 years ago

18 Replies

Eye test goes brill!!

When I saw gp last week I mentioned vision had changed a bit but that could just be the yearly change I seem to have with my shortsighted vision. He said he...

When I saw gp last week I mentioned vision had changed a bit but that could just...

Yellowbluebell

•6 years ago

7 Replies

Caugh

i am going to GP on friday so i hope i will get xray i have never smoked .Thank you all it is a great to have some one that understands .my family are tired of...

i am going to GP on friday so i hope i will get xray i have never smoked .Thank ...

ballyboy

•6 years ago

3 Replies

Risks of emotional stress

Hi All! Have just read Daisychain12 post re increasing pred peri-surgery, which I am aware of, but I was not aware that emotional stress could have such...

Hi All! Have just read Daisychain12 post re increasing pred peri-surgery, which ...

Cinka

•6 years ago

10 Replies

"I Can See Clearly Now"

I can see clearly now the rain is gone I can see all obstacles in my way Gone are the dark clouds that had me blind It's gonna be a bright (bright) Bright...

I can see clearly now the rain is gone I can see all obstacles in my way Gone ar...

Hidden

•6 years ago

65 Replies

Singapore travel decisions

Thanks for all the replies to my last post. Methotrexate – the instructions are to stop taking it if you have “an infection” as it suppresses the immune...

Thanks for all the replies to my last post. Methotrexate – the instructions are...

Roltuba

•6 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2018

Some small advice on pmg

Weather related flares

tapering using dead slow method

Useful book

Is 2.5 Pred worth taking?

How much calcium?

Pacemaker fitted in the middle of PMR ,what is what may I ask?

Why Can Posts Not Be Saved On This Site!!

Muscle pain while at 7

New Rheumatologist

UTIs

Shingles and GCA

Never get too cocky

What should a GCA relapse feel like and can it happen on a high dose of pred?

Temporal biopsy listening to Bruce Springsteen

Shingles

Pelvic girdle pain...never had it before

Even a top consultant has problems

Tonight Matthew I am going to be......

By how much should I increase...

Harlow Meet Up Group

Is this a coincidence ?

Taper

Seeking advice

Advice needed- is this normal- should I ride it out longer?

Eye test goes brill!!

Caugh

Risks of emotional stress

"I Can See Clearly Now"

Singapore travel decisions

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive