Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,410 posts

All posts for November 2018

When will the exhaustion end ?

I am in my 4th year of pmr and am down to 4mg of Pred, I also have Kyphoscoliosis with a severely twisted spine. I got talked into having a Haloween Party on...

I am in my 4th year of pmr and am down to 4mg of Pred, I also have Kyphoscolios...

•6 years ago

Hope or hopeless

I’m not doing well after 17 months since diagnosed. Im 74 but had a fibromyalgia diagnosis for 36 years before GCA/PMR. On prednisone, Actemra, beginners...

I’m not doing well after 17 months since diagnosed. Im 74 but had a fibromyalgi...

•6 years ago

PMR or ARTHRITIS

I am a 53-year-old female. I started with stiffness in the hips and shoulders/upper arms in October 2017. With an ESR of 36 and CRP of 23.8 the doctor thought...

I am a 53-year-old female. I started with stiffness in the hips and shoulders/up...

•6 years ago

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Mistake with tablets

Have just searched site and see that my mistake today is not going to kill me. Phew. Saturday morning is my time to sort a fortnight's tablets into pill boxes....

Have just searched site and see that my mistake today is not going to kill me. P...

•6 years ago

Greetings from Oz

Been in Adelaide for nearly three weeks and pleased to report that my flare subsided the day after been arrived. Have done a beach walk with daughters dog...

Been in Adelaide for nearly three weeks and pleased to report that my flare subs...

•6 years ago

The Lighter Side: BREAKING NEWS. The Latest Ramblings from MB Mansions - as if You Lot need more of this Nonsense..? ;-)

Greetings All, whoever and wherever you are in the Big Wide World (not forgetting Welsh Wales, ‘look you’). Well, where to start - after admittedly being a...

Greetings All, whoever and wherever you are in the Big Wide World (not forgettin...

•6 years ago

Back on 30mg pred after 2.5 years without

Before I had PMR I had exertional headaches. While on pred for PMR never had them. Stopped Pred 2.5 years ago and headaches came back a bit. For a while I had...

Before I had PMR I had exertional headaches. While on pred for PMR never had the...

•6 years ago

I Could Not Make This S**t Up!

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/11/02/i-could-not-make-this-st-up/ Warning; This blog post contains some strong language,...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/11/02/i-co...

•6 years ago

Feeling cold is normal?

I am constantly feeling cold.Is this an effect of Pred?

I am constantly feeling cold.Is this an effect of Pred?

•6 years ago

Stomach pain and pred

Hi is there anyone else who is taking pred and having a sore stomach when eating and feeling bloated after a small meal. I had the camera down there and he...

Hi is there anyone else who is taking pred and having a sore stomach when eating...

•6 years ago

Unbearable "Charley Horse", Inner Right Thigh

PMR for nearly 1 year, currently on 10 mg pred - last night I was awakened with the worst Charley Horse I've ever had in my life, in a place I've never had...

PMR for nearly 1 year, currently on 10 mg pred - last night I was awakened with ...

•6 years ago

FLare after having surgery

Had been reducing dosage to 7 mg. prior to having surgery now have major pain on one hip/quad. I know I am flaring and have increased my dose to 12 1/2 mg but...

Had been reducing dosage to 7 mg. prior to having surgery now have major pain on...

•6 years ago

More problems

Besides having several autoimmune disorders I now seem to have myasthenia gravis. 1 droopy eye that closes when I read. Muscle weakness, my latest one is at...

Besides having several autoimmune disorders I now seem to have myasthenia gravis...

•6 years ago

Update on Severe Hip Pain

Some of you may remember I have been waiting for the x-ray results of my hip. I saw the rheumatolgy nurse specialist yesterday and she was able to access the...

Some of you may remember I have been waiting for the x-ray results of my hip. I...

•6 years ago

for the newly diagnosed

I may have posted this before but its a good read for those new to prednisone use and have some "fears" of the devils tictac's..(not really)...im done with...

I may have posted this before but its a good read for those new to prednisone us...

•6 years ago

How good should we feel before taking the next reduction?

I have heard 70 percent thrown out there but I think in the past I have pushed myself along too quickly and suffered for it. I am now at 7 and very stiff and...

I have heard 70 percent thrown out there but I think in the past I have pushed m...

•6 years ago

Crutches??

Anyone had to deal with not being able to use crutches?? I dislocated and broke my toe and was told to keep it off the ground. But no way can I use the...

Anyone had to deal with not being able to use crutches?? I dislocated and broke...

•6 years ago

Eyes 2

Visited optometrist again this morning, Looking and comparing the last three readings on my right eye I am very much wondering if that biopsy to confirm GCA...

Visited optometrist again this morning, Looking and comparing the last three re...

•6 years ago

Bath Meet Up Group

Our next meeting is on Monday November 5th at 2pm in Garfunkels, The Orange Grove, Bath, BA1 1LP. All are welcome to jin us for a freindly chat over a drink....

Our next meeting is on Monday November 5th at 2pm in Garfunkels, The Orange Grov...

•6 years ago

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understanding withdrawal and flare

Please correct me if I am wrong. When tapering....... steroid withdrawal pain is the body adjusting to less steroid, but if it cannot adjust it will lead to an...

Please correct me if I am wrong. When tapering....... steroid withdrawal pain is...

•6 years ago

Advice please - sinus problems

Hi - I've been on prednisolone for PMR for over two and a half years (still only down to 8mg) but for the past couple of months my sinuses have been very...

Hi - I've been on prednisolone for PMR for over two and a half years (still only...

•6 years ago

Prednisone vs Cortisol

My wife was diagnosed with PMR 29 months ago. She started at 15mg pred and has been tapering very slowly, now down to 10.5mg. Though she doesn't feel as...

My wife was diagnosed with PMR 29 months ago. She started at 15mg pred and has ...

•6 years ago

This is not a medical question but I would love to hear your views. Should attacks on the Homeless be considered a Hate Crime?

This post is not a medical question, on pain, PMRGCA , or specific illness and medication but I do think it is an important issue to us all , relative to the...

This post is not a medical question, on pain, PMRGCA , or specific illness and ...

•6 years ago

New GP

My lovely GP, who has looked after my family so well for over 30 years, is retiring. I’m gutted! He diagnosed my PMR at first glance. He’s always been...

My lovely GP, who has looked after my family so well for over 30 years, is retir...

•6 years ago

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