Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,235 posts

All posts for November 2018

AN ANTIDOTE IN TIMES OF 'DESPAIR' :

Hello Everyone I am not one to 'spruik' 'cures' for anything - as we know this can be a dangerous and complex thing to do - in a world where even the best...

Hello Everyone I am not one to 'spruik' 'cures' for anything - as we know this ...

Rimmy

•6 years ago

14 Replies

Hydroxocloroquinine

Hi Everyone, am wondering if you have any info on the drug as my Rheumatologist wants to start me on it, as I am aware Pred only deals with the symptoms whilst...

Hi Everyone, am wondering if you have any info on the drug as my Rheumatologist ...

bakingD

•6 years ago

35 Replies

Turmeric with Black Pepper

Hi, havnt posted for a while but have kept up with reading posts for PMR. I have had it one year now and am doing very well. I have reduced Prednisilone to...

Hi, havnt posted for a while but have kept up with reading posts for PMR. I have...

Kathymilner

•6 years ago

32 Replies

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SmileY's, hearts etc

How do you insert smiley faces etc into posts / responses? I think these are great and I would occasionally like to use them to indicate the tone some of my...

How do you insert smiley faces etc into posts / responses? I think these are gre...

Marilyn1959

•6 years ago

18 Replies

Myeloma

Hi everyone I finally have been diagnosed with Myeloma everything was rushed through by doctor Rod Hughes through to haematologist dr Laurie at St. Peter's , I...

Hi everyone I finally have been diagnosed with Myeloma everything was rushed thr...

Jamie345

•6 years ago

55 Replies

Role of Shingles virus in triggering GCA

Just a quick survey for GCA sufferers please. As a former medical / biological researcher for most of my career before I retired a few years ago, I am lucky...

Just a quick survey for GCA sufferers please. As a former medical / biological ...

Suzita76

•6 years ago

27 Replies

Curable? Or just manageable?

I’m 28 year old female and have been diagnosed with GCA or more so Temporal Artritis back in June was prescribed 50mg and tapered off. 2 months after...

I’m 28 year old female and have been diagnosed with GCA or more so Temporal Artr...

GCASUCKS

•6 years ago

4 Replies

Severe low back pain upon waking.

I had to be helped out of bed this morning with severe low back pain and stiffness. X-Rays have shown arthritic deterioration in my lower spine. That pain went...

I had to be helped out of bed this morning with severe low back pain and stiffne...

SheffieldJane

•6 years ago

103 Replies

WINTER😟😟😟😟

Winter is a-coming! Time for me to semi-hibernate!!

Constance13

•6 years ago

22 Replies

giant cell arteritis, depserate for info to save my life

I am 42 yr old, living in toronto who is desperate to get info so I can get diagnosed. I have had the normal blood tests to check twice ESR and creatine and...

I am 42 yr old, living in toronto who is desperate to get info so I can get diag...

dchandler7

•6 years ago

11 Replies

The osteoporosis medication was called Didronel

Thanks for all your help in tracking it down!

Omanain

•6 years ago

1 Reply

Nice guidelines for GCA treatment

Hi folks, I thought those of you who don’t mind reading scientific stuff might like to look at the NICE guidelines (recommended for GPS/ consultants to follow...

Hi folks, I thought those of you who don’t mind reading scientific stuff might l...

Suzita76

•6 years ago

10 Replies

Cause of pain

I have had GCA since August 2014 and have been on Pred since then plus Methotrexate since 2015. I have now reduced to 2 mg Pred with the same dose of Metho...

I have had GCA since August 2014 and have been on Pred since then plus Methotrex...

PenelopeVita-Finzi

•6 years ago

4 Replies

Too many trips to the loo!!

Does pmr cause frequent urination? For the last few months I have needed to go more often but as the moment I seem to constantly be on the loo (upwards of 10...

Does pmr cause frequent urination? For the last few months I have needed to go ...

Yellowbluebell

•6 years ago

65 Replies

Hip replacement

Would this be wise if still on steroids even a low dose.?

Seagu11

•6 years ago

7 Replies

Moved

Hello, friends from all over the world it is of topic, but I wanted to express my admiration for performance of the festival of remembrance in the royal Albert...

Hello, friends from all over the world it is of topic, but I wanted to express m...

Zofitmogelijk

•6 years ago

25 Replies

Periodic fast?

I am reading a book about anti-inflamatory diet and they mention periodic fast as one of the really good ways to keep the inflammation away. I do a lot of...

I am reading a book about anti-inflamatory diet and they mention periodic fast a...

Pirnilla

•6 years ago

35 Replies

Hi folks. I am new and have a PMR/Gca question.

Diagnosed PMR mid September 18 and 15 mg seemed to be working well. But for the last month I noticed my vision is really off. Got new glasses, saw the...

Diagnosed PMR mid September 18 and 15 mg seemed to be working well. But for the ...

3daysinjuly

•6 years ago

31 Replies

GCA

Hi folks how you all doing good i hope.? I have s wuestion. Today i forgot to take my meds this am until about 1.30pm i was in shower bout 11ish am and had...

Hi folks how you all doing good i hope.? I have s wuestion. Today i forgot to ta...

Alness

•6 years ago

8 Replies

I'm New Here

I will be 80 in a few weeks time, and was diagnosed with PMR five weeks ago. GP started me on 15mg Pred. Had a slow response, but this last week has seen a...

I will be 80 in a few weeks time, and was diagnosed with PMR five weeks ago. GP...

Granbee

•6 years ago

9 Replies

Two for the price of one

Hello dear friends. I don’t write often but I do rely on your posts. Well here is my question. I have had too many platelets for over 25 years. Take meds to...

Hello dear friends. I don’t write often but I do rely on your posts. Well here i...

Alfryd

•6 years ago

7 Replies

Fluctuating blood pressure

I am currently on 10mg of prednisone for PMR, down from 40. A week ago, I felt light-headed and took my BP which was quite low...90/50. I took it again...

I am currently on 10mg of prednisone for PMR, down from 40. A week ago, I felt l...

Reader7

•6 years ago

6 Replies

Does anyone know the name of an osteoporosis medication commonly prescribed in 1990s? (UK)

In 1995 a consultant orthopaedic surgeon looked at an x-ray of my lower back and told me I had advanced osteoporosis. I was only 48 so this was quite a...

In 1995 a consultant orthopaedic surgeon looked at an x-ray of my lower back and...

Omanain

•6 years ago

18 Replies

Now P M R

I've had G C A since Dec.2014 with three or four flares and uti infections on a regular basis,In 2015 i spent two weeks in hospital with sepsis and portal vein...

I've had G C A since Dec.2014 with three or four flares and uti infections on a ...

saunders123

•6 years ago

5 Replies

Do I have PMR?

Diagnosed GCA.Started Predisolone January 2018 60 mg down to 5 mg however plagued by joint pain . Is this PMR or withdrawal pains? Ortho recommends hip...

Diagnosed GCA.Started Predisolone January 2018 60 mg down to 5 mg however plag...

Seagu11

•6 years ago

4 Replies

Follow up regarding partially white nails.

Hi everyone, Just a follow up regarding my fingernails and toenails going partially white. Went to the podiatrist, she was really nice and she stated that it...

Hi everyone, Just a follow up regarding my fingernails and toenails going partia...

Dappa

•6 years ago

6 Replies

Advice please

Hi, I posted 7 months ago when I had reduced to 1mg and starting to have tiredness etc. I decided to go up to 2mg and have been on that dose since then until...

Hi, I posted 7 months ago when I had reduced to 1mg and starting to have tiredne...

Urtica

•6 years ago

4 Replies

A Positive Appointment With Rhuemy.

The lost previous post!!! Plus a days reflection! Here we go! Good experience & reached an accommodation about Pred reduction plans! More trust. More from my...

The lost previous post!!! Plus a days reflection! Here we go! Good experience & ...

Hidden

•6 years ago

27 Replies

Feel good but CRP still elevated - rheum says increase pred

How much should CRP determine prednisone dose? I started at 15mg three months ago and had reduced to 7 by last week. When I started on prednisone, my CRP went...

How much should CRP determine prednisone dose? I started at 15mg three months ag...

Barbshow

•6 years ago

12 Replies

Are my muscles changing, or is it imagination?

I have been on Prednisone for about 2 months as well as Methotrexate. So far, I am doing well. What I have noticed is that my muscles seem to be improving and...

I have been on Prednisone for about 2 months as well as Methotrexate. So far, I ...

kamille

•6 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2018

AN ANTIDOTE IN TIMES OF 'DESPAIR' :

Hydroxocloroquinine

Turmeric with Black Pepper

SmileY's, hearts etc

Myeloma

Role of Shingles virus in triggering GCA

Curable? Or just manageable?

Severe low back pain upon waking.

WINTER😟😟😟😟

giant cell arteritis, depserate for info to save my life

The osteoporosis medication was called Didronel

Nice guidelines for GCA treatment

Cause of pain

Too many trips to the loo!!

Hip replacement

Moved

Periodic fast?

Hi folks. I am new and have a PMR/Gca question.

GCA

I'm New Here

Two for the price of one

Fluctuating blood pressure

Does anyone know the name of an osteoporosis medication commonly prescribed in 1990s? (UK)

Now P M R

Do I have PMR?

Follow up regarding partially white nails.

Advice please

A Positive Appointment With Rhuemy.

Feel good but CRP still elevated - rheum says increase pred

Are my muscles changing, or is it imagination?

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