Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for November 2018

Is no news, good news?

So… yesterday was “D Day.” My long awaited appointment with the “Big Dawg,” the Consultant Neurologist!! I had seen the neurology registrar, back on...

So… yesterday was “D Day.” My long awaited appointment with the “Big Dawg,” th...

Hidden

•6 years ago

77 Replies

Gastroscopy , follow up to post about enteric Pred.

A couple of weeks ago I asked questions about gel capsules for my steroids to try and help with my gut problems. Thanks for all the replies to those questions,...

A couple of weeks ago I asked questions about gel capsules for my steroids to tr...

Dovelady

•6 years ago

5 Replies

Which ailments are usual.....??

I was diagnosed with PMR in July ( having struggled for months before). Started on 15mg. Taken down too fast to 7.5 so have now been on 9mg for 3 weeks. I am...

I was diagnosed with PMR in July ( having struggled for months before). Started ...

Bloomsbury49

•6 years ago

29 Replies

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How can I boost my immune system?

I've now gone down with my second cold in less than a month, this one accompanied by a persistent chesty cough. I also have blepharitis in my left eye that is...

I've now gone down with my second cold in less than a month, this one accompanie...

Marijo1951

•6 years ago

33 Replies

Anita02 has passed away

I am the daughter of Anita 02 - my mum told me of this community that she chatted with and discussed her PMR. Sadly my mum passed away in September. We do...

I am the daughter of Anita 02 - my mum told me of this community that she chatte...

Anitao2

•6 years ago

41 Replies

Here we go again.....

Having been at 5mg for months, feeling very well, I have had a period of stress. My very dear friend passed away a month ago. She had a brain tumour ,...

Having been at 5mg for months, feeling very well, I have had a period of stress....

York54

•6 years ago

21 Replies

CBD oil pain reliever

The cbd oil has taken care of steriod withdrawal symptoms quite well, but how will I know if a flare is coming on.... I'm wondering if the cbd oil will mask...

The cbd oil has taken care of steriod withdrawal symptoms quite well, but how wi...

gtate1914

•6 years ago

34 Replies

Severe pain circling my back and from under rib cage

Hi there I'm have the worst pain ever going right around my back and from high up like from shoulder blades right round my top part of my body, it's extremely...

Hi there I'm have the worst pain ever going right around my back and from high u...

Jamie345

•6 years ago

20 Replies

temporal arthritis

dont have any other symptoms another then a headaches everday. would i have temporal arthritis

dont have any other symptoms another then a headaches everday. would i have temp...

orange22

•6 years ago

11 Replies

Boom.Boom.Boom. Boom! Booom!Booom! Booom!Booom! Must be Nov. 5th! What that Guy started!!!!!!

Sleep hard enough to get without this late hrs crap over the last week & more to come! Aerial Bangers! Big Boomers! Bunfire Night! Not like it use to be! But...

Sleep hard enough to get without this late hrs crap over the last week & more to...

Hidden

•6 years ago

75 Replies

Are you within travelling distance of Portsmouth, UK?MEETING ON SATURDAY 10th November

There will be a meeting at QA hospital, Portsmouth that should be interesting. WHEN. Saturday 10th November WHERE. Fracture Clinic, Level C at QA Portsmouth,...

There will be a meeting at QA hospital, Portsmouth that should be interesting. W...

Valnvaughan

•6 years ago

6 Replies

Just setting out

I was diagnosed 6 weeks ago with pmr, gp prescribed 30 mg daily pred, without further ado. Took the magic pills (once). The magic worked. Then i read the side...

I was diagnosed 6 weeks ago with pmr, gp prescribed 30 mg daily pred, without fu...

Hidden

•6 years ago

75 Replies

Prednisone

I have been on prednisone for 4 years From 30 a day down to 4 mg. have tried several times to get off completely and pain from PMR comes back! I also have...

I have been on prednisone for 4 years From 30 a day down to 4 mg. have tried sev...

JohnGadd

•6 years ago

13 Replies

Singapore trip, Methotrexate and health insurance

Morning all. We have now booked to stay with our daughter in Singapore over Christmas. It’s the first time we’ve been able to think of it for nearly 4 years...

Morning all. We have now booked to stay with our daughter in Singapore over Chri...

Roltuba

•6 years ago

12 Replies

Bad caugh

i have a bad cough from i went down to 3mg and i can not get clear of it .Ihave been to doctor give me antibiotic no good .i am waiting for my new glasses so...

i have a bad cough from i went down to 3mg and i can not get clear of it .Ihave...

ballyboy

•6 years ago

4 Replies

He's Gonna be Stiff Come Morning

Aged 72 and diagnosed PMR/GCA just over 4 months ago; slowly reducing Pred from 40mg currently on 22.5 - 20 mg daily and the man spends 3½ hours crawling with...

Aged 72 and diagnosed PMR/GCA just over 4 months ago; slowly reducing Pred from ...

Nuff1

•6 years ago

9 Replies

Questions

I have this thing for over 6 years. Diagnosis in 2105. It was a horrible bugger. I feel a bit alone at the moment with it. If you read my previous msgs then...

I have this thing for over 6 years. Diagnosis in 2105. It was a horrible bugger....

morrison

•6 years ago

5 Replies

Also

Forgot to say.....when I got back from Scotland I had been burgled. Not very nice to come home to. But up and over it. Life goes on. Xx

Forgot to say.....when I got back from Scotland I had been burgled. Not very ni...

morrison

•6 years ago

16 Replies

Just me as my Daddy would say.

So sorry not to have been in touch recently. Just been to Scotland to look after my Daddy who has been poorly at 93 years old also have met someone who is a...

So sorry not to have been in touch recently. Just been to Scotland to look afte...

morrison

•6 years ago

8 Replies

Ponding in my neck

I am on 25 mg now, pain free and finally able to do exercise in the gym. When I do some of the exercises I feel heavy ponding in my neck, close to the scull. I...

I am on 25 mg now, pain free and finally able to do exercise in the gym. When I ...

Pirnilla

•6 years ago

12 Replies

Calling all friends in Italy

Due to extreme weather conditions I am anxious to hear from any members in Italy. Can you let us all know that you are safe?

Due to extreme weather conditions I am anxious to hear from any members in Italy...

Marilyn1959

•6 years ago

13 Replies

Driving after zelendronic acid infusion.

Hi. A quick question please. I go for a zelendronic acid infusion tomorrow. I live about 20 minutes drive away from the hospital. Will I be OK to drive myself?

Hi. A quick question please. I go for a zelendronic acid infusion tomorrow. I li...

Dontwannabesick

•6 years ago

10 Replies

Baking? Great Steroid induced Stress Relief or do you suffer from PMR/GCA "Soggy Bottoms" too? Suggestions please!

So it is only Sunday and I am already suffering from Great British Bake Off withdrawal symptoms ! Since having the PMR/GCA , and it's nasty side effects on my...

So it is only Sunday and I am already suffering from Great British Bake Off wit...

Blearyeyed

•6 years ago

86 Replies

Is it PMR, or GCA or neither?

I've posted some background before about my OH's situation, but there's alot of us here, so I'm providing some background again before asking for...

I've posted some background before about my OH's situation, but there's alot of ...

Funky-Butt

•6 years ago

11 Replies

Rib pain

Has anyone experienced pain under the left breast bone when you touch it (rib)?

Has anyone experienced pain under the left breast bone when you touch it (rib)? ...

ptm2018

•6 years ago

10 Replies

In a quandary.

I was diagnosed in January this year with PMR and responded immediately to predneselone. I have been tapering off very gradually and got down to 1mg with two...

I was diagnosed in January this year with PMR and responded immediately to predn...

Oldnets

•6 years ago

12 Replies

In a quandary.

I was diagnosed with PMR in January of this year and responded immediately to predniselone treatment. Because I had been on Prednisone for two years in 2014...

I was diagnosed with PMR in January of this year and responded immediately to pr...

Oldnets

•6 years ago

1 Reply

Ok pmr officially sucks.

Up till now the 15mg of pred seemed to be dealing with the pain and although still achy and really tired I thought I was getting off lightly compared to some...

Up till now the 15mg of pred seemed to be dealing with the pain and although sti...

Yellowbluebell

•6 years ago

43 Replies

Tapering down....from 35 mg to 12.5 since August 31st

My rheumy has put me on a plan to taper down after being diagnosed with PMR in mid July and a set of x-rays have discovered lower spine weakness and...

My rheumy has put me on a plan to taper down after being diagnosed with PMR in ...

Cairocat

•6 years ago

9 Replies

Help needed

Hi, I have been having pains in my shoulders for about 3 months now. Cannot weight bare I.e. lifting myself out of the bath is painful, lifting things from a...

Hi, I have been having pains in my shoulders for about 3 months now. Cannot weig...

Trish21

•6 years ago

21 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2018

Is no news, good news?

Gastroscopy , follow up to post about enteric Pred.

Which ailments are usual.....??

How can I boost my immune system?

Anita02 has passed away

Here we go again.....

CBD oil pain reliever

Severe pain circling my back and from under rib cage

temporal arthritis

Boom.Boom.Boom. Boom! Booom!Booom! Booom!Booom! Must be Nov. 5th! What that Guy started!!!!!!

Are you within travelling distance of Portsmouth, UK?MEETING ON SATURDAY 10th November

Just setting out

Prednisone

Singapore trip, Methotrexate and health insurance

Bad caugh

He's Gonna be Stiff Come Morning

Questions

Also

Just me as my Daddy would say.

Ponding in my neck

Calling all friends in Italy

Driving after zelendronic acid infusion.

Baking? Great Steroid induced Stress Relief or do you suffer from PMR/GCA "Soggy Bottoms" too? Suggestions please!

Is it PMR, or GCA or neither?

Rib pain

In a quandary.

In a quandary.

Ok pmr officially sucks.

Tapering down....from 35 mg to 12.5 since August 31st

Help needed

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2018

Is no news, good news?

Gastroscopy , follow up to post about enteric Pred.

Which ailments are usual.....??

How can I boost my immune system?

Anita02 has passed away

Here we go again.....

CBD oil pain reliever

Severe pain circling my back and from under rib cage

temporal arthritis

Boom.Boom.Boom. Boom! Booom!Booom! Booom!Booom! Must be Nov. 5th! What that Guy started!!!!!!

Are you within travelling distance of Portsmouth, UK?MEETING ON SATURDAY 10th November

Just setting out

Prednisone​

Singapore trip, Methotrexate and health insurance

Bad caugh

He's Gonna be Stiff Come Morning

Questions

Also

Just me as my Daddy would say.

Ponding in my neck

Calling all friends in Italy

Driving after zelendronic acid infusion.

Baking? Great Steroid induced Stress Relief or do you suffer from PMR/GCA "Soggy Bottoms" too? Suggestions please!

Is it PMR, or GCA or neither?

Rib pain

In a quandary.

In a quandary.

Ok pmr officially sucks.

Tapering down....from 35 mg to 12.5 since August 31st

Help needed

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Prednisone