Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,570 members • 38,639 posts

All posts for March 2018

GGMS!!!!

I ordered some more pred, with a note stating now on 9mg a day. That’s 1x5mg and 4x1mg. Not difficult is it? So I picked up my package from the pharmacy:...

I ordered some more pred, with a note stating now on 9mg a day. That’s 1x5mg an...

Soraya_PMR

•6 years ago

97 Replies

Just my other Joy

Just sometimes we all need cheering up with this roller coaster of PMR. So this is another way. Pi gets me up and out of bed every morning and gives me...

Just sometimes we all need cheering up with this roller coaster of PMR. So this ...

morrison

•6 years ago

21 Replies

Bisphosphonates

Here's a tidbit from Wikipedia about the history of bisphosphonates: Bisphosphonates were developed in the 19th century but were first investigated in the...

Here's a tidbit from Wikipedia about the history of bisphosphonates: Bisphosphon...

HeronNS

•6 years ago

4 Replies

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trouble sleeping

I sleep for about 2 hrs then up to pee every hour on the hour. What do you do to able to sleep? Stop taking water or liquid by 7pm and still going every...

I sleep for about 2 hrs then up to pee every hour on the hour. What do you do ...

viamonv

•6 years ago

29 Replies

Pleased with myself.

Only you will understand why. Today (I am still coughing on and off) I have vacuumed downstairs and mopped. I have booked a guest house for May. I made l lunch...

Only you will understand why. Today (I am still coughing on and off) I have vacu...

IdasMum

•6 years ago

7 Replies

Spoon theory in pictures.

Take away 4 spoons if you have a cold! Oh yes. I am still coughing but more well than I have been for 2 weeks. I laughed when I read, "style hair" :D

Take away 4 spoons if you have a cold! Oh yes. I am still coughing but more wel...

IdasMum

•6 years ago

8 Replies

Adcal

Hi, my Gp has prescribed me Adcal tablets, 2 x 750mg per day. What’s the best time to take these and with food? Thanks.

Hi, my Gp has prescribed me Adcal tablets, 2 x 750mg per day. What’s the best ti...

Cyclegirl54

•6 years ago

46 Replies

Normal bloods, Seen Shoulder specialist ?? +/- Frozen shoulder but for trial of oral steroids

Hi All I hope I am posting this correctly so that all of you who helped me with my initial Qs will see this. I have seen a shoulder specialist today as the...

Hi All I hope I am posting this correctly so that all of you who helped me with ...

justcallmenurse

•6 years ago

16 Replies

Now trying Methotrexate

Its been some time... we complain when our life is not our own because of work and teenagers, boyfriend, mother and dog ! but I'm sure when there is less of...

Its been some time... we complain when our life is not our own because of work ...

Hidden

•6 years ago

14 Replies

What if they never find the underlying cause for PMR?

How often is the underlying cause never found? How many tests can they do in search of why?

How often is the underlying cause never found? How many tests can they do in se...

vnett

•6 years ago

13 Replies

Flu and Colds

Before my wife was diagnosed with PMR 22 months ago, she used to be the strong one in our household as far as the flu and colds. My sons and I would get each...

Before my wife was diagnosed with PMR 22 months ago, she used to be the strong o...

navejasjoe

•6 years ago

12 Replies

Conclusion to Dexa vs. prednisone

With the help of this group and our very special PMRPRo I decided to stay on prednisone and will look to take a synacthen Test before I think Of switching...

With the help of this group and our very special PMRPRo I decided to stay on pre...

Nap1

•6 years ago

3 Replies

Update

So I went up to 6mg of Pred and do feel a bit better, still have days of overwhelming fatigue tho. Blood results show markers are up a little,so showing...

So I went up to 6mg of Pred and do feel a bit better, still have days of overwhe...

jules1955

•6 years ago

9 Replies

A Little light Reading

It is a beautiful, sunny, but cold day here in Brighton! So far... I have been to the GP (again), where numerous vials of blood were taken out of my body! I...

It is a beautiful, sunny, but cold day here in Brighton! So far... I have been...

Hidden

•6 years ago

92 Replies

PMR ,Alendronic Acid and tooth extraction

hi I was diagnosed with PMR shortly after having an hernia operation .Started in the back of my legs ( hamstrings). Went to the doctors who diagnosed...

hi I was diagnosed with PMR shortly after having an hernia operation .Started...

Flrchrs

•6 years ago

7 Replies

Something wicked this way comes...UPDATE

Yep. It woke me up. Three weather lows are converging to form another massive Nor'easter storm for the first day of Spring, and they're predicting a foot of...

Yep. It woke me up. Three weather lows are converging to form another massive...

GOOD_GRIEF

•6 years ago

41 Replies

Best time to take Prednisone???

One more question.....when is the best time to take Prednisone? I’ve recently read that very early is best because one’s body builds up inflammation early in...

One more question.....when is the best time to take Prednisone? I’ve recently r...

vnett

•6 years ago

20 Replies

Dexamethasone versus prednisone

I have been trying to get my Endocrinologist to adjust the dose of prednisone so that I can take a steroid that is better for my adrenals. Since I have been...

I have been trying to get my Endocrinologist to adjust the dose of prednisone so...

Nap1

•6 years ago

11 Replies

PMR or fibromyalgia?

Just seen my consultant who says my previously diagnosed PMR- 18 months ago- is no longer and I have fibromyalgia. Can someone please explain how? My crp...

Just seen my consultant who says my previously diagnosed PMR- 18 months ago- is ...

Jude62

•6 years ago

25 Replies

Good rheumy in Northern California?

Morning everyone, I’ve been posting about problems getting feedback and called back by my rheumy and having problems getting past his assistant to speak to...

Morning everyone, I’ve been posting about problems getting feedback and call...

Mstiles

•6 years ago

7 Replies

Feeling isolated

Hi I was diagnosed with Polymyalgia rheumatica November 2017., I am really struggling as I was very active before this.. I feel my mental health is taking a...

Hi I was diagnosed with Polymyalgia rheumatica November 2017., I am really strug...

Rudijodiebryce3

•6 years ago

78 Replies

PMR

New on this site so may have already written this some where else. Was diagnosed 14/02/18 and on 20 mg pred which seems to be working for the muscle pain. My...

New on this site so may have already written this some where else. Was diagnosed...

Horizon12

•6 years ago

13 Replies

Stem Cell Treatment cures MS

I caught the tail end of this news item but it appeared to be saying that stem cells from another part of the patient’s body had cured the autoimmune disease...

I caught the tail end of this news item but it appeared to be saying that stem c...

SheffieldJane

•6 years ago

22 Replies

Eye problems

I have pmr and I am know having problems with sight I have had eyes tested and all was fine at the time but am now having trouble with reading and watching...

I have pmr and I am know having problems with sight I have had eyes tested and ...

Rusty8

•6 years ago

15 Replies

“Head to Toe” – A layperson’s Guide to the Signs and Symptoms of PMR/GCA; and the Possible Side Effects of High Dose Steroids

Those that can't do... rant....

Hidden

•6 years ago

139 Replies

GCA and swollen discs behind eyes

For the last 12 months my eye specialist has been treating me for swollen disc behind right eye, they found the preds did not help so while I was tapering down...

For the last 12 months my eye specialist has been treating me for swollen disc b...

pms543

•6 years ago

5 Replies

OOpsies versus bread for low carbs

Maybe it's a good day for baking with all this snow. I came across a recipe for Oopsies a while ago and have made these a few times and really like them....

Maybe it's a good day for baking with all this snow. I came across a recipe fo...

Marlenec

•6 years ago

14 Replies

The Lighter Side: To Whom It May Concern - about the Smiley Snow Face on my Car... ;-)

Dear Whoever you are.. This is to thank you for the highly artistic and spontaneously crafted 'Smiley Face' drawn in the 3 inch-thick snow on the bonnet of my...

Dear Whoever you are.. This is to thank you for the highly artistic and spontane...

markbenjamin57

•6 years ago

56 Replies

Cough

Is a cough ever associated as a side effect of prednisone?

Kcartney103

•6 years ago

6 Replies

Double joy

My two little monkeys. They certainly brighten up my day.

morrison

•6 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

GGMS!!!!

Just my other Joy

Bisphosphonates

trouble sleeping

Pleased with myself.

Spoon theory in pictures.

Adcal

Normal bloods, Seen Shoulder specialist ?? +/- Frozen shoulder but for trial of oral steroids

Now trying Methotrexate

What if they never find the underlying cause for PMR?

Flu and Colds

Conclusion to Dexa vs. prednisone

Update

A Little light Reading

PMR ,Alendronic Acid and tooth extraction

Something wicked this way comes...UPDATE

Best time to take Prednisone???

Dexamethasone versus prednisone

PMR or fibromyalgia?

Good rheumy in Northern California?

Feeling isolated

PMR

Stem Cell Treatment cures MS

Eye problems

“Head to Toe” – A layperson’s Guide to the Signs and Symptoms of PMR/GCA; and the Possible Side Effects of High Dose Steroids

GCA and swollen discs behind eyes

OOpsies versus bread for low carbs

The Lighter Side: To Whom It May Concern - about the Smiley Snow Face on my Car... ;-)

Cough

Double joy

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