Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,273 members • 37,962 posts

All posts for March 2018

My Rheumy Retrospective

I had an appointment with my Rheumy last night... it was the 3rd, in as many months. I requested the appointment because I need to understand why I still feel...

I had an appointment with my Rheumy last night... it was the 3rd, in as many mon...

Hidden

•6 years ago

108 Replies

Dr Sarah Mackie and The Target Consortium paper:

I read some interesting info (of which only a small extract is copied by me here) on a recent tweet from Dr Sarah Mackie - which I was not able to copy or...

I read some interesting info (of which only a small extract is copied by me her...

Rimmy

•6 years ago

20 Replies

Any GCA patients near Tampa, Fl USA?

Saw this on another website regarding a GCA study in the Tampa, FL area.

Insight329

•6 years ago

5 Replies

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Smile

Chrissy1953

•6 years ago

9 Replies

GCA and Tocilizumab funding

I have GCA and am taking Tocilizumab on the NHS and have received special funding. I now understand Tocilizumab has been turned down by NICE and that there is...

I have GCA and am taking Tocilizumab on the NHS and have received special fundin...

christine2715

•6 years ago

8 Replies

My sister has shingles

My sister has just found out she has shingles. I am on 10mg of Pred and wonder if I should. Still be seeing her on Friday and Saturday this week, what do you...

My sister has just found out she has shingles. I am on 10mg of Pred and wonder i...

Jo1947

•6 years ago

11 Replies

negative tests

Just got blood work and biopsy results. Everything neg. next MRI. Did you all gets any negs. and you still had it?

Just got blood work and biopsy results. Everything neg. next MRI. Did you all...

viamonv

•6 years ago

10 Replies

Message to Celtic

I’m wondering if you know how low your cortisol had dropped to before you started working with Dr. Hughes to get it up. I’m planning on following your...

I’m wondering if you know how low your cortisol had dropped to before you start...

Leeleep

•6 years ago

11 Replies

Coping with vaginal discomfort

UTI's and discomfort in the vagina have been a cross to bear for the last few years as a complication of polymyalgia but at last I think I have found something...

UTI's and discomfort in the vagina have been a cross to bear for the last few ye...

yewtree

•6 years ago

6 Replies

pounding heart

I have been on perd 60mg. Last night I could feel my blood flooding through my veins. Am I going nuts? It was pounding.

I have been on perd 60mg. Last night I could feel my blood flooding through my ...

viamonv

•6 years ago

10 Replies

Pred-induced Diabetes worries?

I thought people whose doctors are panicking about their Hba1c levels might find this interesting and reassuring:...

I thought people whose doctors are panicking about their Hba1c levels might find...

PMRpro

Ambassador•6 years ago

24 Replies

Weight gain with PMR

Has anyone else experienced the weight gain with tapering off and not when on high dosage. I have had to be on higher dosages 2 different times (not properly...

Has anyone else experienced the weight gain with tapering off and not when on hi...

Robinre

•6 years ago

10 Replies

Anyone got a goitre?

I have had a goitre for 30 - 40 years. Bloods have always been normal and no cause identified. A recent CT scan showed that the 'multi-nodular goitre has...

I have had a goitre for 30 - 40 years. Bloods have always been normal and no cau...

granny-b

•6 years ago

13 Replies

Blood Test and Pred

Will not taking Pred on the day of a blood test for CRP and ESR make any difference to the results do you think? It will be an hour later than the usual time...

Will not taking Pred on the day of a blood test for CRP and ESR make any differe...

Estellemac

•6 years ago

12 Replies

Not nuts...

Against all advice we set off on Friday for a weekend away so have just returned and read all your posts regarding weather etc. No we are not nuts, crazy or...

Against all advice we set off on Friday for a weekend away so have just returned...

CT-5012

•6 years ago

30 Replies

Has anyone try to Lyrica or Gabapentin for PMR thanks

I have had PMR since 2012 in the hardest thing I have getting over is the muscle pain

I have had PMR since 2012 in the hardest thing I have getting over is the muscle...

sdoucette73

•6 years ago

4 Replies

Define a flare during Pred treatment

Hi, diagnosed wi PMR Jan 2018 (15 mg) and in Feb reduced to 12.5. I take my whole dosage at 2am with apple sauce and then wake around 6am with only maybe a...

Hi, diagnosed wi PMR Jan 2018 (15 mg) and in Feb reduced to 12.5. I take my whol...

DianeA1

•6 years ago

12 Replies

I thought I had it Cracked!

I've been conscious of the fact that I've needed to reduce my Ped prescription. Gone from 20mg to 3 mg in 18 months. This month I reduced to 3mg and today I...

I've been conscious of the fact that I've needed to reduce my Ped prescription. ...

Bobbury

•6 years ago

30 Replies

Still can’t get below 5mg Pred

Hi everyone, it’s been a while since I have posted on here. Diagnosed PMR in Dec 15. I had my gall bladder removed last January and was doing well reducing...

Hi everyone, it’s been a while since I have posted on here. Diagnosed PMR in Dec...

jules1955

•6 years ago

35 Replies

Thanks for the help

Last Monday I went to my doctor about my hands which are stiff in the morning and or all day. My doctor did not know about this problem and thought I was just...

Last Monday I went to my doctor about my hands which are stiff in the morning an...

TimeLord

•6 years ago

2 Replies

Allicin Max

Does anyone know whether it’s safe to take Allicin Max with Pred? A friend of mine who is seriously disabled with RA swears by it whenever she feels she is...

Does anyone know whether it’s safe to take Allicin Max with Pred? A friend of mi...

Judy211

•6 years ago

4 Replies

No Water

I live in South West London in a flat with my husband. For the last two days we've had no water due to burst water pipes in the streets. It's not until you go...

I live in South West London in a flat with my husband. For the last two days we'...

43tripandskip

•6 years ago

21 Replies

Moon face , double chin and all that

Is there a point when you taper down where the swollen face and neck goes away? Around my eyes too... sometimes hard to draw or read. I’ve been on 40...

Is there a point when you taper down where the swollen face and neck goes aw...

Mstiles

•6 years ago

33 Replies

Adrenals at and below physiological levels of prednisone.

I’m curious about how to tell if my adrenals have started coming on board at 6mg. Pred. I’ve posted about the weak Wobblies I was getting in the afternoons...

I’m curious about how to tell if my adrenals have started coming on board at 6mg...

Hindags

•6 years ago

16 Replies

Crying and laughter

Just watched Call the Midwife. OMG. Give me a bucket for tears. Then went to the loo and thought about Sheffield James post and nearly fell down the looh with...

Just watched Call the Midwife. OMG. Give me a bucket for tears. Then went to the...

morrison

•6 years ago

21 Replies

Let it Snow... Let it Snow... Let it Snow!!!

Glad to see all of you in the UK are surviving your freak storm... Here in Calgary we are quite used to it and probably 90% of us have 4WD/AWD vehicles....

Glad to see all of you in the UK are surviving your freak storm... Here in Calga...

Scotte

•6 years ago

23 Replies

re curring water infections

hi since dec 2017 ive had 3 water infections so my doctor has arranged a kidney scan ,now i feel as though ive got another water infection and im in pain but...

hi since dec 2017 ive had 3 water infections so my doctor has arranged a kidney ...

catlover5

•6 years ago

15 Replies

Question

Just not having a good night. Now down to 5mgs. Body ok but mind depressed. And feeling so tired. Ask myself if perhaps weather has something to do with it....

Just not having a good night. Now down to 5mgs. Body ok but mind depressed. And ...

morrison

•6 years ago

6 Replies

Scalds

There seems to have been an outbreak of posts about injuries from scalding. Just to remind everyone, this is what you do in the case of burns, including...

There seems to have been an outbreak of posts about injuries from scalding. Jus...

HeronNS

•6 years ago

13 Replies

Weight gain.

I know that many people have posted here about their weight gain, usually due to the Prednisone. However, I have the opposite problem. All my life I have had...

I know that many people have posted here about their weight gain, usually due to...

RheaV

•6 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

My Rheumy Retrospective

Dr Sarah Mackie and The Target Consortium paper:

Any GCA patients near Tampa, Fl USA?

Smile

GCA and Tocilizumab funding

My sister has shingles

negative tests

Message to Celtic

Coping with vaginal discomfort

pounding heart

Pred-induced Diabetes worries?

Weight gain with PMR

Anyone got a goitre?

Blood Test and Pred

Not nuts...

Has anyone try to Lyrica or Gabapentin for PMR thanks

Define a flare during Pred treatment

I thought I had it Cracked!

Still can’t get below 5mg Pred

Thanks for the help

Allicin Max

No Water

Moon face , double chin and all that

Adrenals at and below physiological levels of prednisone.

Crying and laughter

Let it Snow... Let it Snow... Let it Snow!!!

re curring water infections

Question

Scalds

Weight gain.

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