Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,610 members • 38,758 posts

All posts for March 2018

The next step....

Hello all - I was diagnosed last nov - my gp started me on 10mgs prednisolone- within days I felt fine pain in shoulders and arms gone but still had pain in my...

Hello all - I was diagnosed last nov - my gp started me on 10mgs prednisolone- w...

Auldcoo

•6 years ago

15 Replies

Stowmarket cafe meetup

Join us at The Osier Cafe, in the Museum of East Anglian life, on Thursday the 22nd March at 1030. We look forward to meeting you.

Join us at The Osier Cafe, in the Museum of East Anglian life, on Thursday the 2...

Vanner460

•6 years ago

2 Replies

April 2018 PMRGCAuk London Support Group meeting

PMRGCAuk London Support Group meeting When: Monday 23 April 2018, 13:00 – 16:00 Where: Artizan Street Library **2nd Floor room** 1 Artizan Street London E1...

PMRGCAuk London Support Group meeting When: Monday 23 April 2018, 13:00 – 16:00 ...

Green_girl

•6 years ago

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GP tapering me......pre PMR diagnosis.....and I’m on a trip!!

Today is my last day of 10 mg twice a day. My GP has me going to 5 mg twice a day. I had to ask to have even that much since I don’t have an official...

Today is my last day of 10 mg twice a day. My GP has me going to 5 mg twice a d...

vnett

•6 years ago

39 Replies

GCA and the Eye - roadshow video

Hello everyone! Hope you are having a comfortable weekend. There's a new 5-minute video on our channel. Dr Catherine Guly talks to the Bristol Research...

Hello everyone! Hope you are having a comfortable weekend. There's a new 5-minu...

Polywotsit

PMRGCAuk team member•6 years ago

5 Replies

End of pred , skin problems returned

Eczema on face is back , don't want to use steroid cream used hemp oil many years ago that cleared it not had a outbreak for 10 years can't get the oil. Help...

Eczema on face is back , don't want to use steroid cream used hemp oil many year...

olive2709

•6 years ago

14 Replies

Dental problems

A million thanks to everyone for your support and sharing, you don’t know how much it has helped.💕 I saw the endodontist yesterday and he lanced the...

A million thanks to everyone for your support and sharing, you don’t know ho...

Mstiles

•6 years ago

19 Replies

My sunshine when skies are grey.

What cheers you up?

SheffieldJane

•6 years ago

82 Replies

PMR

Hi just wondering if any of your kind people could give me some advice . Due to having taken preds for 2 yrs I have suffered from thinning bones resulting in 2...

Hi just wondering if any of your kind people could give me some advice . Due to ...

justine2805

•6 years ago

7 Replies

Frustrated

Hi I am a 77 year old recently widowed and diagnosed at Christmas time with Temporal Arteritis. I am on 20mg steroids and frustrated because of muscle...

Hi I am a 77 year old recently widowed and diagnosed at Christmas time with Temp...

Hidden

•6 years ago

9 Replies

Reducing

Hi Everyone. I’ve been reducing for months and have been doing really well. Had this PMR for 4 years. Never had a positive blood test result. I reached 11 and...

Hi Everyone. I’ve been reducing for months and have been doing really well. Had ...

Tonysue

•6 years ago

3 Replies

I wonder how many opiod scripts could be replaced with steroids?

http://www.independent.co.uk/voices/opioid-addiction-uk-crisis-painkillers-over-prescribed-nhs-self-harm-treatment-a8259341.html Something I've ranted about...

http://www.independent.co.uk/voices/opioid-addiction-uk-crisis-painkillers-over-...

PMRpro

Ambassador•6 years ago

37 Replies

"Give as you Live" - Donate to PMRGCAuk

You may be aware of this... but I just stumbled across it! There's an organisation that will facilitate automatic donations to your favourite charity, every...

You may be aware of this... but I just stumbled across it! There's an organisa...

Hidden

•6 years ago

5 Replies

Health Harmed by Gender Bias

Three Views of the Crisis in Women’s Health Three new books — Maya Dusenbery’s “Doing Harm,” Abby Norman’s “Ask Me About My Uterus” and Michele Lent Hirsch’s...

Three Views of the Crisis in Women’s Health Three new books — Maya Dusenbery’s “...

Hindags

•6 years ago

30 Replies

RECLAST

Has anyone had an experience with Reclast ? I wrote a few months ago that I was coming off Alendronate because of esophageal problems. I just had my dexascan,...

Has anyone had an experience with Reclast ? I wrote a few months ago that I was ...

DeliaGray

•6 years ago

16 Replies

pmr & knees

I recently developed swollen legs - both -and extreme knee pain. Had ultra sound scan which showed cyst (bakers) behind the knee on first leg to swell.then the...

I recently developed swollen legs - both -and extreme knee pain. Had ultra sound...

cocker10

•6 years ago

6 Replies

Lozarapam

I have felt down for weeks and lozarapam has stopped panic attacks. They also help to cheer me up a bit. I have checked my reducing chart and realise it all...

I have felt down for weeks and lozarapam has stopped panic attacks. They also he...

Xanthe12345

•6 years ago

15 Replies

Amazed

I was helping my neighbour by ‘house sitting’ while an engineer sorted his boiler out. We were chatting about this and that, I said I didn’t work due to...

I was helping my neighbour by ‘house sitting’ while an engineer sorted his boile...

Soraya_PMR

•6 years ago

100 Replies

does anyone know someone suffering from pcd.

leasowes

•6 years ago

3 Replies

Aches and pains

I have been off prednisone since last October, I had slowly reduced and all my blood checks are normal, however I,m far from feeling better now that I clear of...

I have been off prednisone since last October, I had slowly reduced and all my b...

Hidden

•6 years ago

39 Replies

The beginning, continuing journey... etc etc et

My journey into this universe began with a serious illness. Unknown to me due to a pain tolerance that’s off the charts I was very sick. I am from Oregon...

My journey into this universe began with a serious illness. Unknown to me due to...

CrazyTrucker

•6 years ago

34 Replies

Taper from 12.5 to........

Hi, Dx'd with PMR in Jan 2018 and put on 15 mg which was wonderful. 2/17/18 reduced from 15 mg to 12.5 mg. Drs instructions are to reduce to 10mg on 3/19/18....

Hi, Dx'd with PMR in Jan 2018 and put on 15 mg which was wonderful. 2/17/18 red...

DianeA1

•6 years ago

7 Replies

We are so proud of you ladies

Many of you will have already picked up that our very own 'PMRpro' aka Eileen, and 'Dorset Lady' have come out on top of all the people on HU for the...

Many of you will have already picked up that our very own 'PMRpro' aka Eileen, a...

Polywotsit

PMRGCAuk team member•6 years ago

95 Replies

Hair Loss

I have never taken Lorazapan for the side effects of Prednisone. However, when I started on 60mg after my diagnosis of PMR/GCA last summer I felt totally...

I have never taken Lorazapan for the side effects of Prednisone. However, when ...

Stella3

•6 years ago

19 Replies

Reducing the prednisone

I was pretty concerned about a big reduction from 10 to 7.5. It's been 4 days and while the aching is increasing it is not as bad as I thought it might be....

I was pretty concerned about a big reduction from 10 to 7.5. It's been 4 days an...

Celebrant

•6 years ago

9 Replies

Dental problems, prednisone, talking to rheumy

Hello everyone. Rainy day in Northern California so perfect for a nap. I’ve posted before about problems getting in touch with my rheumy and having...

Hello everyone. Rainy day in Northern California so perfect for a nap. ...

Mstiles

•6 years ago

18 Replies

You peeps keep on educating our US docs

Good morning, I received this email from my Rheumatologist: "Joy, your labs look really good, I will print out those and look them over. I am intrigued by the...

Good morning, I received this email from my Rheumatologist: "Joy, your labs look...

Insight329

•6 years ago

12 Replies

Follow up to 'I need to rant'

When I last wrote I was in quite a bit of pain and not sure where to go next. Since then I've had a phone consultation with my GP and a blood test. The GP...

When I last wrote I was in quite a bit of pain and not sure where to go next. Si...

Louisepenygraig

•6 years ago

7 Replies

IBS flare

Reducing from 15 mg prednisone slowly to 5 mg...and my IBS has flared up in a big way after being silent for a while...wind..pain all over abdomen and into...

Reducing from 15 mg prednisone slowly to 5 mg...and my IBS has flared up in a ...

Katrinaroper

•6 years ago

7 Replies

New and confused by GP, questions galore?

I’m a newbie but I have been reading your posts with great interest. Does anyone take turmeric supplements and if so does it seem to help? I’m still waiting...

I’m a newbie but I have been reading your posts with great interest. Does anyon...

vnett

•6 years ago

38 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

The next step....

Stowmarket cafe meetup

April 2018 PMRGCAuk London Support Group meeting

GP tapering me......pre PMR diagnosis.....and I’m on a trip!!

GCA and the Eye - roadshow video

End of pred , skin problems returned

Dental problems

My sunshine when skies are grey.

PMR

Frustrated

Reducing

I wonder how many opiod scripts could be replaced with steroids?

"Give as you Live" - Donate to PMRGCAuk

Health Harmed by Gender Bias

RECLAST

pmr & knees

Lozarapam

Amazed

does anyone know someone suffering from pcd.

Aches and pains

The beginning, continuing journey... etc etc et

Taper from 12.5 to........

We are so proud of you ladies

Hair Loss

Reducing the prednisone

Dental problems, prednisone, talking to rheumy

You peeps keep on educating our US docs

Follow up to 'I need to rant'

IBS flare

New and confused by GP, questions galore?

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