Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,456 members • 38,378 posts

All posts for March 2018

Compression sox

I was diagnosed with GCA about 5 years ago treated by my GP. I recently saw a rheumatologist because we moved away from my GP and I wanted another opinion. He...

I was diagnosed with GCA about 5 years ago treated by my GP. I recently saw a rh...

Kcartney103

•6 years ago

13 Replies

Salumibab

At a recent scheduled appointment I had a new rheumatologist. He seemed excellent and listened to my woes about my recently diagnosed fibromyalgia, which is...

At a recent scheduled appointment I had a new rheumatologist. He seemed excellen...

venezia1

•6 years ago

16 Replies

Actemra

Actemra has been really keeping my pain tolerable, however I needed a crown and was advised to discontinue my weekly shot two weeks prior to procedure. That...

Actemra has been really keeping my pain tolerable, however I needed a crown and ...

Leeleep

•6 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Interesting TV Documentary Last Night

" Secret Universe". ......."The Hidden Life of The Cell" BBC 4. 8.00 pm. Documentary showing a single Human Cell under attack from a virus & the reaction...

" Secret Universe". ......."The Hidden Life of The Cell" BBC 4. 8.00 pm. Doc...

Hidden

•6 years ago

5 Replies

Sarcoidosis

Hi I am 59 year old female. Have ehlers danlos syndrome.hernia.arthritis. sarcoidosis. Asthma

Hi I am 59 year old female. Have ehlers danlos syndrome.hernia.arthritis. sarcoi...

Margerethe

•6 years ago

3 Replies

Tapering, pain!

I’ve been tapering down from 10 using the dead slow method recommended. I’m down to 8 and today I feel like I’ve been run over by a bus. Every joint in my body...

I’ve been tapering down from 10 using the dead slow method recommended. I’m down...

Jean56

•6 years ago

45 Replies

osteoporosis

Hi I have recently been diagnosed with osteoporosis . I am now suffering with two spinal fractures to my spine which are very painful .I have been today to see...

Hi I have recently been diagnosed with osteoporosis . I am now suffering with tw...

justine2805

•6 years ago

9 Replies

"Rockin my Rolser!"

Apologies as "Pred Head" has made me forget who it was exactly, that suggested I buy a "shopping trolley," and stop lugging those crazy, heavy grocery bags all...

Apologies as "Pred Head" has made me forget who it was exactly, that suggested I...

Hidden

•6 years ago

66 Replies

Update!

So after my post a couple of months ago about my GP wanting me off the pred - getting her to let me keep going on a low dose but this was to be the end of it -...

So after my post a couple of months ago about my GP wanting me off the pred - ge...

powerwalk

•6 years ago

42 Replies

Any local people want to meet up

Hello...was wondering if anyone lives in Cumbria?is there a meeting here? Should we have one?

Hello...was wondering if anyone lives in Cumbria?is there a meeting here? Should...

Katrinaroper

•6 years ago

10 Replies

Medical breakthroughs for MS one woman’s story.

http://bbc.in/2FA3lU6 Just made me glad that this wasn’t my diagnosis and also wonder whether I would have her courage. Just for interest rather than...

http://bbc.in/2FA3lU6 Just made me glad that this wasn’t my diagnosis and also ...

SheffieldJane

•6 years ago

15 Replies

Why do I feel so terrible. Be...

Why do I feel so terrible. Been in bed feeling exhauated . Pred text wouldn't let me spell it correctly. Usually up an on. Today not. Preds athe 6mg iso...

Why do I feel so terrible. Been in bed feeling exhauated . Pred text wouldn't ...

morrison

•6 years ago

18 Replies

OH HAPPY DAY.....ESCAPISM....END LANSOPRAZOLE...

TODAY HAS BEEN A HAPPY DAY. Wish I could put the good feeling in a bottle, and just have a whiff, every now and then. The past 2/3 weeks have, as I told my GP,...

TODAY HAS BEEN A HAPPY DAY. Wish I could put the good feeling in a bottle, and j...

karools16

•6 years ago

13 Replies

Is there a list of PMR/GCA comorbidities?

Since I came down with PMR 16 months ago, I’ve had a lot of other crazy issues crop up. I have to fight with my docs to stay on even a low dose of prednisone,...

Since I came down with PMR 16 months ago, I’ve had a lot of other crazy issues c...

Ciar

•6 years ago

21 Replies

Just been re-diagnosed with Inflammatory Arthritis

Having joined the PMR party, with an unexpected invite in January 2017, I was eventually diagnosed in March. My CRP was 176. I was prescribed Pred, which was...

Having joined the PMR party, with an unexpected invite in January 2017, I was ev...

Graememidsussex

•6 years ago

17 Replies

Rheumatologist appointment and confirmed disgnosis

Well, I saw my new rheumatologist today. I was so nervous but she was a delight and thorough in her exam, discussion of events leading to the referral, test...

Well, I saw my new rheumatologist today. I was so nervous but she was a delight...

vnett

•6 years ago

37 Replies

New to this forum, new to Polymialga

I have been prescribed 3 weeks of 15mg prednisone then to gradually reduce, told by my dr over the phone as NO appointments possible all diagnosis done over...

I have been prescribed 3 weeks of 15mg prednisone then to gradually reduce, told...

Rosie2018

•6 years ago

14 Replies

My "Osteoporosis" Journey

This is just copy and paste of an account I wrote to keep track of things for myself. Please note I have no medical training and I haven't checked to see if...

This is just copy and paste of an account I wrote to keep track of things for my...

HeronNS

•6 years ago

169 Replies

Alendronic acid, is it a tablet too far for me.

Hi everyone I have been taking Alendronic acid once a week for about 5 months now. I take steroids as i have PMR and my GP has insisted i need this weekly...

Hi everyone I have been taking Alendronic acid once a week for about 5 months no...

Jud666

•6 years ago

40 Replies

ESR and CRP

Has anyone experienced a rise in CRP and ESR due to stress? Mine have both risen within the past 3 weeks and I am wondering if it was due to anxiety.

Has anyone experienced a rise in CRP and ESR due to stress? Mine have both ri...

Maur1

•6 years ago

13 Replies

PMR diagnosis

Having had PMR for just over two years and all its attendant problems. Talking to a friend whose been suffering PMR type symptoms for over a year and being...

Having had PMR for just over two years and all its attendant problems. Talking t...

Jean56

•6 years ago

15 Replies

Alternatives to Alendronate?

Hi, I wrote a few months ago and received very helpful advice from you, thanks. I had GCA diagnosed in September. I had my first review from the rheumatologist...

Hi, I wrote a few months ago and received very helpful advice from you, thanks. ...

jennifer15

•6 years ago

36 Replies

Painful thighs update

Thank you ladies for your advice last week on my painful thighs. I upped the pred from 5mg to 10mg five days ago. There has been minimal improvement and I...

Thank you ladies for your advice last week on my painful thighs. I upped the pre...

Zhenya

•6 years ago

11 Replies

Painful thighs update

Thank you ladies for your advice last week on my painful thighs. I upped the pred from 5mg to 10mg five days ago. There has been minimal improvement and I...

Thank you ladies for your advice last week on my painful thighs. I upped the pre...

Zhenya

•6 years ago

8 Replies

0.5?

Hi All, I was told yesterday at the pharmacy that prednisolone 0.5 doesn’t exist in the UK... is this right?

Hi All, I was told yesterday at the pharmacy that prednisolone 0.5 doesn’t exist...

ClaudeV

•6 years ago

9 Replies

Actemra Update

Things were going so well with the Actemra. A headache one day a week I was handling. Why have things gone so wrong????? I have been back on preds for the...

Things were going so well with the Actemra. A headache one day a week I was han...

shazstep

•6 years ago

18 Replies

Side effects of prednisone?

Hi my name is Richard from Kingston Canada. I'm 58 years of age and had double bypass surgery approximately 14 years ago. I've been monitoring the site since...

Hi my name is Richard from Kingston Canada. I'm 58 years of age and had double ...

Hartmare

•6 years ago

5 Replies

For the moment, Prednisone free!

The latest update on my Mom. She is a week of being Prednisone Free. THAT was one very long taper ( 1 year, 8 months ) which was very close to her Doctors...

The latest update on my Mom. She is a week of being Prednisone Free. THAT was on...

Joyismami

•6 years ago

23 Replies

Fibro and PMR

Can it be true. My new Rhuemetologist As soon as he came into the room he touched all the fibro hot spots and said I now have fibromyalgia. If he had gone...

Can it be true. My new Rhuemetologist As soon as he came into the room he touche...

Hidden

•6 years ago

15 Replies

Reducing Pred and awful itching rash developed...

My husband has GCA but all seems to be going well and has been doing the very slow reduction process successfully. He is down to 3mg now then 4 weeks ago...

My husband has GCA but all seems to be going well and has been doing the very sl...

essujay

•6 years ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

Compression sox

Salumibab

Actemra

Interesting TV Documentary Last Night

Sarcoidosis

Tapering, pain!

osteoporosis

"Rockin my Rolser!"

Update!

Any local people want to meet up

Medical breakthroughs for MS one woman’s story.

Why do I feel so terrible. Be...

OH HAPPY DAY.....ESCAPISM....END LANSOPRAZOLE...

Is there a list of PMR/GCA comorbidities?

Just been re-diagnosed with Inflammatory Arthritis

Rheumatologist appointment and confirmed disgnosis

New to this forum, new to Polymialga

My "Osteoporosis" Journey

Alendronic acid, is it a tablet too far for me.

ESR and CRP

PMR diagnosis

Alternatives to Alendronate?

Painful thighs update

Painful thighs update

0.5?

Actemra Update

Side effects of prednisone?

For the moment, Prednisone free!

Fibro and PMR

Reducing Pred and awful itching rash developed...

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive