Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for September 2017

Lost my mojo!

Could you experts clarify something for me? All the info on PMR describe the symptoms as being pain and stiffness in shoulder and hip area, always bilateral....

Could you experts clarify something for me? All the info on PMR describe the sym...

Hirwaen

•7 years ago

25 Replies

A BIT OF A RANT

I am so amazed at friends and family and the comments I get. Without wanting to moan continuously about the pain and fatigue I feel they just do not get it....

I am so amazed at friends and family and the comments I get. Without wanting to ...

Cheshy72

•7 years ago

45 Replies

Tapering Advice

Tapered from 25 to 20 mg in 5 weeks. Now the rheumatologist wants me to decrease 2mg per week so I get to 10mg by the end of October. Should I even attempt...

Tapered from 25 to 20 mg in 5 weeks. Now the rheumatologist wants me to decrease...

Sandy1947

•7 years ago

39 Replies

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Fingers crossed, I'm fine so far

Hello As a newbie, I'll relate my journey to date. I can't recall any stress or viruses, but I had worsening symptoms of runny eyes, jaw/ear ache, sore neck...

Hello As a newbie, I'll relate my journey to date. I can't recall any stress or...

-xtine

•7 years ago

6 Replies

Don't fall down!

We're not over-keen on the title of 'Older People's Day' on 1 October. But to be honest we can't think of anything better! But we do like this video, produced...

We're not over-keen on the title of 'Older People's Day' on 1 October. But to be...

Polywotsit

PMRGCAuk team member•7 years ago

6 Replies

PMR and MTHFR Gene Mutation

Hi, are there others out there that have PMR and have had their DNA tested? I find I have the MTHFR gene mutation which can cause immune disorders.

Hi, are there others out there that have PMR and have had their DNA tested? I f...

Robinre

•7 years ago

14 Replies

Low starter doses

Came down to 5mg of preds this last month..was doing ok, then symptom started coming back ie. pains in the head neck and jaw and arms so Dr. has put me back...

Came down to 5mg of preds this last month..was doing ok, then symptom started co...

camerashy

•7 years ago

8 Replies

More seizures!!

Hi all thought i would bring you up to date as not posted for a while. After having a seizure in feb I was told it could be a one off, no such luck as had...

Hi all thought i would bring you up to date as not posted for a while. After hav...

jlyndauk2002

•7 years ago

2 Replies

Rheumy appointment at last.

I went to my Dr 2 weeks ago about my Sciatica and mentioned that I hadn't had another appointment with my Rheumy since I saw her last October. I was supposed...

I went to my Dr 2 weeks ago about my Sciatica and mentioned that I hadn't had an...

Marcy47

•7 years ago

2 Replies

Alendronic Acid Help please

Hello :) I had my Dexa result yesterday it seems I have Osteopenia, my rheumatologist tried to persuade me to take Alendronic Acid after recently reading the...

Hello :) I had my Dexa result yesterday it seems I have Osteopenia, my rheumatol...

suszannah

•7 years ago

11 Replies

PMR and Lypo-Spheric Vitamin C

Hi All, has anyone had any experience in taking Lypo-Spheric Vitamin C to help with PMR symptoms; all comments appreciated. John

Hi All, has anyone had any experience in taking Lypo-Spheric Vitamin C to help w...

hiandri

•7 years ago

9 Replies

Hip and thigh pains.

Hi everyone here,Im glad to be part of this great Community.I have been having pains in my hips for few weeks now.Have tried many medications like pain killers...

Hi everyone here,Im glad to be part of this great Community.I have been having p...

Olapeter

•7 years ago

6 Replies

Doctors Can Be Good (2)

Hello All I read with envy of those people who have a GP or Rheumatologist who understands PMR and the sometimes necessary convoluted journey on steroids. I...

Hello All I read with envy of those people who have a GP or Rheumatologist who ...

ValFF53

•7 years ago

6 Replies

Now teetering on Diabetes Type 2

Well here I am in my little cabin by the mountains! Only 5 days before we move on the friends and then home but this will do for a nice break. I saw Dr before...

Well here I am in my little cabin by the mountains! Only 5 days before we move o...

IdasMum

•7 years ago

5 Replies

APPOINTMENT WITH RHEUMATOLOGIST

Hi All, Have been back to Doctor this morning and have an appointment with a Rheumatologist on the 18th Oct. I have been resisting this but have come to my...

Hi All, Have been back to Doctor this morning and have an appointment with a Rhe...

Cheshy72

•7 years ago

10 Replies

Flat after Rheumy today

I saw a Rheumy Reg today for the first time since I started reducing from 40mg for GCA six months ago. He was warm and polite and let me do the talking. I...

I saw a Rheumy Reg today for the first time since I started reducing from 40mg f...

SnazzyD

•7 years ago

24 Replies

The Lighter Side of PMR: BREAKING NEWS! - Fake PMR ‘Aunty’ Scam Exposed. Special Report from Our Intrepid Reporter, Tony French ;-)

Dear You Lot - The Secret is OUT! In an ever-confusing world of Fake News and Scams of all kinds, I can now reveal an Exclusive Story from my close friend...

Dear You Lot - The Secret is OUT! In an ever-confusing world of Fake News and...

markbenjamin57

•7 years ago

73 Replies

Introducing myself!

Hi! l think this website is awesome and of great help and support. I live just south of Ottawa, Ontario. I'm retired and live with my husband and our two...

Hi! l think this website is awesome and of great help and support. I live just s...

Dianeka

•7 years ago

7 Replies

pmr and chest pain

Hi! I was trying to keep my prednisone as low as possible and was taking only 5mg. I started to take it at night instead of the morning since I was so stiff...

Hi! I was trying to keep my prednisone as low as possible and was taking only 5m...

Dianeka

•7 years ago

9 Replies

7 Days Post Hip Op

Well I finally feel better!!! Flare up day 4 with the PMR. Managing that with Pred. Last Friday I had horrible thoughts of living in pain and being totally...

Well I finally feel better!!! Flare up day 4 with the PMR. Managing that with Pr...

Estellemac

•7 years ago

15 Replies

PMR, high temp and altitude

Hi Folks I could do with some advice please. Diagnosed withPMR in March 2017. Now on 6 mg of pred since Sept. all going well. On holiday in Johannesburg at mo....

Hi Folks I could do with some advice please. Diagnosed withPMR in March 2017. No...

Jan200

•7 years ago

6 Replies

'All in the Mind' - does this ring any Bells?! - BBC Radio programme on Chronic Fatigue Syndrome (M.E.)

Greetings All On the Serious side (for once!): I tuned in to a fascinating edition of BBC Radio 4's 'You and Yours' programme this morning (26 September 2017)...

Greetings All On the Serious side (for once!): I tuned in to a fascinating editi...

markbenjamin57

•7 years ago

47 Replies

So Tired

About to have a hot chocolate and hit the couch (again). Been getting mucked around, Dr talked to hospital to organise the 2nd temporal artery bypass on the...

About to have a hot chocolate and hit the couch (again). Been getting mucked aro...

Rowboat

•7 years ago

8 Replies

Marijke Foundation : News.

The foundation has issued the following: 1) a filmclip on YouTube: link: https://youtu.be/Eb6gTlycEj0 2) the e-book versions of our book 'A Matter of Time'...

The foundation has issued the following: 1) a filmclip on YouTube: link: https...

jinasc

•7 years ago

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New research to set up a Biobank focusing on autoimmune inflammatory diseases

https://www.gla.ac.uk/news/headline_550441_en.html This has just been posted on the VasculitisUK forum and I though people would be interested to read it. It...

https://www.gla.ac.uk/news/headline_550441_en.html This has just been posted on ...

PMRpro

Ambassador•7 years ago

8 Replies

Research subjects for GCA and ears needed!

It has been mentioned before but I'm doing it again. It's easy, I just did my questionnaire that came in the post and it took 5 mins maximum. I don't know if...

It has been mentioned before but I'm doing it again. It's easy, I just did my qu...

SnazzyD

•7 years ago

15 Replies

Symptoms post PMR ? Connected to PMR

I had PMR for about 6 years and have been off pred for about a year and a half. I still ache all over in bed at night with burning hands and feet and have...

I had PMR for about 6 years and have been off pred for about a year and a half. ...

Bettyflup44

•7 years ago

10 Replies

2am steroids

Hi everyone, I took my Pred at 2am last night, was grumpy and cross preparing a cup of tea and steroids at that time, however, I got back to sleep quite...

Hi everyone, I took my Pred at 2am last night, was grumpy and cross preparing a...

Suedeshayes

•7 years ago

26 Replies

Reminder

The

30048

•7 years ago

5 Replies

Anyone here try a nutritionist?

Hi everyone, my lovely sister wants me to see a nutritionist to try and figure out what's causing the inflammation in the first place with pmr. Has anyone had...

Hi everyone, my lovely sister wants me to see a nutritionist to try and figure o...

Allsgrandso

•7 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2017

Lost my mojo!

A BIT OF A RANT

Tapering Advice

Fingers crossed, I'm fine so far

Don't fall down!

PMR and MTHFR Gene Mutation

Low starter doses

More seizures!!

Rheumy appointment at last.

Alendronic Acid Help please

PMR and Lypo-Spheric Vitamin C

Hip and thigh pains.

Doctors Can Be Good (2)

Now teetering on Diabetes Type 2

APPOINTMENT WITH RHEUMATOLOGIST

Flat after Rheumy today

The Lighter Side of PMR: BREAKING NEWS! - Fake PMR ‘Aunty’ Scam Exposed. Special Report from Our Intrepid Reporter, Tony French ;-)

Introducing myself!

pmr and chest pain

7 Days Post Hip Op

PMR, high temp and altitude

'All in the Mind' - does this ring any Bells?! - BBC Radio programme on Chronic Fatigue Syndrome (M.E.)

So Tired

Marijke Foundation : News.

New research to set up a Biobank focusing on autoimmune inflammatory diseases

Research subjects for GCA and ears needed!

Symptoms post PMR ? Connected to PMR

2am steroids

Reminder

Anyone here try a nutritionist?

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