Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2017

Taper Update

Hi everyone ! Just a quick update. I'm feeling great these days. I successfully tapered to 6MGs (dropped 1/2mg) and have continued my weekly Actemra shots....

Hi everyone ! Just a quick update. I'm feeling great these days. I successfully...

Marie1479

•7 years ago

15 Replies

Is anybody totally pain free with PMR

I've had PMR for two and a half years now. I managed to reduce to 2/3 alternate days and didn't feel too bad. I then had a sudden and quite severe flare last...

I've had PMR for two and a half years now. I managed to reduce to 2/3 alternate ...

Hidden

•7 years ago

28 Replies

Should I switch from Prednisolone to Methotrexate?

I am currently on Prednisolone for GCA and have reduced to 4mg/day. However I am struggling to reduce any further. My Rheumatologist has suggested that I...

I am currently on Prednisolone for GCA and have reduced to 4mg/day. However I a...

sajh

•7 years ago

3 Replies

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Flu Jabs

Hi My GP surgery has recommended that I have a flu jab. I had one many many years ago and felt quite ill after it so a bit anxious about having one. However,...

Hi My GP surgery has recommended that I have a flu jab. I had one many many year...

Mitziecat

•7 years ago

6 Replies

GCA 1st timer posting.

Hi Everybody I've been lurking on these boards for a few months and decided it was time to post. Firstly, can I thank every one who offers their...

Hi Everybody I've been lurking on these boards for a few months and decided it w...

mrstrestle

•7 years ago

14 Replies

Coventry Meet Up

Just a reminder to all GCA/PMR patients in the Coventry area that our next Meet Up is on Friday 29th September at the Holiday Inn, Coventry (right next to the...

Just a reminder to all GCA/PMR patients in the Coventry area that our next Meet ...

Charlie1boy

•7 years ago

1 Reply

starting line first post

hi my name is barry like many of you this would be the last place i would want join but boy im glad i joined now ive been a member since june 2017 but think i...

hi my name is barry like many of you this would be the last place i would want j...

coldinghambaz59

•7 years ago

20 Replies

~Rampant tendinitis & scaley looking skin anyone?~

Hi team of helpful supporters: - in looking over some of my old threads I note my complaint of tendon and ligament issues. Swollen ankles, mainly the R which...

Hi team of helpful supporters: - in looking over some of my old threads I note m...

Megams

•7 years ago

5 Replies

Doctors CAN be good !

I was both horrified and tickled by Markbenjamin's experiences with his GP (that is - horrified by your experience and tickled by your letter template, Mark)....

I was both horrified and tickled by Markbenjamin's experiences with his GP (that...

Hidden

•7 years ago

27 Replies

PMR Pain or Return of 'Old Aches & Pains'

Hi When tapering Pred, how do we distinguish between PMR Pain or old pains returning . Allymac

Hi When tapering Pred, how do we distinguish between PMR Pain or old pains retu...

ALLYMAC88

•7 years ago

3 Replies

Pain on reducing pred- normal transition?

Hi Newly diagnosed and just gone from 15-12.5 after 3 weeks. Woken up with the shoulder pain again. Is it normal and then settles down again or should I call...

Hi Newly diagnosed and just gone from 15-12.5 after 3 weeks. Woken up with the s...

Jude101

•7 years ago

3 Replies

Flare

Hi, has anybody had a flare after total hip replacement surgery? Had been down to 1mg pred before surgery 9 weeks ago and was making excellent...

Hi, has anybody had a flare after total hip replacement surgery? Had been down t...

September17

•7 years ago

2 Replies

Still very unsure

Still not sure if I ever had pmra 😱 As people I talk to all had bad symptoms Through the day. With me as I can remember it was just waking up felling...

Still not sure if I ever had pmra 😱 As people I talk to all had bad symptoms ...

Rocketronzy

•7 years ago

3 Replies

Coming down.

Hey all, not posted for a while, now to 5mgs a day, took the slow method. 6 a day for 1 day, next day 5 . Hopefully get to 4mgs. Just having really bad...

Hey all, not posted for a while, now to 5mgs a day, took the slow method. 6 a da...

morrison

•7 years ago

2 Replies

Nearly off steroids...

Hi, Getting a bit panicky maybe! I've read a lot of your good advice on here but have never felt the need to seek it for myself til now. Last August I went my...

Hi, Getting a bit panicky maybe! I've read a lot of your good advice on here but...

monkeay

•7 years ago

11 Replies

A newby to this community

Hi everyone. I was diagnosed with PMR a couple of months ago. I'd never heard of this painful affliction before and was surprised that something so painful...

Hi everyone. I was diagnosed with PMR a couple of months ago. I'd never heard of...

marciahiatt

•7 years ago

10 Replies

New Intense muscular pain in hip/thigh. Have GCA diagnosis. Reaction to medication? Start of PMR? Flare up of Fibromyalgia? Something else?

Hello, I'm new here So pleased to have found this forum. Was diagnosed with GCA in July, quite quickly, and started on 40mg pred right away. Had all the...

Hello, I'm new here So pleased to have found this forum. Was diagnosed with GC...

GrannyReid

•7 years ago

13 Replies

Prednisone doses

Hi. I was wondering if it is considered to take the 15 mg of prednisone as 3 separate doses throughout the day/night instead of taking them all as one complete...

Hi. I was wondering if it is considered to take the 15 mg of prednisone as 3 sep...

Suedeshayes

•7 years ago

14 Replies

NO SURGERY YET !!

Hi all, good news , surgeon going to give me regular checks on my heart valve until near future when he puts in another heart valve !!! Phew I am so pleased...

Hi all, good news , surgeon going to give me regular checks on my heart valve un...

Margaret1951

•7 years ago

18 Replies

Need some help

I updated my bio and hit save but it doesn't show again.Did I do something wrong? I thought it would show to the community.I thought if there was anyone in my...

I updated my bio and hit save but it doesn't show again.Did I do something wrong...

Baileyw06

•7 years ago

17 Replies

Flare, increase dose?

I will try to be brief. First symptoms appeared Nov 2015 Pain and stiffness in muscles at the top of arms spreading into my neck. March 2016, finally doctor...

I will try to be brief. First symptoms appeared Nov 2015 Pain and stiffness in m...

Jean56

•7 years ago

13 Replies

GCA

On my third flare of GCA and wondering if I should stay on low dose of Prednisone when I taper down this time. How low can I go?

On my third flare of GCA and wondering if I should stay on low dose of Prednison...

lynnmcd

•7 years ago

3 Replies

This made me chuckle so thought I would share

This is how I feel. Great similarities in the proportions too!

JulieR2

•7 years ago

13 Replies

At Wits End

Hi everyone,. I have been experiencing shocking pain in my shoulders and arms for about 3 months. It seems to be PMR so I was horrified after 2 blood tests...

Hi everyone,. I have been experiencing shocking pain in my shoulders and arms fo...

Cheshy72

•7 years ago

4 Replies

Question?

I am having drenching night sweats. Is it because my GCA/TA inflammation is still uncontrolled or is it the 65mg of pred I am on?

I am having drenching night sweats. Is it because my GCA/TA inflammation is stil...

Rowboat

•7 years ago

5 Replies

Flu vaccine?

Is it okay to have a flu jab while on prednisone? Just diagnosed last Weds started on meds @20mg daily on Thursday and already getting some relief.

Is it okay to have a flu jab while on prednisone? Just diagnosed last Weds start...

Diane53

•7 years ago

7 Replies

Tapering

I have been on 10mg Pred for a good month now and am supposed to start tapering by 1mg per 3 or 4 weeks but cannot remember the best way that members...

I have been on 10mg Pred for a good month now and am supposed to start tapering ...

kathleen18

•7 years ago

17 Replies

Hi my name clavel

I have a fatty liver and want help what to eat for a fatty liver

phyllisskoe

•7 years ago

1 Reply

Advice please

Am 6 weeks in and still on 15pred daily , GP appointment on weds and I know he wants to reduce but not by how much , my problem in still very stiff in the...

Am 6 weeks in and still on 15pred daily , GP appointment on weds and I know he w...

Rosbud

•7 years ago

7 Replies

Tapering from 9 mg

I've been on 9 mg for about 2 1/2 weeks now. My neck is stiff in the morning, but after I take my Pred, after an hour or so, I'm fine for the rest of the day....

I've been on 9 mg for about 2 1/2 weeks now. My neck is stiff in the morning, b...

RheaV

•7 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2017

Taper Update

Is anybody totally pain free with PMR

Should I switch from Prednisolone to Methotrexate?

Flu Jabs

GCA 1st timer posting.

Coventry Meet Up

starting line first post

~Rampant tendinitis & scaley looking skin anyone?~

Doctors CAN be good !

PMR Pain or Return of 'Old Aches & Pains'

Pain on reducing pred- normal transition?

Flare

Still very unsure

Coming down.

Nearly off steroids...

A newby to this community

New Intense muscular pain in hip/thigh. Have GCA diagnosis. Reaction to medication? Start of PMR? Flare up of Fibromyalgia? Something else?

Prednisone doses

NO SURGERY YET !!

Need some help

Flare, increase dose?

GCA

This made me chuckle so thought I would share

At Wits End

Question?

Flu vaccine?

Tapering

Hi my name clavel

Advice please

Tapering from 9 mg

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