Hi! I was trying to keep my prednisone as low as possible and was taking only 5mg. I started to take it at night instead of the morning since I was so stiff each morning. I started having a constant dull ache mid chest and on the right side of the back of my chest for two days. I increased the dose to 7.5 mg and am now taking it at noon. The chest pain is gone. I'm still a bit stiff but will see how things go before possibly increasing the dose. It took at least a year for my doctor to diagnose my pmr and I started on prednisone only last April. I don't know if anyone else has had this experience. I complained to my doctor about the symptoms and she didn't seem to take me seriously. I couldn't get another doctor(Ontario)because they won't take you if you already have a doctor. I'm on synthroid for hypothyroidism and, also, I was so ill with what I now know is pmr that I was afraid to fire my doctor and be without one. I missed my Fla vacation because I couldn't even get into the car without help and hadn't left the house by myself in over 2 months .At wits end and very scared I asked my husband to come in the room with me this time so maybe my doctor would take me seriously. The nurse saw my husband lift me to a standing position from the chair in the waiting room and watched me shuffle to the doctor's room. I told the nurse that I didn't think my doctor realized how ill I was. She then came in the room with my husband and me and typed all my symptoms on my doctors laptop. Later when my doctor came in, saw my husband lift me out of the chair so I could show her how badly I walked she offered me a diagnosis. She offered me prescriptions for pain and anxiety as well as a psychiatrist who would come to my home. I refused all and told her it wasn't in my head and that there was something seriously wrong with me physically. She then told me we didn't have a good patient/doctor trust and that I could no longer be her patient. When I left, the nurse helped me on the stair lift with my purse strap around my neck so I could go down the stairs of the building. I told her what the doctor said. She was shocked. By the time we got home there was a message on my phone to go for blood work. I assume the nurse talked to my doctor and she had a change of heart. I was called back to her office and diagnosed with pmr since my sed rate was elevated. In hindsight, at the beginning when my doctor wasn't helping me I should have just gone to the hospital and asked for help. I missed my vacation and thought I might die because of my doctor helping me.
I hope other people don't go through what I did.
PMR question with up coming MRI
HYPOTHYROIDISM and PMR
Chest pain
Follow up from yesterday's post on PMR and lumbar spine pain
PMR - update on doctor call
