Seizure : Been on pred for PMR for almost 12months... - PMRGCAuk

PMRGCAuk

21,324 members40,434 posts

Seizure

jlyndauk2002 profile image
9 Replies

Been on pred for PMR for almost 12months and been doing fine and reducing slowly, down to 12mg from 20 last march. I have also recently started taking A.A under protest! On Saturday early morn around 4am my husband had to call an ambulance as he thought I was having a fit! all I remember is the paramedics trying to get me to come round! Went to A&E and had blood tests, chest Xray and then an MRI scan but they found nothing so finally sent me home. Wondering if anyone else has had a similar experience as was very frightening! The hospital said it could just be a one off. Still feel a bit weak and wobbly and ache in shoulders. Cheers Jenny :)

Written by
jlyndauk2002 profile image
jlyndauk2002
To view profiles and participate in discussions please or .
Read more about...
9 Replies

Oh jlyndauk2002 how frightening for you, hope nothing like that happens again.

Best Wishes 💐

Mrs N x

jlyndauk2002 profile image
jlyndauk2002 in reply to

Thank you MrsNails,it was very frightening fingers crossed it was a one off! Jenny x

SheffieldJane profile image
SheffieldJane

Oh poor you ! How terrifying and then to have no explanation or way to avoid it happening again. However, they have tested you for the nasties, so there is a bit of relief there.

Your most recent change in meds. Is AA. Could it have been a bizarre side effect of this drug? Perhaps you could talk to a Pharmacist?

And sometimes these things come out of the blue just like PMR and GCA. Keep a careful note of any new symptoms.

Best wishes and hope that it was a one off, just one of life's mysteries.

jlyndauk2002 profile image
jlyndauk2002

Thank you I will certainly be checking up on my medication. Jenny x

Bittebitt profile image
Bittebitt

I had one seizure a year ago. Had been through a very tough period Was diagnosed with PMR october 2016, but symptoms had started 4-5 months earlier. In addition to PMR, I also had been tested for a blood cancer type, which turned out to be chronic myelomonocytic leukaemia , a very rare condition which has a tendency to trigger autoimmune disorders as a feature. (It's very rare, about 3/100000, so no need to fear that you have got it). It also gave me Immune thrombocytopenia. All this made me very exhausted. Seizures can happen to everybody if the conditions are "right". I was thoroughly tested for epilepsy, and I've been decleared free from it. I had to return my driving licence (I live in Norway), but I got it back after 7 months. The neurologist wrote in my medical journal that Prednisolone may provoke seizures in some patients. I don't think that was why it happened to me. Three weeks ago, my dosis was raised from 8,75mg daily for PMR to 100mg daily for one week in order to controll the immune thrombocytopenia. Fortunately, I have tapered down to 40mg now. To make a long story short, it is very possible that you have suffered a once in a lifetime seizure👍

jlyndauk2002 profile image
jlyndauk2002

Bittebitt I hope you are right and it is a one off! I hope you continue to taper and keep well. All the best. Jenny :)

HeronNS profile image
HeronNS

I'd look at the AA first, especially if this has never happened to you before.

ehealthme.com/ds/alendronic...

jlyndauk2002 profile image
jlyndauk2002

Thanks HeronNS I will be discussing this with my doc when I get to see him. Only been on the AA for a month! Cheers Jenny :)

Cinka profile image
Cinka

Hope all goes well for you. Take care 😊

Not what you're looking for?

You may also like...

PMR or Not PMR Who Knows ? Especially when your specialist goes on a sabbatical for 12 months.

Hi to all. some of you in the past may have seen some of my posts about whats been happening so...
Bell4796 profile image

First Rheumy Appointment......PLUS Surgery

Hi everyone :) I have been a bit busy with appointments and today a Rheumatologist appointment was...

Was I lucky today to have PMR?

I was in the garden with my husband this morning intending to do some cutting back around one of...

Interesting 24 hours

Since starting steroids for GCA I've had erratic heartbeat and also tachycardia which was lasting...
Rjw2014 profile image

Worry of Adrenal function

I don’t know whether anyone knows anything about the adrenal function but I’m quite worried. I have...
Suffolklady profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.