Some media coverage of GCA for reference - PMRGCAuk

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Some media coverage of GCA for reference

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18 Replies

Definitely one to get a copy of to show to sceptical doctors!

dailymail.co.uk/health/arti...

Cracking pictures Madam!!!! Hiding your light under a bushel ;-)

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18 Replies
polkadotcom profile image
polkadotcom

Is it an old article? Most of the comments on there are dated a year ago.

PMRpro profile image
PMRproAmbassador in reply topolkadotcom

Yes - 2015, But given some of the current threads it bears repeating.

piglette profile image
piglette in reply topolkadotcom

It was published in May 2015. I do vaguely remember seeing it.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topiglette

So do I!

Pleased to say I've lost a bit of weight since then, strange they didn't contact me for an update!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Not new stuff - just something that came up in response to some of the threads I've been dealing with recently! Something to take a copy of to some doctors - and even rheumatologists it seems since someone has been told she's too young for GCA and it would only be considered if she were over 65, that there is NO disease that causes loss of sight and flashing lights and her headaches are just headaches at her age!

Celtic profile image
CelticPMRGCAuk volunteer in reply toDorsetLady

Wow! Lovely pics. I remember reading that article long ago but at the time didn't realise it was one and the same lovely person who gives so much to this forum.xx

Doralouise77 profile image
Doralouise77 in reply toDorsetLady

I'm curious as to how the article came about.....who contacted who.....

Cheers

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toDoralouise77

Kate put out a post asking if anyone with GCA and sight loss would be prepared to talk to Daily Mail for an article. See "Are you under 70 and suffered sight loss from GCA" 2 years ago. Muggins put her hand up! Did interview over phone, followed up by photo session!

piglette profile image
piglette

Ah, not in the NHS's gift to deliver. What on earth does that mean? I thought the H in NHS stood for health.

PMRpro profile image
PMRproAmbassador in reply topiglette

Probably the same as people believing the N stands for National - it seems not...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Pity they didn't contact me for an update as it's was nearly 2 years ago. Never mind, as you say any publicity is good.

Do I get royalties 🤔

piglette profile image
piglette in reply toDorsetLady

Very good photos I thought.

SheffieldJane profile image
SheffieldJane

Clear article, able to show it to OH for the penny to drop. You take a nice photo DorsetLady. I was a Civil Servant too - Higher Education policy. I find you inspiring.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSheffieldJane

Thanks.

Defence for me! Quite varied from buying armaments for submarines to running a travel office!

Brixhamhampster profile image
Brixhamhampster

Dorset lady what a lovely photo, this is the first time I have seen your picture and read the article. I am astounded that after the appalling treatment you received you have remained the wonderful person you are today. Experience like this could make many people bitter but you have retained your gentleness and empathy and continue to help all of us following you. You are an inspiration and I am quite tearful knowing what you have been through. You are an example to us all.

Jackoh profile image
Jackoh

Yes very good article - shame as you say Dorset Lady that they haven't done follow up but excellent to show to folk to help explain GCA.

podo profile image
podo

It was lovely to meet you this week Dorset Lady, you were an inspiration to my members at Salisbury pmrgcauk group.

paddyfield profile image
paddyfield

Very well written article. I've shard on Facebook under "What every G P should know"

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