I was diagnosed with GCA on April 15th and started with 60 mg pred ( no visual disturbances) and reduced to 45 when I had a flare so back on 50 mg straight away. I am worried that 50 mg for two months is quite a long time. Will it make it harder to reduce. I am still experiencing symptoms. I am also on Azatroprine 200 mg per day ( 4 tablets). I am finding it very hard to come to terms with the whole illness. I have really tried to rest the last few days as before I was my own worst enemy - doing too much. I have also not been helped by my husband who gets himself involved with numerous causes ( he is a town councillor and works from home) which mean our house is like Piccadilly Circus - coming and goings with the doorbell ringing and I just long for peace and quiet - don't sleep much at night and I cannot get enough sleep in the day - or any. I have had rows with him about this which also doesn't help as stress is bad for GCA. Today he did say he will try harder but I don't hold my breath. Sorry to moan on but I feel I need a moan. A hug would be a good thing too. Going on holiday to Cornwall on 9th July which I am worried about but looking forward to.
Many thanks to all the wonderful people who reassure you on this site.