GCA Remission: Hi everyone, I haven't posted in... - PMRGCAuk

PMRGCAuk

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GCA Remission

bert403 profile image
6 Replies

Hi everyone, I haven't posted in quite a while..Brief update, I have GCA now for 1yr and 10 mo, started at 60mg and finally down to 6mg. Doing good on 6 and hoping to get off this sometime Jan or Feb depending how things goes. Reason for writing, I just found out that my daughter in law's father had GCA and it has been 14 yrs since with no flares. He told me he started on 80mg and within 6 months he weened himself off Pred ...couldn't take the side effects. He had the temple biopsy and had GCA. I was so shocked to hear this and how he could get off so quickly. I thought I would share and therefore give hope for all of us...There is a light at the end of this tunnel. Any thoughts on how this can be in remission so quickly are welcome. Bert0403

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bert403
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30048 profile image
30048

I am speechless and that is rare for me.!! Good for him...somebody "up there" must like him.

Jankie profile image
Jankie in reply to 30048

Has anyone else noticed that it seems to be the guys that reduce more quickly than the girls ??

polkadotcom profile image
polkadotcom in reply to Jankie

Yes, it's been mentioned, certainly by me, that the guys have an easier time with PMR/GCA than the dolls. They often don't get the full on symptoms as we do, and they find it easier to reduce Pred with fewer flares. Hormonal?

raymck profile image
raymck

I made Club Zero in about 1 year, so am not too surprised, although 6 months must almost set a record? Not too sure if I rushed it just to get rid of side-effects as I still suffer aches and pains. Could be old age though as I hit 80 soon!! Hope it goes well on your final run in.

Celtic profile image
CelticPMRGCAuk volunteer

Bert, lucky lucky him! And especially lucky to have been in remission for as long as 14 years after such short-term treatment. He must have a guardian angel.

I was with a gentleman at the weekend who has just recovered from his second bout of GCA - I'm sure he would love to know the secret!

Great to hear such a success story as it does offer hope to everyone - thank you for sharing, and I hope you also continue smoothly to remission.

bert403 profile image
bert403

Thanks everyone for your replys. ..wish it was so simple for all of us...good luck to all..bert403

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