Hi wise and wonderful wizards of the wacky PMR world, requesting wisdom please!
My gut tells me I need to increase back to 5.5 pred after the last 3 days which have all been bad, and getting worse. Started with frequent internal shaking (my main clue that my PMR is not happy), and now my butt bones and outer thighs ache, lots of stiffness returning and brain fog, too.
Couple months back had a flare when trying to go way too quickly to 5 and then 4.5 (one week at 5.5, one week at 5). After getting flare under control, did 6 1/2 weeks at 5.5; then two weeks at 5, which was going well until I hit day 14, 15 and now 16. Previously, the latest I had a reaction was 9 days after a drop.
I have also been doing PT twice a week 45 minutes each, for the last 3 weeks. Nothing too strenuous, just stretching my legs out, and a few strengthening exercises for my weakened arm and hip muscles. It is really helping.
Appreciate any thoughts on sticking it out a few more days, or going back to 5.5 tomorrow and staying there several more weeks (or months).