Hi, I developed classic PMR symptoms about a year ago, but with normal blood tests it took a while for my GP to prescribe 15mg pred last October which worked immediately. Rheumy said he couldnt really help until I came off the pred to see what was going on so I tapered off from 15mg to 0 between Jan - March this year. The PMR symptoms thankfully didnt return then, so I was discharged as watch n wait. I do have other pain issues (back/ neck/headaches/migraine) and since then have settled on 40mg morphine sulphate for the back/neck pain and propranolol/ candersartan as prophylaxis for the headaches/migraines. Not great, but have been better since mid April for a long time, and on much less medication. Last week I developed incredible fatigue and progressive shoulder /arm/hip pain with some stiffness too (although not as bad as last.time). I basically slept all weekend and suspecting pmr might be returning, took 15mg pred last night and 15 mg this morning - pain / stiffness has gone and so has the fatigue. Really not sure what to do next now - maybe keep off the pred for a few days to see if the pain etc returns? I could also try a low dose 5mg to.see.if that works. GP is great but he will just refer me back to rheumy (good) but this will take.several weeks (bad). Rheumy would not want me.on pred as i have normal.bloods.
Any advice most welcome. Is fatigue/pain related to low cortisol, and is this linked to pmr in any way? Ive not.been tested for adrenal function but there is no real.suspicion for.this. my thyroid.is ok so no problems.there either.