Has anyone else had difficulty getting their symptoms diagnosed. I was booked for a TAB yesterday but when I got there the surgeon said there was no point in doing it as I have already been on 60mg daily of Pred for 4 weeks and this will have suppressed the inflammation. I saw the rheumatologist today who says he does not think I have GCA as it would be so unusual due to my age of 51. He kept saying he wished I had been referred to him when my symptoms started as he would not have started me on steroids but would have done a TAB straight away. He has given me a tapering protocol for the pred of 10mg reduction every 5 days and told me to watch for any return of symptoms. I am feeling absolutely awful on the pred. The scalp tenderness and headaches have gone but I have a horrible blocked feeling in my right ear and tinnitus like a blood pumping sound. I also have burning pain across my back, feel feverish and really spaced out. The rheumy said my heart was absolutely racing. I am on the slimming world programme and haven't lost any weight this week despite following the plan. My face has puffed up. He said that the reason I am feeling so awful will now be the side effects of the pred. I still have no answers as to why I had all the symptoms in the first place so I don't know where I go from here.
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