I last saw my Rheumy (FRCP)on the 6th & 7th July this year when I was given an injection in each of my shoulders to lessen the pain. 3 months later I received the reports of these appointments (via my GP) in which the specialist lists his actions and states "Clinic review in 3 months" lol!! It's now 4 months and no sign of a further appointment! More importantly one line of the report is " Mr H has no current symptoms of temporal arteritis nor PMR". This from someone who has injected both shoulders to relieve pain??
At the time of the appointment I was transitioning from 7mg to 6mg pred--I am now between 6mg & 5mg but find that alternate days or even 2 consecutive days at 5mg are OK but I have pain at 3 consecutive days. I intend to try again this week (3 weeks since last try).
Incidentally, I had a blood test done yesterday and GP has requested that it be repeated as sulphates were at 0.7 ( 0.8 is the acceptable minimum) and, if the result is repeated then it will be investigated further. Could this be due to adrenals not firing up yet after 2.5 years of pred??