I've had RA for 4-5 years and GCA 3+. On reducing dose of 10mg pred from 80mg. Two hip replacements in the last year, followed by bursitis in both hips, for which I'm awaiting an injection.
For about a year I've had increasing skin pain; used to start in my feet but now includes legs and arms. Most noticeable during flare but often there when I'm just over-tired. A strong burning sensation which is becoming hard to bear and only responds to 60mg morphine. Neither GP nor rheumy any idea what's causing it.
I got a referral to a neurologist, who is also not sure but thinks it may be just a symptom of RA, which will not go away. He's planning a test with electrodes on my feet (can't remember its name) but otherwise no idea for treatment.
Has anyone else experienced this, and any ideas to ease the pain?