Has anyone thought of starting compiling individual list of the start of symptoms, details of the condition flaring up and other observations that started before or after diagnosis and then treatment. Having jus been "diagnosed" with pos. PMR. (The Rheumatologist and my GP explained that there was no definitve test to prove one had PMR just that if steroid treatment helped then it was most probably PMR!) Since being told that I might have PMR I have heard of so many people who know people who have suffered with it that I wonder why the medical world know so little on how and why PMR.
By starting a PMR, CGA List Blogg perhaps it could be sent to the medical profession as a basis for research and the rest of us could compare notes. For instance, I came down with it over several months and thought at first it was an age related problem (I'm 74) but it got so bad that until two weeks ago I could hardly lift my legs, dress, or get in and out of the car! Predisnone brought me back to life within a couple of days! HOWEVER, my symptoms did not affect my arms, neck or shoulders. I was stiff from my chest down.