I've literally been diagnosed yesterday and started on 50mg pred. As it was 5pm appointment another gp is calling me in the morning to discuss seeing a specialist I'm guessing for biopsy.
I understand I'm very young to have this and indeed rocked up to emergency centre at the weekend to have it dismissed as an option as I'm too young despite having exact symptoms (excruciating temple headache, bulging arteries, extreme fatigue, night sweats). Luckily my GP is great and suggested it immediately and started on meds whilst he waited for results.
I just wonder how debilitating it is generally. And is it normal to feel pain relief after one dose of pred but be awake 9 hrs later in pain.
I've just started seeing a rheumatologist for suspected RA which seems a bizarre coincidence and was also diagnosed with interstitial cystitis earlier this year. I've had Raynauds for approx 20 years too if any of this is relevant.