Medication : I have PBC which has progressed... - PBC Foundation

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Medication

lorac profile image
3 Replies

I have PBC which has progressed to Cirrhosis. I also have Fibromyalgia along with RA Osteoporosis among lots of other Auto Imm diagnosis. Among my Meds pI take Urso and Sulfazalzaline.

My pharmacy is struggling to get these for me . I am having to phone other pharmacies to see if they have them as these meds come from abroad. I have managed to get One months supply instead of two..

apparently the Drs know about this but until you go for your repeat meds it is left to the pharmacy so by this time you are running out of meds. It might be an idea to get in touch with GP or pharmacist before your repeat meds are due.

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lorac profile image
lorac
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GillBr profile image
GillBr

Can I ask do you receive any treatment for your RA and fibromyalgia as I have both too and am struggling with a bad flare and being refused treatment as they say its not safe

Joel31 profile image
Joel31

No problems with URSO. LFT’s

Joel31 profile image
Joel31

Wasn’t finished! Have taken 750mg of URSO for over a year. LFT’s are normal now.

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