Cost of Urso

[sjt58]

Hello American PBCers! I went to the pharmacy to get my first prescription of Urso and the copay was $600.00 for a 3 month supply!! Has anyone found a less expensive way to get this needed medication? Don't get me started on the US health care system's flaws...

[4pjx__]

Yes. I get my 3 month prescription at Kroger's pharmacy. It is about $125.00 for 500mg 2x daily. I use a GoodRx coupon . Download the coupon on your phone and take it with you to the pharmacy.

Pam

[Nana4times]

The cost of prescription drugs in the states are crazy, glad to be Canadian. It cost 55$ for 1 month supply, my insurance pays most , I pay 5$ a month for my 750mg a day prescription.

[dena128]

Hi Stj58

My insurance won't pay for my script so I now go thru Good RX app. I may sometimes have to go through the BS of switching stores at times but better then paying full price. Now I get mine for no more then 50.00 a month. Good luck!! I hope it works as good as it has for me.

[periwinkle88]

Depending on your insurance coverage, if you have access to mail order prescriptions it might be cheaper. I use Caremark mail order and pay $15 for a three month supply of generic urso. I'm positive it would be higher if I purchased it at my local pharmacy. Another suggestion is to call around and ask. My son was prescribed Modafinil off-label, meaning we'd have to pay all out of pocket. The first two pharmacies I called were going to charge us around $500 for a month's supply. Then I called Costco and it was only $30 per month there—problem solved. Good luck! $200/month is outrageous.

[Michi1 in reply to periwinkle88]

Is Caremark through your insurance? I have a high deductible HSA and that would be a big help. My insurer's price (that I have to pay 100% of until I hit the deductible I never hit) is around $200/month.

[periwinkle88 in reply to Michi1]

Yes, we have a choice of local pharmacies or Caremark through our insurance. There are rules for Caremark, like you need to order a minimum number of day supply, which isn't a problem when it's a prescription you take daily. (I don't recall what the minimum is, sorry.) But Caremark has been great -- efficient and accurate.

[Cfay]

Sounds like I’m one of lucky... I only have a $20 copay for a 90 Day supply (500mg:2d)

[Gioielli5]

As I am over 60 I get mine for free although if younger would pay £8.50. Thankfully, I live in the U.K. and our glorious NHS.

[kingsnorth]

I’m also in the U.K and over 65 so don’t have to pay, we are so lucky to have a NHS

[HummingBirds1944 in reply to kingsnorth]

Do you know of any support group in Hertfordshire?

[kingsnorth in reply to HummingBirds1944]

I’m on a PBC support group just for U.K. it’s really helpful and informative I’m afraid I can’t send you a link as technology is wasted on me. Have a look on fb and you will find it. Also the PBC Foundation is worth joining

[HummingBirds1944 in reply to kingsnorth]

Thank you

[PBCRobert Partner in reply to HummingBirds1944]

Have you registered with the PBC Foundation proper as opposed to just on here? We have volunteers and local groups all over the UK.

pbcfoundation.org.uk

[Esnofla]

10$ for a 3 month supply. 750 mg a day.

[Chumito]

I’m from Chile and I pay aprox 300 us for my monthly Urso treatment. Very, extremely expensive. And I also pay about 150 us for Colestiramina. It’s crazy .

[CBCB]

I have Elixer RX as a supplement to my Medicare. URSO runs $15 for a 90 day supply. I have another prescription that runs over $950 per month. That was beyond our budget. I contacted the manufacturer directly and indicated it caused financial hardship. They asked for income verification and several forms but ended up giving me a 6 month supply at no charge. Worth looking into.

[Texasliz]

If you are in the USA, go check out The Assistance Fund. Find it at taf.org. They are non-profit and if you qualify, they pay your cost for you. They stopped carrying my Urso capsules, so I had to start paying for it myself. You will likely get free, or $10 copay with them.

[Dinasmom]

It all depends on your insurance in the US. I pay approximately 15 dollars for a 3 month supply. I wish it was more equitable.

[Alishav2003]

I only pay $3.00 for 1 month

With Medicare & Extra Help.

There is a website called Rare Diseases which may be able to offer extra help.

Best wishes

[tiscse]

Do you have insurance? I have insurance but I had to go through a different pharmacy because of my insurance. Now I get them from CVS in the mail, 3 months supply for $10.

[My-life]

Can you try RX. Com on your phone? Well Biden won.

[CKH73]

I pay about $50 a month, 1800 mg a day x 30 days.

[Kodablue]

You might try Single Care/Genius RX, $115 for 3 month supply, 900 mg a day. My insurance wanted $950. There seems to be a price difference between capsules and tablets on the Part D Medicare Plan with ElixirRX. I will be shopping a new plan!!