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Purdy2017 profile image
18 Replies

Hi there

Really struggling to loose weight lost 3 stone before I was diagnosed with pbc but really struggling eating all the right things does anyone else have that problem don't no if it's related to pbc ?

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Purdy2017 profile image
Purdy2017
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18 Replies
shared profile image
shared

working with a qualified trainer helps a lot.

Purdy2017 profile image
Purdy2017 in reply to shared

Qualified trainer ??

shared profile image
shared in reply to Purdy2017

I was lucky enough to find someone who was a kinesiologist and had a physiotherapist

degree. He is aware of PBC and knows how to find and read medical journals. We started with mobility exercises gently in Feb/19 and are now adding weight bearing exc.

I feel a lot stronger and have lost 10 lbs . This past sunday we have started running for 15 sec intervals resting in between . The mobility exercises continue along with mild core exercises. My metabolism is generally faster due to the sessions. My class is on sunday and I also go 2 to 3 times during the week. Its helped a lot . I would have quit

long ago if I didn't have a trainer as at times its painful and uncomfortable. But its getting better and I now look forward to it, I have to as Ive paid for it, Trust me when I say that my DNA is not made for exercise. Best investment ever.

Purdy2017 profile image
Purdy2017 in reply to shared

That sounds good yes I walk every day plus I go swimming three times a week which I really enjoy

Toy4dst profile image
Toy4dst in reply to shared

This is very helpful. I've gained so much weight this year and have ridiculous cravings. Will try to find a trainer ASAP. Thanks for sharing

ninjagirlwebb profile image
ninjagirlwebb

I don't think it is pbc related; weight issues are common as we age. Additionally, most of us with pbc also suffer from thyroid issues which is a known issue for difficulty in losing weight when one is hypo. My endocrinologist suggested intermittent fasting as a weight loss strategy along with eating a clean diet.

Elaine52 profile image
Elaine52

Hi

I am also struggling with weight loss. Diagnosed with PBC last Aug and started on Urso. Had lost 3st 8 lbs prior to this but cannot seem to lose any more. Spoke to doctor and she says Urso is not the culprit. I have a very active job, eat healthily and walk a lot with my dogs. I'll just have to keep trying as I really don't want to put the weight back on. I'm sure I read about weight gain and Urso a while ago on here. Good luck and hope you have success, it's good to know others share the same problems.

Toy4dst profile image
Toy4dst in reply to Elaine52

I've read that as well. I'm convinced that both my going through menopause and the urso have contributed to my 20lbs of weight since March.

periwinkle88 profile image
periwinkle88

Urso absolutely causes weight gain in some of us. I'm finding it extremely difficult to lose what I've gained from urso too.

danaLL profile image
danaLL

I have gone through the same thing and it sucks! I was already exercising quite a bit and still do, so it wasn’t that. When your liver is mucky and can’t process things away a normal person can, you can absolutely gain weight more easily and with aging it is then harder to lose it. I have recently lost 20 pounds in two months just from changing my diet. I eat very clean, But the more you lose the more your metabolism fires in your body is a little bit more forgiving. I did an immuno coming diet which tested my blood for food sensitivities, basically took everything toxic out and slowly added food back in. The first couple weeks were easy but it is well worth it with the results. I look better I feel better, I feel like my old self again . Was even able to do all of that is starting off on 40 mg of prednisone a day dropping down to 20. My itching has never been better and my numbers have never been better

Toy4dst profile image
Toy4dst in reply to danaLL

What is the test called? Immuno coming?

danaLL profile image
danaLL in reply to Toy4dst

It’s called the leap immuno calming diet. Starts with a blood test and then gives you a personalized food plan

Haking profile image
Haking

Hi, unfortunatelly urso makes you gain weight,lose hair ......It actually says it on the side effect of the drug on the packet.

Skypony profile image
Skypony

Hi Purdy2017, there’s research that observed some weight gain with Urso, but I recall that it wasn’t very substantial or ongoing. In other words, the effect may be small. I agree with the suggestion that more than one factor may be at work here. But sounds like you’re doing great with your exercise! I don’t think weight is everything, your fitness level and muscle strength matter too.

Hi Purdy, Sorry to hear you're distressed about weight. You say that you're struggling to eat the right things? Does this mean you crave sugary food? Or any other particular type of food? It is often complicated, the reasons for putting on weight and how to lose it. It sounds like you know you should be eating differently so you've solved that bit. The next stage is to decide if you want to eat differently and if so, make a plan of what you will eat instead. Make the plan that seems do-able for you. Some people can cut out added sugar immediately, some need to taper it off gradually. Choose what works for you every step of the way. Avoid worrying about it, or struggling or letting it get you down by taking the action that you choose to change the situation. Focus on getting your own way over this, because you can. Please let us know how you are doing!

Purdy2017 profile image
Purdy2017

Hi not been on here for a while just to busy can anyone help please wot foods are we supposed to avoid with pbc just lately yogurt have been giving me quite alot of tummy cramps a very windy tummy any information would be great full I eventually have an appointment to see specialist after waiting just over 2 years since first diagnosed so many things I need to find out it's a joke x

gwillistexas profile image
gwillistexas in reply to Purdy2017

G’morning. As far as foods, I feel that is determined by your dr based on your individual condition. My hepatologist has no diet restrictions on me other than no raw seafood. Hopefully your specialist will answer your questions. Good luck to you 😊

Toy4dst profile image
Toy4dst in reply to Purdy2017

Great question.

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