Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after I was found to be AMA positive. In fact, my LFTs are often in normal range too (they fluctuate a bit) although I always have the classic PBC profile of raised GGT and IgM.
I’m fortunate to be an Urso responder but I do also take very low dose prednisolone (for another AI disease) and I’ve wondered if that helps. There’s no evidence that it does in the in the literature though, I should add.
I’m aware that not all of us have slow progression, and I feel for everyone wherever they are in their journey. xx