Possible PBC?: Hello everyone! I am a 40 yr... - PBC Foundation

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Possible PBC?

Gwenhw profile image
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Hello everyone! I am a 40 yr old woman with 2 children under 5 and despite my best efforts I am freaking out a bit!

Brief background - I had Graves as a child then Hashimotos in my teens, currently on levothyroxine. About 9 years ago I had muscle aches etc and they ran some autoimmune tests and I came back positive with anti Ro, most commonly associated with Sjogrens. Just a few weeks ago I came down with an itchy bumpy rash all over my legs and arms, this has since responded to topical steroids. My GP ran a bunch of blood work and all liver, blood, renal tests came back normal but my anti ro was still weak positive and I came back with AMA m2 of 33 (normal range 0-5).

I am being referred for an ultrasound but having gone on Google I am now scared. I have read that Sjogrens patients can test positive for AMA but what I can’t understand is if it’s because they also have PBC or if Sjogrens itself can cause positive AMA?!?!?!

Does anyone have any insight into this? I would be greatly appreciative for any and all feedback.

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Gwenhw
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ninjagirlwebb profile image
ninjagirlwebb

I don’t have insights to what you are asking. However I recall that there are folks on here with positive AMA but didn’t develop pbc. Don’t panic. Get to the bottom of this by being vigilant in seeking answers from your doctors.

Once you have a definitive diagnosis, you & your doctors will come up with a plan to manage whatever it is that you have. You are going to be fine. Breathe, don’t panic, not until you have all the facts.

Haley

cazer profile image
cazer

Sorry don't know..

Know they sometimes go together..

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