PCE and teeth

[Kellybean33]

I have hd PBC for at least 5 yrs. My teeth are getting very loose. I was wondering if anyone went to a dentist and they considered it a medical condition becasue of the PBC

[Faybrey]

Good morning Kellybean33, sorry to hear your teeth are getting loose.

Since I told my dentist I had PBC and Sicca (dry eyes and mouth), he prescribes me fluoride toothpaste as I’ve an increased chance of tooth decay.

Wishing you a wonderful day 🌺 x

[tinypixie]

Hi,

I also have PBC and very dry mouth. I have to have a cleaning every three months because I accumulate a lot of plaque and my gums get inflammed. My teeth aren’t loose, though. Like Faybrey, my dentist recommends a strong fluoride toothpaste and mouthwash.

[Hidden]

Hi Kellybean - I have teeth scale and polish three monthly. Non-alcohol chlorhexidine mouth wash. Use floss that is pre-cut and has sponge-like one end and waxed the other. Its made for use with bridges but suits anyone, especially with tightly spaced teeth.

Dentists recognise medical conditions but there are limits to number of times per year (2) that they can claim payment for a scale and polish under NHS. These should be carried out as part of routine examination without additional charge. I hope this helps.

Teeth can tighten up with the right care - you may could choose to ask for referral to oral medicine specialist at your local hospital? Hope this helps

[roseter]

I too have loose teeth and gum disease. Just had my first one removed but with no help from NHS. Like you, as a medical condition it should be free of charge!

[kandiepat]

Hi to all, I can identify with all of you - only I thought it was my Sjogrens! Still, a dry mouth would do it. Im 76 and I only have 5 of my top teeth left (my 4 sisters who don't have PBC have nearly all their teeth!) so it has taken its toll no matter what you do. I have a new dentist, a young slip of a girl - and she is so caring, she told me to clean my teeth and don't rinse too well so that the floride hangs about longer. Also, my bottom front two teeth were loose and I asked her to take them out, begged! but she said I would hate a bottom denture and to hang onto them as long as possible - so she glued them to the next teeth and together! a stroke of brilliance I thought. So, I got to keep them a little longer. Talk to your dentist, they need to know you have a problem. I hope your not horrified at the end result in my case - it may help you to avert the same! Kandiepat

[KevinHall10_]

I have noticed my teeth feel different. Never thought it could be to the pbc. Just feels like my teeth are all decaing and really not. So many thing this desease is known to effect us. Hang in there.

[Jess5377]

I am 38 and my teeth are literally rotting. One just broke today. It's so embarrassing. I dont know whether to try to save my real teeth or get dentures either way ita going to cost me a fortune.

[ninjagirlwebb]

I chipped my tooth eating pita chips. Don’t think it is pbc related...just normal wear & tear. I do go to the dentist 2x a year for a cleaning. Other than that I floss & brush with a Sonicare toothbrush which is so much better than manual brushing.

[ninjagirlwebb]

I also have sealants on some of my teeth...was put it there when I was like 9-10 years old & it makes the back teeth smoother to brush.

webmd.com/oral-health/guide...

[Petaldust]

Sorry to hear this KellyBean33. Yes, I am currently nursing a very sore face following yet another root canal. I seem to have had fairly constant problems with my teeth over the last few years, and the dentist has noticed various problems with my gums which are not age related. They are mainly infections which I guess could be down to a compromised immune system. Maybe something which needs more investigating as a symptom of PBC?

Hope you get some decent support from your dentist.x

[AliceYZ]

My dentist said it is the medications causing dry mouth which leads to decay. My teeth have been fine until I was late diagnosed PBC/AIH Overlap syndrome 11/2 years ago at stage or level 3. Since I started medications I’ve had 3 cavities! Even using Biotene Dry Mouth rinse as recommended by dentist. I’m good at a dental appointment every 6 months but since cavities are forming so quickly may have to pay out of pocket for another cleaning in between. I continue to use an Oral B electric toothbrush.

I am 60 years young so wonder if age also has something to do with it?