Pbc

[Purdy2017]

Hi all

I've had pbc for 2 years no symptoms as yet just dry eyes I'm looking in to getting a tatoo is there one for pbc?

[Buddy2017]

Google PBC awareness ribbon (sorry tried to share link but it's not working for me) I'm 8 years own the line and dry eyes is my only symptom too.

[Buddy2017 in reply to Buddy2017]

opps DOWN the line

[Purdy2017 in reply to Buddy2017]

Ok thank you are take a look

[Candy12]

pbcers.org/event/awarenessd...

Never heard of one, perhaps you could design one.

[Purdy2017 in reply to Candy12]

Hi someone on here said I have to Google pbc awareness and it should come up thank you anyway

[Candy12 in reply to Purdy2017]

I put the link for you, in the above post.

[Purdy2017 in reply to Candy12]

Thank you

[Purdy2017 in reply to Candy12]

Hi candy just looked on the link it's great I suppose the new shirts will come out in September with 2019 on it's a fab site thank you

[Debbiem40]

Can I ask what symptoms you get with your dry eyes. My eyes water like crazy and I believe its because I have dry eyes. Do you have any medication for it?

I've been symptom free (apart from this) for 16 years!

[ninjagirlwebb in reply to Debbiem40]

This is good to know that you are symptom free for 16 years! I have dry eyes too. Can you get tear plugs at the ophthalmologist to resolve the dry eye issue? Or use artificial tears & eye gel for overnight to lubricate. These were what my ophthalmologist recommended for dry eyes.

[Purdy2017 in reply to Debbiem40]

Hi yes thay water all the time fill constantly dry its horrible

[Purdy2017 in reply to Purdy2017]

Thank you that helps

[Purdy2017 in reply to Debbiem40]

Hi no I don't take anything

[Purdy2017 in reply to Debbiem40]

Hi just very dry and watery I don't take anything for them it did go away but it's back

[Debbiem40]

My GP gave me some drops but to be honest they don't really make much difference. I'm so fed up of having wet eye lids!

[ninjagirlwebb in reply to Debbiem40]

There is an eye gel that you can use for overnight to lubricate as well. It is over the counter, no prescription needed.

[Purdy2017 in reply to Debbiem40]

Yes I no it's horrible having dry eyes all the time

[Debbiem40]

Oh ok thank you. I have my 6 monthly check up at the Liver clinic on monday so I'll see what they say.

[ninjagirlwebb in reply to Debbiem40]

Also ask about eye plugs which can be inserted into your tear ducts to maintain moisture. The ophthalmologist can put them in.

[Purdy2017 in reply to Debbiem40]

6 monthly check up blimey since I've been diagnosed I've had to wait 2 years still waiting for a appointment it's a joke yes thank you that would be very helpful

[Debbiem40 in reply to Purdy2017]

Really? I used to have 12 month check ups, but the last couple of years they've been monitoring me every 6, I think they think Urso isn't working, so keep trying me on different amounts etc., I'm lucky though, I'm in Birmingham so I go to the QE and they have a fabulous liver outpatients. Where do you live? How come you haven't seen anyone since diagnosis? Who diagnosed you your GP?

[Purdy2017 in reply to Debbiem40]

I lived in hayling island at the time my gp diagnosed me then I was under queen Alexandra hospital then moved living in chichester under st Richard's hospital oh that's not good I wonder why your not responding to it wot else have thay tried ?

[Debbiem40]

Well, I wasn't taking it properly, hated taking the tablets and would always throw one up and would "forget" to take it at weekends etc. Anyway, so they've put me on a liquid version, which is much easier to take. And they've upped the amount I have so I'm at the top limit that I can take.

I hope you get an appointment soon. Can your GP not refer you again?

[Purdy2017]

Well at least that's working better for you yes the gp has referred me but still waiting

[Twinkle26]

Pbc symbol is the polar bear as far as I know.

[Purdy2017]

I think it's a green ribbon when I looked but thank you