I've had pbc for 2 years no symptoms as yet just dry eyes I'm looking in to getting a tatoo is there one for pbc?
Google PBC awareness ribbon (sorry tried to share link but it's not working for me) I'm 8 years own the line and dry eyes is my only symptom too.
opps DOWN the line
Ok thank you are take a look
Never heard of one, perhaps you could design one.
Hi someone on here said I have to Google pbc awareness and it should come up thank you anyway
I put the link for you, in the above post.
Hi candy just looked on the link it's great I suppose the new shirts will come out in September with 2019 on it's a fab site thank you
Can I ask what symptoms you get with your dry eyes. My eyes water like crazy and I believe its because I have dry eyes. Do you have any medication for it?
I've been symptom free (apart from this) for 16 years!
This is good to know that you are symptom free for 16 years! I have dry eyes too. Can you get tear plugs at the ophthalmologist to resolve the dry eye issue? Or use artificial tears & eye gel for overnight to lubricate. These were what my ophthalmologist recommended for dry eyes.
Hi yes thay water all the time fill constantly dry its horrible
Thank you that helps
Hi no I don't take anything
Hi just very dry and watery I don't take anything for them it did go away but it's back
My GP gave me some drops but to be honest they don't really make much difference. I'm so fed up of having wet eye lids!
There is an eye gel that you can use for overnight to lubricate as well. It is over the counter, no prescription needed.
Yes I no it's horrible having dry eyes all the time
Oh ok thank you. I have my 6 monthly check up at the Liver clinic on monday so I'll see what they say.
Also ask about eye plugs which can be inserted into your tear ducts to maintain moisture. The ophthalmologist can put them in.
6 monthly check up blimey since I've been diagnosed I've had to wait 2 years still waiting for a appointment it's a joke yes thank you that would be very helpful
Really? I used to have 12 month check ups, but the last couple of years they've been monitoring me every 6, I think they think Urso isn't working, so keep trying me on different amounts etc., I'm lucky though, I'm in Birmingham so I go to the QE and they have a fabulous liver outpatients. Where do you live? How come you haven't seen anyone since diagnosis? Who diagnosed you your GP?
I lived in hayling island at the time my gp diagnosed me then I was under queen Alexandra hospital then moved living in chichester under st Richard's hospital oh that's not good I wonder why your not responding to it wot else have thay tried ?
Well, I wasn't taking it properly, hated taking the tablets and would always throw one up and would "forget" to take it at weekends etc. Anyway, so they've put me on a liquid version, which is much easier to take. And they've upped the amount I have so I'm at the top limit that I can take.
I hope you get an appointment soon. Can your GP not refer you again?
Well at least that's working better for you yes the gp has referred me but still waiting
Pbc symbol is the polar bear as far as I know.
I think it's a green ribbon when I looked but thank you
elevated in 2013 for the first time Just recently diagnosed with pbc
I have pbc and suffering with terrible itching, has anyone come across treatment there reduces this symptoms...
told by my doctor i have pbc i have been sent for fibroscan I have no symptoms but i am worried
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