PBC and living kidney donor possibility

[liverb]

I offered to be a living kidney donor for my sister who is in end-stage renal failure. Determined to be perfect match, underwent ALL tests and cleared until pre-op results showed high ALP. No symptoms except the high blood levels and sent for a liver biopsy. Biopsy showed bilary tract injury with scattered non-necrotizing granulomas. Findings were non-specific but compatible with PBC. Consequently given a diagnosis of PBC, Stage 1 and denied ability to donate.

Does anyone have legitimate, responsible information regarding the possibility of still being a donor? Donation center with flexible parameters?

[Hidden]

I'm sorry to read this. It really is a difficult time for all involved. I'm sorry that I don't know the answers to your questions. I do sympathise with your frustration that you have come through the decision to give a life-saving kidney to your sister only to be told that it can't happen. I hope that you find a solution or peace with the current decision. Please don't let this overshadow the great love you have shown and share with your sister. Best wishes, love, and prayers to you both.

[ENuk]

I am so sorry to hear about your sister. My sister in law had a kidney transplant last week, from her family, so I know what you must be going through.

They are very keen to ensure the donor is not at any risk so I suspect that the criteria for donors is stringent in all hospitals.

It must be a shock for you, dealing with your sister and now the news on PBC. I imagine that you will you will be prescribed Urso. It has been very effective at slowing down the effects of PBC on my case but has taken months.

I wish you and your sister well and hope that an alternative donor is quickly found.