Just need to understand

[Hntina]

I was diagnosed last year and told I had had it for seven years I had been in hospital when I came out my GP phoned me at home and told me what medication I needed

Are you later I haven't sent seen her since she didn't even explain to me what the I'llness I have joined groups etc I live alone I sleep for days I take panic attacks which means sometimes I don't have any shopping I have the itch from hell tired got swollen legs and ankles earlier my mood has hit an all time low

[PBCRobert Partner]

Hntina,

I am sorry to hear this is where you are. We can help.

Please join the PBC Foundation so that we can send you some information asap.

Also, let us have a direct conversation where we can help you, address your concerns and break your isolation.

The Foundation has over 13,000 patients registered with us. I promise: you are not alone.

Yours,

Robert.

[Hidden]

Please go back to gp... Even if its just to sound off x

[liver-bird]

Dear Hntina - so sorry to hear this. You must get help from your doctor and do join the Foundation as Robert has suggested as they will help you. None of us should be alone with this condition. The people in this group are kind and helpful so please keep in touch and let us know how you are doing. Big hug. Diane

[P13jne]

Hi Hntina please don’t feel isolate and alone, you’ll find plenty friends and good advise on here. Robert is fantastic and will keep you informed.

I’m always willing to chat anytime as I’m a late night bird.

Keep going, we’re all here for you. Jane xx