Pbc/AIH

[janine541]

Anybody used anything good for itching, I’ve trued assorts and I’m going crackers

[butterflyEi]

Hi janine541

In 2014 the itch went ballistic for me, it took until 2016 to get it under control and I am now prescribed colestyramine 2 sachets one either side of breakfast, when that did not work well Naltrexone was added but I had a bad reaction to it so Rifampicin was prescribed instead and later 25mg sertraline. Although this is quite a lot of medication I can live a more comfortable life. When the itch still breaks through I use a 2% menthol cream straight from the fridge. I know some people use ice to cool the skin and others find that anti histamines work but you say you have tried all sorts which I assume are over the counter medications. It may be you need to speak to the doctor. There is a good article by Prof. Neuburger on the itch in the Bear Facts magazine of spring 2015. Although written fours years ago I do believe it is still current. Alternatively are there any research studies in your area that are tackling the itch - maybe worth an ask of your local consultant or if you are already taking medication I wonder if you could be referred to a centre of excellence such as Newcastle if you live in the area. I think London and Cambridge are also centres of PBC excellence but that would need to be checked.

hope you can find something to help.

[livernonions1]

The best thing for the itching is to not start scratching. It just makes it worse. I know how hard that is but it is true. There is nothing topical that works.

[Gaspereaux]

Ask your doctor about Fenafibrate……it is used for cholesterol but controls itching.