So maybe 3 to 4 weeks ago, I had posted a question asking if anyone had used Dr Burt Berksons therapy for PBC. Dr Berkson has worked with Dr Julian Whitaker. My dr here has worked w/Dr Whitaker. My dr confirmed that Dr Berkson has had positive results using r-alpha lipoic acids/selenium/& high dose milk thistle for PBC. I've been on this regimen for almost 4 weeks now.
I'm happy to report that my itching is gone, my enzymes are dropping, & im feeling much better.
I've also switched from generic Ursodiol to brand Actigall. I'm only taking 600mg of the prescribed 900mg daily dose. (Which I will keep at the lower dose as long as things look good)
I absolutely think getting insurance to pay for brand (if you can) is worth it. The generic gave me horrible bloating. That was gone within a day of taking the brand.
My Dr is thrilled that I was able to reduce the dose to 600mg.
I know Dr Berksons protocol doesn't work for all, but it's helping me quite a bit. Since I also have lupus & breast cancer, I've also gone to a much healthier diet & daily walking. I've also introduced iodine drops & that's only added to how good I feel. Within a week of starting iodine drops, I've lost 4 pounds.
(My Dr has long believed I'm iodine deficienct....as majority of the population is)
I wanted to share good news to this group, & even though I know it can change with this disease, it's a beautiful thing right now & I'll take it!
For me, dealing with 3 major illnesses, I had to find other alternatives to conventional straightforward western medicine. I will always be 100% on board with conventional medicine. However, if I can find something that agrees with my body & helps, I'm going for it!
Take care all!