My doc says that all of her PBC patients had to go on disability. She has taken me out of work but it freaks me out. I'm only 43 and now have worries about my future finances, insurance, health care access, medication costs, and others. On the contrary, I was taking off work 2-4 days per month due to appointments, hospitalizations for esophageal bleeding, encephalopathy, GI issues, and fatigue. The encephalopathy was the straw that broke the camel'so back.
Are all of you on disability, too? If not, please give me insight on how to avoid it. If so, please give me insight on the financial aspect or resources that can help. How did you get insurance?
My daughter did post a "go fund me" page about me through her Facebook account. It was so sweet, she already raised $1,600. She's so cute, she wanted to raise enough money to pay for the house so we could prevent foreclosure.
Jessica D., Chesterfield, VA