Gym or Support Buddies needed - London Essex

[xXxAndzxXx]

Hi All,

So this year has been hard been told that the urso doesn't work for me and then they put me on steroids and they have done no good either so they have taken me off them. Finally, been told that I don't qualify for the new trial meds... So I am literally at a loss!

I am turning 30 this year so its daunting to think there is nothing the doctors can do for me already! I was only diagnosed about 3ish years ago so all the tests etc have not come to anything.

So... The reason I am posting this message is to create a support group near me of suffers where we can exercise together(like go for walks etc) and talk about our health and week or swap healthy meal ideas.... Because I have decided I am too young to give up now and honestly only exercise and diet is likely to be my saviour as medicine is doing nothing for me but giving me the worst side effects!!!

So if anyone is interested do let me know. I am ready to listen and ready to motivate myself and others.

excited to hear from you!

[kimphoebe]

Hi there

Do you know why you don't qualify for the new trial and which one is it.

Thanks

[xXxAndzxXx in reply to kimphoebe]

I can't remember the name if I'm honest just that only certain hospitals can prescribe it...

I know I don't qualify because my results dont align to what the meds help with cos I have a rare form of pbc..

Sorry that is all very cryptic because I don't actually know the names of anything. When I get my consultant letter in a week or so i can let you know because she confirms it all in a letter.

[Hidden]

A call to the pbc foundation may help, they can put you I touch with other people in your area most areas of the uk have a support group. The number and link to join is at the top of the page. They would also be able to answer a lot of your questions about pbc.