Hello everyone! My name is Beatris and recently I found out that I might have PBC. I am still in denial, the test came positive but I am still hoping that it's not. I have an MRI scan and a fibrosis scan due in the next few days and I'll take it from there. I am obviously really scared, I don't know what to make of it, I have no symptoms and I feel absolutely fine. I basically went for a routine test, I always do, once a year, and the GAMMA GT test was elevated (high). That's how it all started, after further blood tests the PBC came positive.
I am a strong believer that food is the best medicine but I really don't know what diet is best for someone with PBC. Is this an autoimmune disease? A paleo diet would help? Is anyone following a diet that actually works? I know if won't cure the PBC but I am confident that can help massively.
I would also love to meet people with PBC, do you know if there is a group in London that meet and talk about it? A support group (not only online) would be great.