Numbness/falling asleep in hands and feet?

[Jmorrison]

I have been experiencing feet or hands 'falling asleep' intermittently for a while now and I am wondering if other pbc patients experience this?

[Cathyjo]

Left hand and left leg , they go numb, it was happening before I was diagnosed I take Ursodiol because AMA test but liver biopsy show no cirrhosis so they say it’s still PBC? All other blood work is normal now that I take Ursodiol!

[Jmorrison in reply to Cathyjo]

Thanks for your reply. Good that you have responded so well to Urso. Do you still experience the numbness?

[Cathyjo in reply to Jmorrison]

Yes in my leg a lot but the pain in arm and shoulder not as much! My biggest problem is getting Ins. To pay for Ursodiol ! Any ideals out there I need help!

[Jmorrison in reply to Cathyjo]

Sorry to hear that. Fortunate in Australia that Ursofalk on the pbs once diagnosed with pbc.

[butterflyEi]

I have pins and needles in hands and feet, I have been diagnosed with peripheral neuropathy and am prescribed gabapentin. After watching a You Tube presentation of a round table discussion where the doctors talks about vitamins I have also been taking a multi vitamin without iron for a while now and I believe that this helps with the tingling.

[BethRL]

Hi. I did have. B6 has been effective. Check vitamin levels. My D was effected from PBC.

PBC causes ducts not digest fat soluable vitamins. ADEK. I feel it effects PH level as well.

I take multi n B6 n D 4000 n Probiotic.

I hope this helps you.

B12 good for energy. Eat well rest n exercise.

Take care.

[Jmorrison in reply to BethRL]

Thanks BethRL

[Jmorrison in reply to Jmorrison]

What is ADEK?

[mjk98]

I cramp a lot like if I turn or twist I get cramps in my side my hands I have PBC with overlap of AIH my doctor seems to be more concerned with autoimmune disease versus the PBC

[Jmorrison in reply to mjk98]

What is AIH?