I'm brand new here and hoping for some reassurance. I am a 40 year old mother of 5 (17, 15, 13,7, & 9 weeks). I have not yet seen my GI specialist. I have my first appointment with her tomorrow. The problems I'm having began during pregnancy and I think my OBGYN dropped the ball. My urine was Brown, I'm jaundiced (Bil 12 at last draw), itching all over like crazy, elevated liver enzymes... He just thought all this was normal. When I got very sick at the end, he admitted me to the hospital, started the lung maturing shots for the baby and we had him the next week.
He expected all of this would resolve itself by my 6 week check up, but no such luck. My enzymes had raised even more but my Bil was down to 9. He made me an appointment to see a GI dr at the end of Sept. I made an appointment with a new Dr at IU last Thursday and he said no we are not waiting a month to be seen. So, Friday they say they put a referral in to see a GI dr ASAP.
Tuesday they call and say that he suspects a diagnosis of PBC and I have an appointment to be seen tomorrow. I can see my lab results online and I suspected the same, read the horror stories and medical journals about life expectancy on my phone, brand new baby who definitely needs his mom in my lap... ugh. Scary stuff.
Then I found this site and am a little more reassured... But still scared to death.
Immediately when leaving my Dr a week ago, I started following a vegan liver diet I found online. Basically, no animal products, no refined carbs, no sugar/artificial sweeteners.. so super healthy. I'm drinking only water except 2 cups of coffee a day (gross) because I read coffee protects the liver. No alcohol.
Anyway, I'm super scared of what she's going to say tomorrow. My husband is totally in the belief that this is new, cannot be advanced, but was aggravated from the pregnancy and my body not being able to keep up with the added stress of the pregnancy.
But overall, I feel okay. I walk 5 miles a day with my baby. I am tired but I sleep in a recliner beside my baby's crib, and he still wakes up every 2 hours to eat... I'm tired because I get 4-5 hours of sleep I believe.
Anyway, nice to meet you all and I'm hoping things go well tomorrow.